How Old is everyone in here?

[rosales20]

It would be great to know how old everyone is in here. I have a brother who is 28 yrs old and I am 30yrs old. My younger brother has been diagnosed with Bulbar ALS. I fear that I may have the same as well.

God bless...

[liz]

If you click on Members List (above) then on the name of the person that you are interested in there is a personal profile which includes this info as well as a little bio and the reason the person visits this forum.

If someone wants to complete or edit their profile click on User CP (also above) then click on Edit Profile to provide their info. Members who don't do this are simply listed as having been diagnosed with ALS as that is the default setting.

[Omar]

Hey Rosales,

I am 27 yo, and was diagnosed a year ago.
Are you also in the process of being diagnosed?
Is there any other ALS patients in your family or only you and your brother?
Take care


Omar

[alspatient]

It would be great to know how old everyone is in here. I have a brother who is 28 yrs old and I am 30yrs old. My younger brother has been diagnosed with Bulbar ALS. I fear that I may have the same as well.

God bless...



I am 54 today. I started having symptoms in 1998 and was diagnosed with ALS in 2000. Please look up at this site for genetic testing for ALS.


http://www.alsa.org/als/genetics.cfm?CFID=3839374&CFTOKEN=36285982

Regards
Bob

[sarah]

My husband has ALS and is only 26 years old. He was diagnosed when he was 23 years old. It has been a long road in the past few years!
Sarah

[Rhonda]

I am 46, diagnosed 6/2006 at age 45.
Rhonda

[lhagsjr]

28 years old.

[Wes_E]

44, Dx 30 August 06, my 44th birthday.

[John1]

60. Dx October 2000. First symptoms when I was 48.

[Lou Mo]

I'm 47 My Mom is 70 and was diagnosed about a month ago.

[KateO]

I'm 47. Diagnosed just four months ago.

[Al]

Just turned 58 dx in oct. 03.
AL.

[papaw50]

It would be great to know how old everyone is in here. I have a brother who is 28 yrs old and I am 30yrs old. My younger brother has been diagnosed with Bulbar ALS. I fear that I may have the same as well.

God bless...

My husband just turned 51 - dx in 06/06

[patricia1]

I was 53 whenI started with slurred speech in 99 Dx 05 Pat

[hboyajian]

My dad was 84 when diagnosed with ALS, maybe the oldest person with ALS on this forum. He should have been dx sooner by 1 or2 years. Doctors kept mis-diagnosing making assumptions based on his age, not looking further or listening to his concern that he was becoming weaker so rapidly. Their attitude was...well you are gonna die soon anyway so what's your issue. Maybe I would have had a similar attitude if it wasn't MY father, but I know now that it was agonizing to watch him suffer and lose him, no matter how old he was.

[jimercat]

my husband has ALS, dxd 09/06 at age of 47.

CJ

[Icanmanz]

It would be great to know how old everyone is in here. I have a brother who is 28 yrs old and I am 30yrs old. My younger brother has been diagnosed with Bulbar ALS. I fear that I may have the same as well.

God bless...

Rosales, my son was 37 yrs old when he was dx, and passed when he was 38, 15 days shy of his 39th b'day, may he rest in peace! I miss him so!

[barbaraW]

I am 50.
Symptoms started at 47.

[luv2byte]

I am 38, my big brother with ALS is 50.

[Lorie]

My brother Timothy is 45. I am 43. He had symptoms for 7 years before ALS was suspected 3 years ago. DX 2 years ago=10 years. No Familial History. I started having the same symptoms (he did before Dx) in March 06. the Neuro. said Peripheral Neuropathy and BFS. I was sent to another Specialist for a Second Opinion, I went last friday. I go Thursday for another EMG and NCV. I haven't had one since Aug. 06. This Doc. is leaning toward the same thing PN and BFS. I hope it is what they are saying and is coincidental. I woke up last night with severe/ cramps in my leg muscles and have constant twitching. I do have the PN symptoms I am going to give this Doc. another ear full when I see him thursday.

Also, I E-Mailed a Doctor at the University of Pittsburgh that does ALS Research. (Timothy is going to be a Tissue Bank Donor-at the end). I asked how likely it would be for a sibling to get ALS. He said with no Familial history. It would be very unlikely but, not impossible.

I just thought I would share that!

Lorie

[John1]

Hi Lorie,

I hope PN carries the day. If your brother does not have familial ALS, then the chances of you contracting it are the same as for the population at large, roughly 1 in 500. I once heard of a husband and wife both getting ALS within a year of each other.

[Lorie]

Thank you John for being supportive. I will post tomorrow on how my EMG and NCV go.
Although I feel they pain and what my body is doing. I still get around good. Thank God!
I just keep on going and don't dwell on it. I will say this: When I see Timothy's Muscles Jumping up and down. They are the same as mine. It is kind of alarming. But like I say, I will not Dwell on it. It could make problems worse and Timothy and my Family need me. And the work I do for ALS.


Still Going,
Lorie:-D

[captwilly]

I was dx'ed in april this year and have already lost the use of one arm and most of the other. Takin it one day at a time...wm:-

[Teej]

My husband was 44 at diagnosis in Feb. of 06...

[paula-jane]

My mum's symptoms started Oct. 06.. diagnosed March /07.. she appears to have a very aggressive form of this disease. She is 59

[olegrandad]

My wife was diagnosed in Feb.- amonth before her 54th birthday. I can't see her making it 2 more months, much less thru the year. Mike

[CyberGuy54]

July 12, 2007 my mother 81 was DX with ALS...

[bdyle]

I am 48, dx on Dec. 05 at 46.

[bosoxdon]

I'm 70 going on 71. The sysmptoms started about 6 months ago and I was diagnosed 3 1/2 weeks ago.

[patricia1]

I WAS 53 WHEN MY SLURRED SPEECH STARTED pAT

[bosoxdon]

I'm 70 and will be turning 71 later this month

[BWk]

Am now 59, dx. in March O6, symptoms started in Jan. 05, still pretty much mobile, slow progression. Barry

[ccox]

My mom is 68. Symptoms began July '06, officially dx in June '07.