My Husband Jorge Lost His Battle To A.l.s.

[Paty]

I WANT TO LET MY FRIEND'S AT THE FORUMS KNOW THAT MY HUSBAND JORGE FINALLY LOST HIS BATTLE TO A.L.S., AFTER SIX MONTH'S AT THE HOSPITAL CONNECTED TO A VENTILATOR.

I WANT TO THANK MY WONDERFUL FRIEND'S FOR ALL THE SUPPORT I RECEIVED FROM EACH AND EVERYONE OF YOU, AL, CINDY, JACKIEMAX, LUNARUNNA, MT. POCKETS, QUADBLISS, ETC. ETC.

I WILL KEEP IN TOUCH AS SOON AS I GET A LITTLE REST, SINCE I SPENT SIX MONTH'S LIVING AT THE HOSPITAL.

GOD BLESS YOU ALL.

HUGS

PATY :cry:
BAJA CALIFORNIA, MEXICO

[Icanmanz]

Paty, God bless you! Jorge is now resting in peace, bless his soul. I have read many of your posts. Did he pass on the 31st? My condolences to you and family. May our Father give you strength, comfort, peace, etc! Take care!

Irma

[anne]

Paty: I am so sorry to hear the news about your beloved husband. He is now free of this terrible disease.
God will give you the strength to carry on.

God Bless. Anne

[CindyM]

Hello my friend. I am sorry to hear about Jorge. Did he get a chance to meet his new grandchild, or is your daughter still expecting? I hope the family is doing well and I hope you know we are with you in our thoughts. Please check in from time to time. You are never far from my mind. Cindy

[Gina]

Paty,so sorry for the loss of your Dear Husband.My prayers are with you and your Family......Gina

[ccox]

I'm sorry for your loss. I often find myself at a loss for something meaningful to say. I know your husband is free of his suffering, but I know you'll miss him.
Prayers for you and your family.
Carla

[Beebe]

You have been down a rough road and hung in there. So sorry for your loss, hope you will find peace in the New Year. You stayed at the hospital?? You don't have Hospice, that must have been a terrible ordeal. Keep in touch with us. Fondly, Beebe

[Al]

Paty I know this has been hard for you and Jorge. I hope you have both found peace at this time.
AL.

[liz]

Paty - So sorry for your loss. I was always impressed by your fortitude and positive attitude under such difficult circumstances. - Liz

[l2c]

Paty, condolences from someone who knows what you are going through. My dearest husband/PAL died in the hospital on Dec. 29th. They will be sorely missed! Marlene

[Paty]

Thank You Everybody For Your Supporting Words, Jorge Is Now Resting In Peace, He Passed Away At 10:30 A.m., Sunday 30th. He Was Holding On, Waiting For Our Daughter Claudia To Have Her Baby, Which Happenned On Thursday Dec. 27, On Friday Dec. 28, We Showed Him Pictures And A Video Of Our New Grandson, After That On Saturday 30 He Started Having Problems He Wasn't Ventilating Well, The Air Going In, Wasn't Coming Out, His Pupils Were Dilated And He Started Going, His Lips And Fingers Turned Purplish, And His Pulse Stopped, An Electro Was Done To Check His Heart, Which Had Now Stopped.

Beebe Here In Mexico We Don't Have Hospice, So We Lived At The Hospital For Six Month's, I Only Went Home On Sundays And A Private Nurse Stayed With Him.

As For Me It Has Been Very Hard; Now I Am Alone At Home, Although My Son Lives Only Two Blocks Away, And The First Two Days I Slept At His House, My Daughter Had Her Baby By Caesarean And Her Mother In-law, Has Been Helping Her, Right Now I Have A Cold And Don't Want To Make The Baby Sick, As Soon As I Am Well I Will Go To Help Her With The Baby.

I Will Keep In Touch And Will Be Praying For Each And Every Pal And Their Families, Hope That A Cure For This Monster Of A Disease Is Found.

Love

Paty
Baja California, Mexico

Let Me Introduce You My Grandson: Cesar Eduardo Maytorena Samaniego

[shellshell]

Paty, what a beautiful grandbaby you have. Our Lord above assures us that he will never leave our side. I find it to be an awesome event when a baby is brought into this world, I feel it's God's way of healing our hurt and in some way trying to show us the circle of life. My dad has ALS and is not doing well at all right now; however, my husband and I have a baby that we've had since she was three days old and hope to have our adoption finalized soon, she is three months old now and my brother's youngest son is 9 days older than our little one so it's like a circle of life. I fully believe God sent Kinslee to us after 13 years of trying to have a child to help in some way ease the pain when I do loose my dad. I am such a daddy's girl and before Kinslee, I didn't see past this disease at all. I am very thankful that you too have a beautiful baby to gaze at and give so much love to during this very VERY difficult time in your life. Know that we all pray for you!

