sma

[siuska]

i escaped motor neuron disease but just found out my neighbor's child has SMA...i did know enough to inquire about the medical center and doc she has (excellent) but, i am at a loss on how to offer support...any suggestions?

[CindyM]

I'd offer to help with the other kids, if there are any. Sometimes the siblings of an ill child get left out, from their point of view. We know the other kid needs hugs and toys and lots of attention but even a pre-teen has a hard time with the percieved inequity of attention, sometimes. JMO...