AngelManFL
12-16-2007, 05:33 AM
Hello to all, I thought I would start a new post - I felt guilty that the first one is so long, but very very grateful for all of the outreach of caring, prayers and that comforting feeling of the fact you all "know" me and the challanges that we all face together.
My last visit at the local ALS Clinic they took a lot of blood work and my B6 levels were extremely high. The Dr said that this could cause neurological problems but he didn't know why or how?!? Which niether one of us believed - we left there with the feeling he knew something and just refused to tell us. We tried to get him to answer more questions but he just wouldn't - kept telling us over and over that I needed more study at the Mayo clinic - that was his answer to every question that day.. extremely frustrating answer!! We tried to ask him if there was something in the body somewhere that broke down vitamin B6 or what the process was and why and how could mine possibly be so High? He answered every question with the same answer.. That was now ten days ago(12/05, my original appt date at the Mayo that this man asked me to cancel!) and we have had no luck searching the internet on this issue.
He said normal was below 14 and that mine was 89. Of course I have no idea what that means and there is a million and two issues on the web... I was just wondering if anyone else has every heard of such an issue or how the body breaks it down?? And how does could this relate to ALS or not relate at all! My diet consist of only two nutrition shakes a day - THAT'S IT - and some days I can only get down one! I don't take any vitamins, I only drink water or Gatorade with 'Thick-It' in it - none of which he did tell us could cause this issue... There is a vast amount of knowledge and experience here and I was really hoping that maybe someone here has faced a similar issue? Jan 21st is my next appt at the Mayo - we call everyday hoping for a cancellation due to the holidays.. As you all may know by now Patience is not one of my best qualities when it comes to waiting for Doctors!!
Up until ten days ago I and evry one I know always believed that if your body did not need some vitamin you were taking - your body released it in your urine(yellow, orange or even green pee!!!).
Just hoping you someone could help us in our search for answers...
Thanks,
My last visit at the local ALS Clinic they took a lot of blood work and my B6 levels were extremely high. The Dr said that this could cause neurological problems but he didn't know why or how?!? Which niether one of us believed - we left there with the feeling he knew something and just refused to tell us. We tried to get him to answer more questions but he just wouldn't - kept telling us over and over that I needed more study at the Mayo clinic - that was his answer to every question that day.. extremely frustrating answer!! We tried to ask him if there was something in the body somewhere that broke down vitamin B6 or what the process was and why and how could mine possibly be so High? He answered every question with the same answer.. That was now ten days ago(12/05, my original appt date at the Mayo that this man asked me to cancel!) and we have had no luck searching the internet on this issue.
He said normal was below 14 and that mine was 89. Of course I have no idea what that means and there is a million and two issues on the web... I was just wondering if anyone else has every heard of such an issue or how the body breaks it down?? And how does could this relate to ALS or not relate at all! My diet consist of only two nutrition shakes a day - THAT'S IT - and some days I can only get down one! I don't take any vitamins, I only drink water or Gatorade with 'Thick-It' in it - none of which he did tell us could cause this issue... There is a vast amount of knowledge and experience here and I was really hoping that maybe someone here has faced a similar issue? Jan 21st is my next appt at the Mayo - we call everyday hoping for a cancellation due to the holidays.. As you all may know by now Patience is not one of my best qualities when it comes to waiting for Doctors!!
Up until ten days ago I and evry one I know always believed that if your body did not need some vitamin you were taking - your body released it in your urine(yellow, orange or even green pee!!!).
Just hoping you someone could help us in our search for answers...
Thanks,
