Whine and Cheese

[momap53]

Whine: tendinitis at the deltoid's insertion point
Cheese: doc gave me a "magical" shot of cortisone. We were amazed at the immediate relief and the full ROM that resulted.
Can I get that in ALL of my Poorly functioning extremities? Sigh, wouldn't that be sweet?
Cheese: I have the support of a lovely and knowledgeable local PT who advised me to continue with the ice therapy anyway and she'll be here this morning to continue teaching KK some moves to helP keeP things moving, even if KK has to do the moving for some parts.

[Toto's Dorothy]

What was in that magical shot? Boy, now I know what happens when the voice gets tired, I said shot but the voice typed something else! I'm glad I caught it. Find out next time you go, I may ask for it. Sorry for the kidney stone, too. Do they think that was because of the dr ug tri al you're on? If so, I think you have given them a LOT of data. Praying the day is kind to you.

[HelenL]

Good morning, thanks for the interest, but no, not holding it! :) Lucky it wasn't first thing in the morning is all I have to say!

Toto, are you waiting for the pwc still, or nursing home to get approved? My things go slow in the south, especially if you have that expensive insurance! I have the state insurance here (disability) and get things that I need approved quickly. Also helps that my clinic folks are totally pros at getting the paperwork filled out exactly right.

Do you know that one of the guys in my mda meeting last night got his ceiling track lift paid for by the insurance? Took him 4 rejections and 6 months, but he now has it. His motto is "never take no for an answer", and it helps that he used to be an occupational therapist, so knows what to put in for.

Going to go find my tea, will check in later!

[skipper66]

I'm not sure if I posted on the right link or not. I am really having alot of anxiety over my dad's situation. Two neurologists ran tests on him and gave the diagnosis of ALS. He is now in Dallas and was seen Tuesday by a ALS specialist who ran even more tests. One of them being a brain scan. He said he's not ready yet to say my dad has ALS because even though he has alot of the symptoms he doesn't meet all the criteria. He said he will have the results in two weeks. I'm just a bundle of nerves right now. I suffer unfortunately from depression even before my dad's diagnosis and am on antidepressants. My psychiatrist is monitoring me alot closer since my dad has become ill. I used to go two months without seeing him and now its every two-three weeks. I am trying to be strong but sometimes lately I feel like I'm having a panic attack. Which I never have experienced before. I naturally don't tell my dad this. He always went with me to my appointments to my psychiatrist before he became ill and was always supportive. I tell him I'm doing fine when he calls. Just not knowing for sure now what is truly going on with my father is so stressful. You don't know which Dr. to believe or what course to take in getting him help. Its so frustrating.

[Toto's Dorothy]

Helen, both. I just got off the phone with the expensive insurance company, who has no clue why my claim [which already had the 72 hour turn around ( and the 30 day scrutinization of said specialty items)] has not been approved. The D M E girl said her paperwork said, "pending other insurance" (wish I had) but the young man at B C / B S said his didn't say that. And the paperwork that I received yesterday didn't have the usual numbers next to them. They tell you things like, item not allowed, item exceeds the amount, et cetera. All I know is, that I get more disillusioned by the day. So, the girl from D M E will check and/or call me next Wednesday.

I also am waiting for the doc tor (I gave him 7 days) to find me a fa cil i ty to go to. I can't do this anymore. I'm not being fair to me. I have always taken the backseat, but no more. Well, the bus has the chair lockdowns in the back of the bus, but you get my drift. There is just one big snag to me leaving, NO LONG TERM IN SUR ANCE. And I don't qualify for Me di caid or Me di care.

So my life really does suck. What in the world did I do to get handed this life? And please believe me, I don't mean "Why me?" Not anywhere close. Just what did I do wrong to be given all of this tribulation?

I need to go to bed. D@rn ice cream.

[HelenL]

I say go rob a bank, go to jail, and enjoy your freedom there when they have to then supply you with what you need!

Seriously, do you have to get divorced to get some help here? Why doesn't your hubby's insurance cover this...