Love,
Michelle Thomas (Kinslee's Mommy and Daughter to the BEST Dad a girl can have!)

[Gina]

OMG,what a precious little angel!!!!!I am so sorry that you are not feeling well right now and not able to hold the little doll.It must be such a bitter sweet time for you!I am so glad that your husband could hang on long enough to see his little granchild!Is this your first granchild Paty????Wishing you well and hope you get over that cold soon!........Prayers your way..Gina

[Beebe]

What a Beautiful Baby!! Your Grandson will keep you busy and fill some of the loneliness. My Grandson is 12 and he so special, God blessed us when he sent him to us. Our thoughts and prayers are with you. Thank you for your response concerning Hospice. Fondly, Beebe

[Icanmanz]

Paty, such a precious bebe!!! May God bless your beautiful grandson. Cesar Eduardo is such a kingly name! We are keeping you guys in our prayers!

Irma

[nspoc]

Hi Paty -

I have followed your posts ever since I became a member. You have been such a strong and faithful caregiver - a real inspiration to me.

I am terribly sorry about the loss of Jorje.

My most fervent wish for you now is to experience peace and love for yourself. You have done so much - now I hope the healing from this terrible ordeal will begin.

I wish your new grandchild will bring you the joy you so richly deserve.

I will never forget you, Paty. Your presence on this board has been a continual source of comfort and inspiration to me. Please know that you are in my heart.

Beth

[lunarruna]

Dearest Paty,
I have thought of you so many times during the past six months. I am so sorry for your loss. You were amazing in how you hung in there and took care of your Jorge. Now be gentle with yourself and take care in your grief.
Sending you peace and love,
Beth (former CALS to husband Shannon)

[midwestgirl]

Paty,
My deepest sympathy on the loss of your husband. You were a wonderful caregiver and wife. My prayers and thoughts are sent your way!

[Paty]

Hi girls I am so :cry: that I don't know what to tell you, I was so sad when I read about Shannon's death (Lunarruna "Beth's husband) my dear friend from Montana; and the few times I could come to read the posts after spending six month's at the hospital to keep on reading that more PALS were dying, made my heart cry.

My son tells me to try to leave these forums on the side and to keep on with my life, but it's so hard it will take time for me to do such a thing (MY LITTLE HOUSE ON THE PRAIRE), were I met such beautiful and courageous people.

I want to keep on sharing my experiences with everyone here; and if anyone wants to vent their feelings feel free to e.mail me.

Love

Paty
Baja California, Mexico

[anne]

HI Paty...With the thanks to all the people on the forum I have gained alot of knowledge concerning this terrible disease and I received alot of support. My mom passed away September 21, 2007 and I have not been able to walk away from this forum. My mom would often question if she was the only person with this disease. It is sad to say but I guess I got comfort knowing that she wasn't the only one. I know I should move on with my life but it is hard.

Take care. Anne

[CindyM]

Give yourselves time, ladies, before moving on. Your lives will go back to normal at their own paces, meanwhile we are here while you recover. Plus former CALS have so much to offer those new to the experience! Hugs, Cindy

[Icanmanz]

Hi Paty! I would like for you to know that you are in our prayers. I know it's hard. It has been 7 months since my son passed from this horrific disease, and I still cry for him. I find myself missing him so bad. The holidays were pure torture. We went over to my other son's, but I was in a daze the whole time. I really didn't have much to say.

I am sure He will give you comfort and peace in your heart to move on. Jorge is in a much better place. How long did he last after dx? God bless!

Irma

[Al]

Hi Paty. Everyone needs time to grieve and do it in their own way. I hope when you are able you will come back to help the new Caregivers here with your knowledge and understanding. If you can't, we do understand but know that you will always be a welcome addition to this forum.
AL.

[MtPockets]

Paty, please accept this hug from all of us.
http://i160.photobucket.com/albums/t172/ShakeyMarble/Jesusgreeting.jpg

[Paty]

THANK YOU CAPT. AL, DEEP FROM MY HEART.

MAY GOD BLESS YOU AND YOUR FAMILY.


PATY
BAJA CALIFORNIA, MEXICO
CAL TO LATE HUSBAND JORGE, WHO LOST THE BATTLE WITH A.L.S. ON DEC. 30TH. 2007:cry:

[l2c]

I know how you feel, Paty about this forum. I didn't find it soon enough but it did help me for the short time I had Don with me. Our husbands died so close together - Dec. 29th and Dec. 30th. As you can see I am still checking in. Only those of us who were and are CALS really understand what that means.....24/7.

My heart goes out to you as we sorrow together.

[terri]

Hi Paty,

I'm sorry for your loss.

