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View Full Version : I Can't Believe...


Mike27
02-28-2007, 01:49 PM
That the Oilers traded Ryan Smyth to the Islanders!!!:twisted:

Ok...nothing to do with ALS but still,
AAAARRRGGHH!!

Patsy Harris
02-28-2007, 02:03 PM
Feb. 28, 2007

My name is Patsy Harris. I had to retire from the engineering department at Texas Tech last May. I was told I had ALS the last day of May last year. I will be 67 this Dec.
my husband past on in Oct. of 2002. I am still getting use to this.

Al
02-28-2007, 02:06 PM
Hi Patsy. Welcome to the forum but sorry about your troubles. Hopefully we'll be able to help with information and support.
AL.

liz
02-28-2007, 02:15 PM
Hi Patsy -

Welcome to the forum. Sorry for your circumstances. Have you got family to help you out?

Nice to meet you.

Liz

Patsy Harris
03-06-2007, 12:23 PM
Yes, I sold my home and moved to Keller TX to live with my daughter and her family. They adopted three children and took me on at the same time. I can still walk and drive a little. My speech is almost gone. This hit me when I was 66 years old, so God has been good to me allowing me to work until I could retire. I have a wonderful son in law. My son moved with me so I have both children with me. I could not make it if God wasn’t with me. In May of last year the Dr. said I had about 3 to6 months to live. I will not leave this earth until God is ready for me. I get down now and then I had to have a feeding tube. The clinic in Dallas is getting me a speaking device. There is so much they can do for us now.

In Chridtian Love

Patsy

liz
03-06-2007, 12:39 PM
Hi Patsy -

It sounds as though you are very fortunate to be surrounded by loving family.

Liz

sufernan
03-12-2007, 09:32 AM
Hello Patzy,
Having faith and family around is very important. I hope you feel supported and loved during this difficult time!
Welcome to the forum!
Sunny

sufernan
03-12-2007, 09:34 AM
Sorry Mike! it looks like not too many people here are into hockey. I am in Toronto and the Leaves are doing so bad that I do not want to watch any more .....
Have a good day!
Sunny

Al
03-12-2007, 02:03 PM
Anybody near Toronto such as myself just lose interest in the Leafs and hockey around this time of year. Jays start soon. Spring has almost sprung. Look forward.
AL.

Mike27
03-12-2007, 02:33 PM
Sorry Mike! it looks like not too many people here are into hockey. I am in Toronto and the Leaves are doing so bad that I do not want to watch any more .....
Have a good day!
Sunny
Hi Sunny,
To tell you the truth...I wasn't sure how to handle the way the thread went! I wrote it in a light-hearted manner but it kind of took off in a serious mode...which is fine!:-D
People need to talk, so all the power to them!

Back to hockey, I feel the same way. They're 0 and 7 since trading Smyth...it's too painful to watch!

Cheers Sunny!

Mike27
03-12-2007, 02:38 PM
Hey Al!

You a big Jays fan?
I heard someone say once that you will be able to tell when the end of the world is coming when the Leafs and Jays win championships in the same year!:mrgreen:

Take care pal!

Al
03-12-2007, 03:18 PM
Yes sort of like the Bears winning the Super Bowl. LOL.

Al
03-12-2007, 03:23 PM
Hi sunny. I'm not a BiG Jays fan but do enjoy the game. Jays ALS Awareness Night is Tues. Aug. 7 at 7.07 pm. Jays vs. Yankees. $44 tickets for $30 I'll put a posting in events.
AL.

Countrycouple
03-15-2007, 05:30 AM
That the Oilers traded Ryan Smyth to the Islanders!!!:twisted:

Ok...nothing to do with ALS but still,
AAAARRRGGHH!!