[Toto's Dorothy]

Helen,

I have contemplating tbat for some time now. I thought, write some bad checks (oops, got a big problem there, can't write anymore), and refuse to pay. Get sent to the local hoosegow, get 3 meals a day, air conditioning in the summer, heat in the winter, a roof that doesn't rain on your parade (or at least not the bed, not mine but hubby's upstairs), telly, and last but not least, wait for it, wait for it............FREE MEDICAL. And H, I don't see the kids living in the same house, I sure wouldn't miss them in jail.

Like I said, don't think I hadn't thought of it. I actually forgot one important item, a daily shower! How did that one slip by me? I guess you got me stirred up. That sure would be a LOT of cheese! That's what I call free government cheese. Okay, so if you don't hear from me for a week or 2, y'all will know I'm in the big house.

[Toto's Dorothy]

PS. Remember, he already asked me for that.

[Alyoop]

Can you get in touch with your local authorities, governor, heck president, and scream. Surely someone can get you out of there! and actually getting put in jails, probably a darn good idea. Just do something that gets you caught immediately.
Run rampaging in your pwc, that you haven't got yet, due to incompetent office staff, through a local store. That should get tv attention

" crazy woman, who thinks she is toto, rampages through local Walmart, in her quest to find OZ. Is immediately apprehended and sent to the local looney bin. Crazy woman, now refuses to leave even after discharge!"

[marypat]

Aly you joke about pts not leaving but it is possible. pts refuse to leave and the hospitals have to suck it up. If there is no place for them to go and pts refuse to approve the facility u can end up in the hospital for six months or more. I have seen it, and toto it might b a solution to finding a place, the socail wrkrs r suppose to find placcement.
Helen,if u were still holding it i know u r actually a nurse or a teacher! glad u didnt get hurt. Robin we r glad u r here and sry ur blue. Becky yea baby! If the paretns dont mind most hospitals support skype in the birthing rooms, u can b there when u r not! Susan glad ty is feeling better. Di, toes any better? i dont remeber what else..oh yea Jen, must b getting excited, have a great trip.

[marypat]

cant belive that didnt go to mod land! LOL

[notgivnup]

Good Job marypat, my feet got x-rayed again, havent heard but let me tell you you dont wanna be me right now, the pain is so intense, doesnt matter if they are broke or not I just need the pain to go away, as if things werent bad enough already. And now getting alll my daughters pics of their trip to Italy, wishing I were there with them healthy and whole having fun too...Whaaaaaaaa!...Ok done now!

[Toto's Dorothy]

Go for it Di. You can whine all day! Illness, pain, missing a trip to Italy. If you don't, I will.

[kiwisally]

"wishing I were there with them healthy and whole having fun"

I wish you were too Di, so very much.

[notgivnup]

Another Whine....I'm a whiner today...(not to be confused with a weiner, or wine-o)...I want go somewhere, anywhere!, we get spoiled don't we?..Seen one palm tree you seen them all...lol...Wish we could all get together for a forum reunion but we would all have to get grants and sponsors or fundraise, but it would be so wonderful.

Cheeze.....Could be done!....look at what my daughter did and got to Italy with 5 girls, I never thought it would happen either. Miracles can happen!

[HelenL]

"Oh I wish I were an Oscar Meyer Wiener, that is what I truly like to beeeee.... 'cause if I were an Oscar Meyer Wiener, everyone would be in love with me..." Oh they just don't write them like they used to! :)

Di, with your purple feet, no painkillers? Do you know anyone that does Reikki? That would help too you know! Wish I were better at it, you're supposed to be able to "send" it, but I seriously doubt I could do it well enough for that.

My Whine: The house up the street sold in 2 days, the house down the street sold in 2 days... what's wrong with mine? Oh, I know! We LIVE here! And it needs a bit of paint here and there, otherwise not much that HAS to be done... but everyone wants to update the kitchen to gourmet standards, and thinks it should come off the top of the price... neither of those houses had updated kitchen and baths either BTW. Whatever, for some reason I guess this isn't meant for me to move until they carry me out in a box...

