time frame

[Nene]

Hi everyone I know this might be a silly question but what has been the general time frame in losing your mobility I keep looking for signs and I thinks I'm making myself extremely anxious

[Icanmanz]

Hi jene, I may be wrong, but I'd say Als progression affects Pals differently.

Irma

[freddiesnetty]

Hi Jene,
I think this disease affects everyone different, I have noticed that when my husband fell (twice) every time things progressed faster, I don't know if this is a factor or not...Other pals may have more insight.
Annette

[kathmc]

From other members posts & my own journey It seems eneryone's progression is different. A post months ago from a member in Calif. ( ladave I think ) said he had diagnosis for 7 years & he still dances. I ? if a 1st symptom was fatigue of arms & hands when applauding at concerts---it was odd. That was quite a bit b4 falling. My progression seems to vary. Hope this helps.

kathy
ky.

[CindyM]

Basically, the disease affects everybody in similar ways but progression tends to be unique. THat's what I've heard...Cindy

[Sammantha]

Hi Jene, i can attest to what i have experienced.... My left foot has "foot drop" and my left wrist/hand does. I have had it for almost a year and only now am i experiencing problems with it... Like tripping every now and then, and not being able to stand on my tiptoes... I went to do a big strectch the other day and my left ankle gave out and twisted underneath me, ironically it did not hurt and i caught my balance.... Sometimes i wobble or start to fall on that side but catch myself. But i still use my arm and leg and i can dance somewhat and all that normal stuff!!