Take care of yourself.

terri

[sherry0459]

I just learned of your loss, may God grant you comfort. Isn't it strange how God opens a window when we think the door is closed. My first grandchild came when I lost my Father, now my Dx this past year and the second is on the way. Paty, You will be in my prayers and Jorge rest in beautiful and pain free peace. sherry

[Paty]

Hi 12c:

You're quite right only us CALS know what we feel after loosing our PAL, I am so lonely, there's nothing that can take away my mind from my husband, I've been doing some house cleaning, tomorrow I will pack his clothes and will give them away to needy people.

I have to keep myself busy and I am planning to go to my daughter's house, next week to help her with my newborn second grand-child.

Hi Terry:

Thank you.

Hugs to both of you

Paty
Baja California, Mexico
CAL TO LATE HUSBAND JORGE

[CindyM]

You will always be the ultimate caregiver, Paty! Any PAL, or newborn, for that matter, would be lucky to have you in his or her corner. Give that baby a kiss from me! Cindy

[Paty]

Thanks For Being My Friend And For Your Wonderful Opinion; And Of Course My Grandson Will Get Your Big Kiss.

May God Bless You.

Paty
Baja California, Mexico
Cal To Late Husband Jorge

[CindyM]

A grandson! We have 2 new grandsons this year, 2008. Little Connor was born Jan 3 and the next little guy will arrive in April. That will make 4 in all, between 2 families. One girl and 3 boys. Great fun!!!

[Icanmanz]

Congrats, Cindy! God bless you all!

Irma

[CindyM]

Thank you Irma! I will get on the ariplane Friday (1-18) to go to Colorado to help with the new baby. I am very exicited, and a little worried, since I am so wiped out lately. My head knows that if i run into troube traveling alone I will be able to find somebody to help. And my head knows that if I have more trouble than usual in the thin air, my family will understand and we can find help if necessary. My head knows these things, plus the fact that I am lucky that I can still travel and still hold a baby, though lifting him might not be possible.

Now if my head can just convince my heart! LOL!:-D

[Poco]

Dear Paty
I am so sorry about your loss, I share your grief and I know how hard this is and will be for you since as you know I lost Dick in July. I promiose you it will get easier with time and it helped me to read materials on grieving. My days were up and down and at the most unexpected times I would cry. We are having a new granddaughter in June. Please email me if you want to talk about . I am really sorry.
Phyl

[Paty]

Thank You Phyl, And Be Sure That I Will E.mail You; It Has Been So Hard For Me My Husband's Loss; Although I Thank God For Having Stopped His Suffering.

I Suddenly Stayed Alone, My Son And Daughter Are Married Now And They Like Us Left Our Parents To Start A New Family.

Sometimes I Start Crying And Can't Stop, But I Hope That In Time I Will Learn To Live Without Him.

Now I Have Two Grandson's Emilio (3yrs.8 Month's Old) And Cesar (18 Days Old).

Thank You,

Paty
Baja California, Mexico
Cals To Late Husband Jorge

[Boots]

I have been thinking about you and wondered how things are going. I finally went to the forum yesterday and wrote a little about Dennis. I procrastinated doing it as I found it a little depressing whenever I would read about a PALS that had passed. I decided that I really needed to write something and now feel better that I did. A lot of people on the forum don't know me the way they do you as I usually chose to write private e-mails. I had a couple of judgmental comments made to me when I first joined the forum and decided I didn't need to be attacked. I had enough to deal with and didn't want to cope with any negative energy.

I know now that most of the people on the forum are sincerely caring and I am glad they are there for all of us. I love the fact that they have a place for us to talk about our loved ones. It was a great idea. The forum just keeps getting better and better!

Paty, I feel my life parallels yours in many ways. We have so much in common as far as our 2 kids, a grandchild (mine and Dennis's 2nd being born 12-4-08, 3 weeks before he passed), and hard working husbands who became ill and had to endure this cruel disease finally finding peace with our Lord, but leaving us alone.

Please stay in touch and hopefully one day we will meet. Love, Boots (Lyn)

[Paty]

Dear Lyn:

I was just about to go to your message about Dennis passing away, when I saw that you had written a message about Jorge's passing away; surely we have so much in common, remember that you have a friend in me; and whenever you feel like venting I will always be here for you.

Remember to keep on e.mailing me and so will I.

I plan to keep coming to the forums, I found comfort and very good friends here.

My love and prayers are with you and your family.


Paty
Baja California, Mexico
CALS to late husband Jorge.

P.S. I WILL NOW GO TO YOUR MESSAGE ABOUT DENNIS, I WANT TO VISIT THE LINKS YOU POSTED AND WILL PLACE THEM ON MY FAVORITES.

[nsmith555]

Paty,
I am so sorry for your loss of your dear husband.
I hope it is a comfort that you have a new family member to welcome and who will serve as a legacy that your husband will live on in him.
May God continue to bless you!
Nicki