View Full Version : stem cell treatment in isreal
dona jean
05-07-2008, 07:27 AM
vemma, if you are still with us, i was wondering how your relative is doing, the
one that went to hadassah hosp in isreal for stem cell treatment.
dona
kaden03
05-20-2008, 09:10 AM
My grandmother has been diagnosed w/ ALS. It is progressing so fast. We're looking for ANY info... good, bad, anything on stem cell treatments (or any other treatment). Please, if you hear anything back from Vemma, let me know. My email address is kristen.king@maine.gov
I'll keep yours in my prayers...
JimmyNinio
08-06-2008, 07:03 PM
Dear Vemma, I tried in vain for many months to contact Dr. Karussis in Israel for the stem cell treament on my father, only to be informed by the hospital that he does not perform the treatment outside of clinical trials. Your relative obviously had some better information that I did, and managed to receive treatment. Could you please direct us to the contact person that your relative used to obtain treatment at Haddassah hospital. I am desperate to have the treatment attempted on my father who has advanced Bulbar ALS.
NeverGiveIn22
08-11-2008, 05:47 PM
I'm hearing great things about Stem Cell. Both of my ALS Specialist Doctors I have seen see excellent results in this testing. They both told me good and bad about this.
#1. Once the stem cell is implanted, it's not a guarantee that it will make its way to the nerve damage area and repair.
#2: They both say the stem cells produce at an extremely slow rate (1 mm a day).
#3: On the flip side they say that their are nerve sensors in the body and they may be able to transplant into these areas and get a better result.
I'm just learning about this info, but this was what has been passed on to me. I love both my doctors, who are dedicated to finding a cure. Though, some other good news is the Rilutek/Lithium combo trial starting. Patients at my clinic not eligible for the trial have reported great outcomes thus far!
awakinggiant
08-11-2008, 08:19 PM
These two clinics claim to do stem cell treatment not unlike the ones done by the Israeli Dr. No garantees obviously but maybe worth looking into... I'd do it now if I had the $
Kris
Sorry giant but we don't post links here for anything construed as offering false hope to patients and their families. It just doesn't work. Maybe someday it might. I haven't given up hope. I won't let someone get ripped off because of something found on this site.
AL.
Jennifer51
08-21-2008, 01:55 PM
I have just received an email from the motor neurone assoc in the uk, asking what I thought about asking members to help fund a £500,000 trial (or maybe 2) in the UK. The trials are being investigated at the moment to work things out, but this is great news. Anyone in the UK who does not belong to the association???? Maybe you could join. They have been a fantastic support to me over the last few months since my diagnosis when I was not even a member... I only became a member last week...time to give back.
