Xtina1217
04-09-2008, 09:23 PM
Hello All!
My name is Christina and I am a daughter/partial caregiver to my father who has ALS. My mother is also a new member, and I at first just signed up because I figured I could help her manage her profile (I am a little more computer literate ) but after going through the site I was blown away with the amount of information available, and also how nice it must be to just vent your feelings sometimes and have other people actually understand how you feel.
To give a quick background to my dad's case, he was a hard working truck driver who was always active looking for things around the house to fix, even if they weren't broken to begin with. Then after a fall at work he was forced to have a knee replacement. When he wasnt recovering, and was in fact getting worse is when we had to go to a specialist. After going from doctor to doctor to get a dx. we finally were given ALS as an answer in late Nov/ Early Dec of this past year. In just these past horrible monthes he has gone from walking with a walker to being completely wheelchair bound, and his hands and arms have become inactive to the point where we need to feed him his meals, and most recently his voice has changed quite a bit and is starting to have trouble pronouncing some of his words.
I was just wondering, does anyone have any possible ideas on what to expect next?
Looking forward to talking with you, and helping in any way I can!
Christina
My name is Christina and I am a daughter/partial caregiver to my father who has ALS. My mother is also a new member, and I at first just signed up because I figured I could help her manage her profile (I am a little more computer literate ) but after going through the site I was blown away with the amount of information available, and also how nice it must be to just vent your feelings sometimes and have other people actually understand how you feel.
To give a quick background to my dad's case, he was a hard working truck driver who was always active looking for things around the house to fix, even if they weren't broken to begin with. Then after a fall at work he was forced to have a knee replacement. When he wasnt recovering, and was in fact getting worse is when we had to go to a specialist. After going from doctor to doctor to get a dx. we finally were given ALS as an answer in late Nov/ Early Dec of this past year. In just these past horrible monthes he has gone from walking with a walker to being completely wheelchair bound, and his hands and arms have become inactive to the point where we need to feed him his meals, and most recently his voice has changed quite a bit and is starting to have trouble pronouncing some of his words.
I was just wondering, does anyone have any possible ideas on what to expect next?
Looking forward to talking with you, and helping in any way I can!
Christina
