MtPockets
05-22-2008, 09:45 AM
I do not want to rehash an old issue, but felt I needed to share with everyone what I was told by a leading Neurologist at an ALS Clinic. I do not do this to scare anyone, just trying to open everyone's mind to the hardness to diagnosis ALS sometimes even for those who treat it on a regular basis.
I went to an ALS clinic in Louisiana, and was told by the ALS Neurologist, Dr. DeAlvare, that he had a patient, just a few months before I came, that he ran all the tests on and told him he did not have ALS. Negative EMG, negative NCV, everything was clean, from a neurological point of view, etc.
His patient then went to John Hopkins and got the same Dx. Three months later he died and the autopsy showed he definitely had ALS. The Doctor was confounded and said sometimes, you just can't DX ALS. The textbooks sometimes do not have the answer. I know we have made many strides in improving DX of ALS, but there is always that element of mystery, the unknown.
I know many here hate to hear of things like this, but it is a fact of life. Only God knows sometimes what is going on with our bodies. Man does his best to guess at it, but ALS is so elusive, almost like a criminal hiding in the bushes.:twisted:
I went to an ALS clinic in Louisiana, and was told by the ALS Neurologist, Dr. DeAlvare, that he had a patient, just a few months before I came, that he ran all the tests on and told him he did not have ALS. Negative EMG, negative NCV, everything was clean, from a neurological point of view, etc.
His patient then went to John Hopkins and got the same Dx. Three months later he died and the autopsy showed he definitely had ALS. The Doctor was confounded and said sometimes, you just can't DX ALS. The textbooks sometimes do not have the answer. I know we have made many strides in improving DX of ALS, but there is always that element of mystery, the unknown.
I know many here hate to hear of things like this, but it is a fact of life. Only God knows sometimes what is going on with our bodies. Man does his best to guess at it, but ALS is so elusive, almost like a criminal hiding in the bushes.:twisted:
