Anyone having weird feeling in legs? Like electricity?

[MtPockets]

I've got another unusual symptom and was wondering if anyone else is experiencing the same. When I lay down at night and try to go to sleep it feels like electricity crawling over the skin of my legs. Or maybe a better description would be worms moving under the skin of the legs.
I have lost the use of my legs for some time now and this new symptom is keeping me awake at night.
I have tried medicine for restless Leg Syndrome with no help at all.
Any ideas?

I have not been on for awhile because I just got out of the hospital. A bad flu bug sent me for a fun ride in an ambulance to the hospital for a couple of days. I could not breath. Never a dull moment around here.

[Omar]

hmmmmmmm, you know sometimes when I am shaving or trimming using my right hand (the weakest one) I feel a kind of very quick and painful electric-shots just like the 'electromyogram' so I change the position then it goes away.

[asmileaday]

My husband has a "pins and needles" sensation or his legs falling asleep all the time. He for some reason feels this is a positive sign against an ALS DX.

[happy]

Al,

Glad you are back home safe. Take care.

Robin

[Al]

Glad to hear you're ok buddy.
AL.

[JACKIEMAX]

i don't know if this is in the same category or not, but horace had
sensations in his legs and arms a lot, and did not have a
solution. he, too, was treated for restless leg syndrome, but it was
not. it was just uncontrollable jerking. at this time he is taking 2 ml
of ativan plus 1/2 dose of morphine each night at bedtime and now
he sleeps soundly. however, he is also 100% dependant on his bi-pap
24/7 in order to breathe. when his lung muscles get too weak to handle
the pressure of the air pumped in by the bi-pap, his heart will fail.

as i've said many many times on this forum, als is a monster disease.

jackiemax

[olly]

i am so sorry to hear you have been ill, but its good to see you back and i hope you are feeling better.
i have had a constant buzzing/vibration feeling in my legs for years since i got ill. sometimes i can just feel it other times it is bad. always worse in my feet.
i have heard other people with mnd who have had this, it is also common in ms.
i told my neuro about this but he never told me what it was,it does not hurt and at first was annoying but i have got used to it now so just ignore it.
with regards to pins and needles or numbness this can be a symptom in some with mnd, i have read and heard people say this.i too have had numbness feeling but if i touch the area i can feel it so its not really true numbness as in ms. it is thought that it is actually weakness, maybe that is what the feelings in the legs is.
take care al, god bless
caroline

[BeachN]

Hello everybody! This is BeachN, Capt Al's baby sister lol.....God Bless all of you and I pray you will find peace within your heart to carry you through life as it may be....
And Bro.....I have had a weird feeling for 40 years now......Ever since I married the ole CAJUN.....
Peace and Love to all.......Hope you sleep better tonight Bro...Ya know I love you soooo much....Even though you ARE older then me!

[strikeout]

Olly,
My husband has the same buzzing, vibrating feeling you are talking about. It starts in his butt, goes down his legs and into his feet. Says he feels like he's ready to blast off and finds it extremely annoying. I get the impression doctors don't know what he's talking about when he describes it. He has a possible diagnosis of PMA.

[snowmass27]

Hi all, my husband (dx 3/08) also has the tingling feelings and numbness - same thing, if touched, he feels it but he describes it as numbness. Initially, the neurologist kept saying that it wasn't ALS because ALS doesn't present with numbness. The tingling comes and goes - sometimes for hours and other times for short periods. He finds it really annoying.

[rick/Wpg]

Hey Captain Al
We are soooo glad you are ok....were worried about you as you had not been on for a bit...take it easy:)
Blessings!
Rick & Joan

[CindyM]

Hey Mt. Good to see you are back. take extra care of yourself as any other illness on top of ALS can send your body for a loop! And BeachN- how nice to "meet" a member of Captain's family!!

Oh, I get the tingling thing too-worse in my hands. sometimes if I overdo it with the computer or knitting or other use of the hands I get sharp electric shocks in my thumbs.

[Peg B]

Hi,

I get it. I told my husband it gives me the heeby jeebies and I feel like I am being electrified. Usually get it at night of days I do alot.

I have also started to get lots of short sharp pains in hands, wrists, and legs. Do you get those too? Take Care, Peg

[Al]

Hi beachN. I love Pensacola NAS and air museum. Glad to have you aboard.
AL.

