Pat1? Not ALS after all?

[mamaoftwo]

I just read your post. I am astonished. They think after all this time you may have had MG after all. I am delighted for you of course but just amazed that they have messed you around like this. Does this mean you need to start some kind of new treatment?

[patricia1]

I THINK YOU MISUNDERSTOOD i HAVE ALS THE TECH SAID ONE TEST IN MY THUMB WAS CONSISTED WITH MG BUT SHE WAS VERY UNEXPERIECED SO I WILL WAIT FOR THE OFFICAL REPORT FROM MY MD.ALL MY BLOOD TEST FOR MG WERE NEG,I AM JUST SO CONFUSED SHE WOULD SAY SUCH A THING,MY PROGRESS IS THAT OF ALS.WAS TOLD BY THREE NEURO ILL INFORM ALL WHEN MY DR CALLS PAT

[Jamiet]

Oh my God pat...how much i would wish for a miracle for you! If i could wish it on anyone, you would be at the top of the list. You've been an angel from day one...not a bad bone in your body....

How good would news (how crazy that sounds) of MG be...... It would be a great way to start 2008!!!!!!!

Rgds,

Jamie

[crystalkk]

Pat,

Did your dr ever call and explain your emg? hoping it some kind of good new...

[vmd]

Let's pray it's good news for you Pat.

[patricia1]

Hi Guys Finally got some answers the emg was not much change from 2years ago However it show A typical ALS what ever that means I know my symtom are getting so bad this year No more hands or arm use and legs are going, I am going in a study in a month and hoping for answers. [I am in florida now, life is easier here Take care gu ys Pat1

[CindyM]

Sorry to hear it, Pat. Lets hope it is a slow-moving variety. Cindy