View Full Version : Does anyone have a child with ALS?
suvopa01
03-19-2007, 08:14 AM
The doctor thinks my 15 year old son may have ALS. Does anyone have any information about a child with ALS? We have been through testing for the past 4 months and we will be seeing our 4th neurologist tomorrow. My husband and I are becoming very concerned.....please, if you have any information on a child with ALS we would love to hear from you.
John1
03-20-2007, 01:04 AM
Hi suvopa,
This must be an anguishing period for you. I have been reading these forums for 6+ years and the youngest PALS I've heard of was diagnosed at 18. Fifteen would be extraordinary. Good luck on further testing.
John
suvopa01
03-20-2007, 07:44 AM
Hi John,
Thanks for your wishes, I'm not sure I know what PALS stands for.
Pat
John1
03-20-2007, 02:28 PM
Sorry for the jargon. PALS stands for "Person with Amyotrophic Lateral Sclerosis".
The youngest person that had als in the USA was believe it or not only three years of age, terrible I know.
mikej2323
03-22-2007, 08:25 PM
I just posted a few days ago...my niece was 11 when symtpoms first arose. In 8 short months, she was almost totally paralyzed and needed a ventilator.
I will PM you.
Mike
patricia1
03-22-2007, 08:32 PM
Mike i went for the mycoplasma blood test IVIg and IGG they didnt do the culture Pat