[notgivnup]

WHine........all painkillers (Igot plenty) all make me so sick even with anti-nausea pills........................

[panguinjen]

Hi All~~~~~
Whine: I'm tired....thinking dream trip is going to be a lot of work.

Cheese: Got the new toilet with a bidet today, no hot water, but a bidet....new shoes for cobblestones, my paycheck was early, went to two banks, can spend $$$ in Europe, got baby stuff to refill Marvelous Maddie's cupboard, laundry is almost done and a Section A family reunion tonight at the game.

Toto, come live with us! I'll send airfare, we bathe everyday here!

Jen

[HelenL]

Di, time for your famous brownies to get rid of that nausea... wish I could help you hon...

[notgivnup]

Cheeze................I will eat the whole batch all by myself, that should do it...:mrgreen:

[kiwisally]

lol Di, if it doesn't I reckon you won't much care, enjoy yourself!

[notgivnup]

LOL...........I WILL kiwi!..will let ya know if it's a new cure for pain...LOL..........:-)

[cervus]

Cheese: a family came to look at our home and land which are up for sale. First viewing in two months. Loved everything about it.
Whine: haven't heard back from them yet.
Cheese: I just noticed I'm a senior member here.
Whine: hope this doesn't mean they think I'm getting old. I'm only 51. Is that old Sally?

[kiwisally]

Cheese: Di has finally found a pain killer she can tolerate!
Cheese: Cervus is a senior member. Senior defined as older than dirt! :lol:
Whine: Don't dare ask how dirty I am. :roll:

[cervus]

Are you cleaner or dirtier than I am??

[kiwisally]

lol, what part of don't ask didn't you understand? Only about 10% dirtier.

[kiwisally]

Congratulations by the way!

[cervus]

That IS dirty. So sorry for you!
This dirty person is going to bed now. Have a good day/evening everyone.

[alador]

Whine: None today.

Cheese: Good clinic visit today. Husband had gained 7 pounds which is great since he is completely on PEG feed now.
Such great caring people at clinic who work hard to meet our needs. Also husband is now able to use walker after
recent knee surgery.

[HelenL]

Like Like Like

[Anja]

Hey friends, i did post in rants % raves but gone is the post or not? I copied the text so if it looks gone 4 real i still have it :) I have good news: i don't have ALS! And the bad is i DO have a neuromusculair disease but they don't know what it is... i will post this now be4 text is gone again? Hope not... sorry 4 being gone, but friend of me is dying, he is in a nursing home and very sick!

Big hugs!
XOXOXO

[cervus]

That's great news, Anja. Sorry about your friend. Yasmin

[Anja]

Text still there *sigh* now that is worth cheese :D

[Anja]

That's great news, Anja. Sorry about your friend. Yasmin

I am very happy too Yasmin, tnx! But also confused: no clue if i will recover, they don't know, i go in a rehab program, and take it from there.

I want to stay here if you still want me here :D

[Toto's Dorothy]

Well, the A's have it today!

Alador, that is wonderful news on hubby. Weight gain and walker walking. Congratulations on a job well done. (Especially since surgery was what, about 2 weeks ago?)

And Anja, with fantastic news! I'm glad A L S is out of the lime light. Now, prayers to give your doc tor(s) the knowledge to figure out what is wreaking havoc on your body. Special prayers for you and your friend. Its sweet of you to be with your friend. I pray you give him/her comfort and peace.

A LOT of cheese today! I'm so happy that even if we don't have any of our own, that you allow us to share in yours!

So, NO Whine for me today. I'm too busy relishing in the cheese of my friends.

[Anja]

Toto Rebecca (love both your names) tnxxxxx only 15 out of 100.000 get my vaque dianoses :S so yes let's pray My friend is a male with an aggressive brain tumor :( he is on place 1 now and after coming home i go to bed, he's on morphine and i hope 4 him he will be in heaven soon as he suffers big time now, hate it

[kiwisally]

Anja,
Sorry about your friend.
So very happy that ALS is not YOU! I hope they find out what it is soon and there is some help for you but so glad it's not ALS. Hugs to you. Sleep well.

