Your Doctor Is Not God

[Geo]

Hello guys whatever you do ,do not take to the bank when a doctor makes an assumption . We all tend to put them above us ,this is a NO NO . They know VERY VERY little about PLS ,and none should tell you, your going to change to ALS without basing this on Factual evidence . The only way they know when your changing is through those EMGs this tells if the muscle is dieing based on no electrical signal getting to the muscle .Being that the muscles need constant Stimulation from the Brain ,when they do not get this the Muscle Atrophies or deteriorates .Some confuse Muscle weakness with Atrophy ,not neccessarily true . Alot of PLSers have Stiffness and Incoordination which could be construde to be weakness . When your a PLS patient and someone tells you that you may progress to ALS ,you immediatley think your going to die ,THIS IS DEVISTATING to say the least then people start wandering why your crying and angry
So when a doctor makes a statement he or she has no facts to back it up .find another doctor . I personaly have been to over 20 in 7 years . Geo

[crystalkk]

Geo,

From what I researched weakness can be both an upper or lower sign. I don't know how they can tell the difference. The only thing I can think of is through an EMG. Do you know anything about this?

[Geo]

Crystal .I have no weakness ,with PLS weakness is not usual .Where did you research ?CIDP,MMN, ALS, SMS , MS, Deminlinating Diseases have weakness as no stimulating signal from the brain gets to the muscles as the Milen sheath deteriorates(MS,CIDP ETC ) . In a demilinating disease EMG will problably show low signal ,in Amyotrophic Lateral Sclerosis no signal once the Neuron dies either Upper or lower .The Nerves are like wires and the EMG is like an OHMETER/VOLTMETER when they stick that in the muscle ,it will register wether theres a signal there and they start as you know at your feet and work theyre way up your spine to your tongue
This i garranty you will bring tears to your eyes . Ive had 4 EMGs , NCV nerve conduction velocity is used i beleive for detecting Demilinating Diseases. Milen Sheath is like the coating on wire ,if this coating comes off ,part of the signal gets lost or slowed . There are lots of Central nervous system diseases that have alot of the same symptoms . I like to Google Things like i'll put in Central nervous system disorders , or weakness in the upper muscles ,it will give you several hits to pick from .or for that matter EMG Geo