Registy/ALSA advocacy website

[caroliney]

Hello everyone,

For your information. Please keep your continued outreach for a cure of ALS. Together we can make a difference.

Please contact your Senators and express how you feel about a cure for ALS. Help fight against ALS.

We must continue to build support among Senators who are not current cosponsors of the ALS Registry Act. Contact friends or family in every state and ask them to reach out to their Senators. Sample letters are available that have key messages and can also be personalized.

Click on http://capwiz.com/alsa/home/

For updates click on:

http://capwiz.com/alsa/issues/bills/....X&cs_state=ALL

Prayers and Hugs,
Caroliney :-D


Merry Christmas to all!!

[swmn]

I've been emailing a special segment of colleagues / friends whome I have chosen to solicite for the ALS National data base... We all share a special common friend an I find it amazing the # of people who already have lost a loved one to this disease. We all need to help fight this ALS bastard - It's bullshit that there's no serious data base on the predispositions / exposures PLS have had... How many elderly ALS people have a history of Lipitore????
My uncle ( ~82) just passed from this disease - he was on lipitore.. :-? just the few people I've talked to in our community, there are a substantial # who have lost someone to ALS - it really is scary...and sad...

IF YOU Haven't Contacted Your State Reps, DO IT
- or you too, are to blame for this "mal practice"!!

What a great X mas gift to all PALS / CALS a Nat'l data Base!