[Anja]

Anja,
Sorry about your friend.
So very happy that ALS is not YOU! I hope they find out what it is soon and there is some help for you but so glad it's not ALS. Hugs to you. Sleep well.

Hugggsssss back and so much tnxxxxx wish i could wipe away the diagnose 4 all of you! Hope i say this right hehehe,,, if not ASK... :D

[joni51]

That is great news Anja! So sorry about your friend too..that is terrible..

[BeckyW]

Anja so happy to hear no ALS for you but sad your friend is suffering.

[sadiemae]

My husbands days of transferring without a Hoyer lift are over. I needed help transfering to bed last night, and my son hurt Les' back and knee while helping me. Problem with using the lift is it hurts his back even more, and he will not even let us try. He is on pain meds, but they do not help much. My concern is he needs to have a BM, and they hurt him before this latest development, so he is scared to even try to get up. He can not even move an inch without crying in pain. His VA benefits were cut, but we still get meds from them, so he does not have a doctor that can order Hospice. I may have to call an ambulance this weekend if things do not change for the better. With his severe pain, the hospital will proobably not let him come back home. He is in such despair now, and wants to stop his nightmare. He is sleeping peacefully now, do please pray he feels better tonight.

[BeckyW]

Oh I'm so sorry to hear this...prayers on the way!

[Anja]

Tnxxxxx Joni and Beck!

My husbands days of transferring without a Hoyer lift are over. I needed help transfering to bed last night, and my son hurt Les' back and knee while helping me. Problem with using the lift is it hurts his back even more, and he will not even let us try. He is on pain meds, but they do not help much. My concern is he needs to have a BM, and they hurt him before this latest development, so he is scared to even try to get up. He can not even move an inch without crying in pain. His VA benefits were cut, but we still get meds from them, so he does not have a doctor that can order Hospice. I may have to call an ambulance this weekend if things do not change for the better. With his severe pain, the hospital will proobably not let him come back home. He is in such despair now, and wants to stop his nightmare. He is sleeping peacefully now, do please pray he feels better tonight.

hugssss to you and hubby you're in my thouhgts and prayers!!!!!!!!

[HelenL]

First, the good news, Anja, I'm so glad for you that ALS was taken off the table for you... will look for the longer post later on.

Lori, so sorry to hear that hubby's in such pain... WHY were his VA benefits cut? That doesn't sound right. Praying for the pain to ease... and to find a better way for him.

[marypat]

Anja thats great news and so sry for ur friend. prayers and hugs to u.
Lori, i am also sry ur husband has so much pain. I wish i had something to help. prayers for his peace and comfort.

[kiwisally]

Lori, very sorry to hear of your husbands pain. Will keep you both in my thought and hope for a turn round and relief at this most difficult time.

[Anja]

Helen mary huggggssssss

[cervus]

Lori. I'm so sorry for what your husband, you and your family are going through. I just hope he can find some relief from his pain soon. And hopefully you can get a little rest while he's sleeping? Thinking of you. Yasmin.

[cairn175]

Lori, I am so sorry your husand is in so much pain. I hope you can get some help for him...hospice has been wonderful for me.
My thoughts & prayers are with you Lori.
Leslie

[Toto's Dorothy]

Oh Lori, I'm so sorry for the 4 of you. Praying for comfort for Les and peace for all.

[panguinjen]

Lori, I'm so sorry for you all! Prayers heading your way!!

Jen

[Toto's Dorothy]

Ladies, we finally have a birthday we can celebrate. (I have been watching daily and checking the status's of the cake of the days owners.) Please make sure to wish them a Happy Birthday either at the Birthday thread (I had to start a new one.) or at his message board. Or both. And the drum roll, please:

Brother Rock

Thanks Ladies.

[cervus]

Of course you should stay! And be sure to keep everybody updated on your health status! Thinking of you.

[brooksea]

Lori, I'm so sorry about Les. Curse this disease!