View Full Version »› BiPAP Intolerance
maypema
06-11-2007, 12:30 AM
Hello,
I am working with a person with ALS who has bulbar onset. We are trying to assist in using the BiPAP. She becomes very claustrophobic and has lots of secretions. We are trying sitting up in a lounge chair with someone close by & soft soothing music. The longest she has been able to use the BiPAP is 15 minutes. I would appreciate hearing how you have worked with this.
I'm assuming you are using a full face mask. Have you thought of trying nose pillows and some use a chin strap with them to keep the mouth closed. They are less confined feeling I am told. I haven't tried them myself but may get some soon as I am starting to get some skin irritation in a couple of spots around my mask.
AL.
I do usually recommend what you are doing although I tell them to watch TV and just hold the mask on their face until they feel comfortable and then put the straps on.
AL.
maypema
06-11-2007, 12:49 AM
Hi Al,
Thanks for the replies. She has a full face mask that fits pretty well. I was led to understand the nose pillows don't work once the person cannot keep their mouth closed and she is losing the ability to do that. Good idea to just have her hold the mask in place, will it still function properly that way? What about her copious secretions since she can't swallow them? She takes several medications for the secretions but they do have to come out someway and if you can't swallow they are coming out under the mask. She's at 30% so really needs this.
Most people with nose pillows use a soft elastic chin strap that goes over the head and under the chin to hold the mouth closed. I haven't had the secretion problem so am unsure about that issue. Most people up here get prescribed Elavil to help dry them up. Does she still have enough hand strength to hold the mask firmly against her face? My hands are pretty well shot but I could hold mine up for 10 or 15 minutes if I had to.
AL.
edna may
06-12-2007, 07:51 PM
Most people with nose pillows use a soft elastic chin strap that goes over the head and under the chin to hold the mouth closed. I haven't had the secretion problem so am unsure about that issue. Most people up here get prescribed Elavil to help dry them up. Does she still have enough hand strength to hold the mask firmly against her face? My hands are pretty well shot but I could hold mine up for 10 or 15 minutes if I had to.
AL.
Hellion, The Bipap was difficult for me at first. I have the pillows. I got over that panicky feeling by reading in bed until I couldn't keep my eyes open any longer then I'd put the Bipap on. I also have heavy secretions & I sleep with a roll of paper towels on the bed side table, one sheet crumpled up on the pillow to catch my drool, (I sleep on my side) I wake up a few times through the night to tear of another sheet. not the best solution but it works for me. I now wear the Bipap iall night in comfort. EN8-)
