ALSforums is an open support community for individuals affected MND and ALS.  We encourage you to join our support group to ask questions and to share your experiences with ALS and MND.  We offer tips about ALS, help, care, support and friendship - join today.




View Full Version : new one


keith
03-26-2007, 07:13 PM
hello to all, this is my first post though have been on the forum for a few months. I am one year unDX with symptoms 6months prior. My neuro said I had Inclusion Body Myocitis(ibm), but the muscle biopsy which is the definitive test for this came back unconclusive. he suggested that I might consider going to the Cleveland Clinic, as I am near Wheeling Wva. All the things I have read about IBM say nothing about muscle twitching as a symptom. these two disease (ibm and als) are very close in their appearance.

JenniLee
03-26-2007, 08:38 PM
Hi Keith!

That waiting and wanting answers is awful. I wish I could help you...all I can do is remind you to stay positive. Keep us apprised of how you are doing. You'll be fine.

Jen


    
   
   
   
  ALSforums - Get help and support with ALS/MND