my dx

[zac111]

i went to the neru today he done a nvc and emg of the right leg all test were normal told me i had benign twithing and this was the second neru ive saw the teck at the other neru must have messed up on my ncv test last time all my reflexes are normal i guess im going to get on with life now youve all been very halpfull in my time od need and ill be sticking around also to try and help and comfort others trough my experiance with all of this its been 4 months so im thinking that the emg should have showed something by now since i had muscle twithing the whole time.

[Mike27]

Good stuff Zac!!:-D Nice to get a 'good news' story every now and then.

Glad you're stickin' around.

Cheers!

[ltr]

That's really great news Zac! Hopefully your symptoms will start to disappear and things will get better for you. I wrote you another post and asked if you have ever had a Smith test for lupus? Something is causing your symptoms, but I am really glad it is not als. Leslie

[liz]

Zac -

This is really good news. I'm glad your test results have given you some peace of mind. Bet you sleep good tonight! :)

Liz

[MtPockets]

Great to hear a positive report for a change Zac. :-D Thanks for keeping us up to date.
God Bless
Capt AL

[Al]

Good news is hard to find these days. Thanks for sharing Zac.
AL.

[zac111]

thanks guys,i dont think ive ever had that test done leslie i have to go for a follow up with the first neru i saw and i think ill ask him about it thanks for the info Leslie.

[stevef]

congrats hope you find what is wrong but glad it is not als. I am keeping my figures crossed that my exam which was normal will stay that way and not get worse. But i am so happy for you and pray for everyone here that one day a cure will be found

[Jamiet]

Congrats Zac!!!

I think, you should pursue other problems, if you still feel bad, don't stop just because it's not ALS!!!


Rgds,

Jamie

[CindyM]

Hey Zac- good to hear it. Glad you decided to stick around, too. We'll be following yooyr progress as you reach some sort of conclusion with your doctors! Cindy

[zac111]

thanks cindy i have another follow up on may the 4th but i still have problems with my speech sometimes and also bite my tounge every once in awile so well just have to see could be bulblar i hope not which brings me to the question i forgot to ask the doctor which he was kind of avoiding any questions about als anyway was that is there a test that can be done for bulblar als?

[ltr]

Hi Zac - the doc can do an EMG of your tongue. By the way, did he notice your speech problems? Leslie

[Omar]

Hey Zac,

I am really happy for the good news you've got
so go go go and enjoy
Hope that your next follow will even bring more good news

;) Omar

[zac111]

thanks omar, no he didnt notice any speech problems but other people have.

[Jamiet]

Zac,


it's called a larangeal (cynthroid) emg. Look at my post on medhelp.org, it's called ALS or Something Else, it's from about Oct. 2006 under 4t1074 user id.

Good Luck.

Thx,

Jamie

[zac111]

thanks i called the als cilinic and thatv was the first question they asked when i told her about the speech was if they done an amg of the tonge so i guess ill have that to do in two weeks

[Jamiet]

Are you having another EMG in two weeks, that's close apart. They probably will not do one then?

[zac111]

i dont know if they will do one are noe im pretty sure that they will do one of the tounge i talked to the nurse about my speech and swallowing problems and it was her guess that they would if they dont im going to ask for one of the toung its a long ways to alanta from here

[Paty]

I Am So Glad For You Zac, Congratulations.

Take Care

Paty
Husband's Caregiver Dx 10.17.05
Baja California, Mexico