[MtPockets]

Glad everyone got to meet my much younger and better looking sister, BeachN.
I would post a picture of the two of us but she might kill me. Oh well, let's liven up the day. Many moons ago on Christmas day. :-D:-D :twisted:
http://i160.photobucket.com/albums/t172/ShakeyMarble/5-8-2007-01-1.jpg

http://i160.photobucket.com/albums/t172/ShakeyMarble/BroI12thAve-1.jpg

[kevinw]

Although my dx is only "PLS" at this point I have the exact same feeling in my left leg everynight (and sometimes during the day when resting). It feels like a slight humming or buzzing feeling. Believe it or not, the first time I felt that exact feeling was during my lumbar puncture. Early into the procedure when I was on my side he hit something near the spine and my leg got tense and started shaking. It hurt a lot when he first hit it, then he had me lay on my stomach and tilted the table, after a few minutes he kept asking how my legs felt and my exact statement was it felt like I was being "electricuted" in my leg (it was pain by that point, but it was that buzzing feeling).

Just thought I'd share.....must have something to do with the nerves near the spine????

[MtPockets]

The buzzing description sounds almost like what I feel. But, it also has like a trembling thing going on at the same time. Not as bad as when I had the facilitation's in the legs. These facilitation's have stopped since I lost the use of my legs.

This is more like a vibrator on medium speed I guess, with electricity thrown ionto the mix.

Oh, it's just hard to put into words. Anyway something strange is going on and last night was the first time in two days I got any sleep because of it. I took 2 Klonophin, and a Valium to finally get any sleep.

I just got a new bed with the "Space Age Memory Foam", which does not work very well for me. I sink about 6 inches into the mattress when I lay down, and if I am on the side of the bed trying to transfer to my wheelchair I sink a full 12 inches down.

I would not recommend anyone with lost motor functions get one of these mattresses.

[BeachN]

Alright Bro...you in deep uhhhh....trouble now!!!!
Yea....all I wanted that Christmas was a cowgirl outfit with Majorette boots????? Welll that tells ya a lot about me lol.....Still crazy after all these years....
Love ya Bro...and Hi e body...

[BeachN]

Geez Bro...after all the trouble you went through to get that mattress.....man thats a shame....I know it has to be hard to get out of bed like that....
Ya know I am still not use to this forum ....so please forgive me if I am posting in the wrong area .....I can't even find what I posted yesterday to see if anyone replyed....I am just floating around in cyber space me and my spacy self..:confused:

[BeachN]

AHH HA!!! I found you all....Thank you Cindy and Al for the warm welcome.......If I can remember ....I will check back here more often.....Memory not the best in the world.....Must have been those tight majorette boots or Nagasaki Genes my brother and I are blessed with....If dad would have only stayed on board we would be just fine....:(

[patricia1]

yES I HAD THE SAME FEELINGS LIKE A VIBRATION IN MY FEET IT FELT LIKE IT WAS COMING FROM THE FLOOR BUT IT WAS MY FOOT THAT WAS VIBRATING I HAD THAT AT THE BEGINNING OF MY ALS NOW ITS GONE PAT 1

[MtPockets]

At least that is encouraging Pat. Maybe like all things, it will pass in time.
Thanks to everyone for the input and ideas. I was beginning to think my old mind was playing tricks on me.

[olly]

no your mind is intact lol. i love the pictures, aaahhhhh was'nt you adorable al and your sister also. i may be biased but i agree you are better looking:)
i tend to think the vibrating feeling is like touching something that is vibrating like a washing machine on spin, it can feel like you are shaking inside sometimes.
wow i'm suprised how many of you have this,i too thought it must be just me.
maybe it is a nerve thing but in mnd nerve conduction tests are normal, i have read paralysis can be in many forms regards to how a person feels it happening, so i would personally think it is this or weakness.
god bless
caroline:-D

[patricia1]

Before I Had Any Signs Of Als I Would Wake Up Feeling A Tremor Inside My Body Lasting About 10 Minutes. .
When I Told My Boss Who Is A Md He Said Maybe You Had A Fever Which Was Stupid On His Part.

It Lasted For Years Only On Wakening Very Strange. Now After 9 Years Its Gone Pat 1

[CindyM]

I get that tremor every day now. It is in my trunk muscles. As the day wears on it becomes very pronounced. I can control it but after awhile the effort gets too much. The minute I relax I break out in the shakes.