Mike.. It's hurt the Oilers even more.. Think it was a horrible trade.. But Money talks.. Now if we could get that Money to talk for ALS for the care of patients.. and their needs..

sufernan
03-16-2007, 10:04 AM
Thank you Al for the information! I will try to take my son to the game. Hopefully the Jay do better than the leaves :-D
Do you communicate with the office of the ALS society in Toronto? Helen just left her position and I feel a little Frustrated. I have being trying to get a support group going for caregivers and widows, but so far I did not get too much help from them. Now that Helen is not there I am not even sure who is taking over!
Daniel was a big hockey fun, I do not even know how to skate! but in trying to get my son familiar with the game I got tire of the Leaves - I cannot watch them any more.
I grow up in Europe, so my real passion in sport is Soccer - now that is an art! :mrgreen:
Have a great day!

Al
03-16-2007, 12:12 PM
Hi Sunny. I know it is frustrating with so many people leaving the Office and the changes in staff. I have made some friends there and they will be gone but not forgotten. That said, there are some new and enthusiastic people there that are working very hard to change things for the better. They should make an announcement on Helen's replacement soon so once that person is in place you'll be able to get back to starting your group.
AL.

CBowman
03-16-2007, 06:26 PM
Mike,

Forget the Oilers they blew it last year, the Tampa Bay Lightning will be the stanley cup champs this year.

:razz: Chad

Mike27
03-16-2007, 07:30 PM
Them's fightin' words Chad!

http://www.crashingthenet.com/hfs-pic.jpg

Actually it's game over for the Oil...but next season we'll kick butt!!

Cheers!

NED
03-17-2007, 10:13 AM
Hi to all PALS,
I am the daughter of Erich Tauchert also know as Iron Erich T. I am just informing
you that after a 12 year battle with ALS Erich passed away on March 10, 2007. He loved
talking to some of you I know because he told me that you were his support link
to his life. I am glad you were there for him and continue to be there for each other.
Keep the fight going as he never gave up. He donated his body to the research of ALS
and we hope that he will be of help for a cure to this disease. God bless all of you.


Nancy Drews

Email NancyDMystery@aol.com

CindyM
03-17-2007, 11:18 AM
Good morning Nancy. Sorry to learn of your Dad. I know you will miss him! I am inspired by his plan to donate his body to research. I think I will do the same when my time comes. Thank you for keeping us informed and feel free to visit us form time to time as you grieve the loss of your Dad. Cindy

Jane
03-17-2007, 11:43 AM
Hello, I too would like to find out who we talk to in Toronto. We used the Hamilton office but that is closed now.
I work with the support group here in Niagara. I am finding it tough going with the group. We have only 3 meetings scheduled for this year (depending on attendance).
I would really like to have some names to contact for group info and also to get a new updated list of clients in my area really just a place to go for any info.
I really miss the Hamilton office as I could get info there.
But now ........
Please share any info you get and I will do the same.

take care
Jane

sufernan
03-20-2007, 09:31 AM
Hello Jane and thank you Al,
If I get any information about a support group I will send it your way. It is hard to believe that the Society has not put more time and effort in getting groups going. We know how valuable it is to feel supported and to talk to people that are going through the same bumpy road. Maybe we can change this!
Have a good day everyone :-D
Sunny

Al
03-20-2007, 03:48 PM
Hi Sunny. We started a support group in Brampton a couple of years ago and l"m the only one left. That is the problem with this disease, the majority of the people with it don't keep their function for a long time and either can't get out or just lose interest or die or move.The Society can only refer the clients that they know about. It is not required to register and not all patients do. The new office staff have to get familiar with all the programs and that may take a while. Its too bad that so many left but the problems have been resolved and I think things will move forward now.
AL.

Al
03-20-2007, 03:50 PM
Hi Nancy. I am sorry to hear of your dad's passing. I am sure he will be missed. Thanks for letting us know.
AL.

sufernan
03-26-2007, 10:44 AM
Hello Al,
I understand how difficult it is to run a support group for PALS. Daniel did not want to go to one, he felt it would be scary .... I am looking into starting a support group for caregivers and for widows. I believe that if the caregivers feel supported and not alone then they can take better care of their love ones. It would be so great to bring people together that are or had experienced the same thing to support eachother and offer advice! so far I have to being able to do it ..... soon I hope!
Take care,
Sunny


    
   
   
   
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