Introductions requested

[me]

I've been reading these boards since the spring. I started out by reading back awhile to get a feel for who everyone is etc. But, by the time I got to the present I was lost. Between everyone's sign on name vs. real name (i.e. Timshelper is Kim) and similar sign on names like TBear and Bear2, I couldn't remeber who everyone was. Hopefully I don't sound crazy by getting confused over this!

Anyway, I was originally staying a bit anonymous for a variety of reasons but I'd like to get to know everyone better. If any of you regulars (or visitors for that matter) feel the same then please post below.

Since it was my idea, I'll start!

My name is Melissa and I live in southeastern Michigan. I am a Psychosocial Rehabilitation Specialist. Basically, I work in a program with adults with mental illness teaching rehabilitation of job skills, social skills and more. It's really great work but emotionally draining at times.

I am 28 years old. My husband has been having some odd symptoms for about a year now. We went through numerous tests this past spring only to find that everything is normal. We have not had all the possible testing but the neurologists we've seen so far seem to attribute the symptoms to stress or emotional difficulties. He had a neuropsychological test which showed there were some issues that could be dealt with (ie. loss of job) and he has been seeing the psychologist for about 6 months now. He is also 28 years old.

Many things have improved with him but other things have not. In fact, this weekend when we were relaxing in London Ontario, he ended up having me drive home because he was feeling so bad. Cramping of his feet and arms for example. He also had to ask me to help him undo a button recently.

We are trying to live as normal and have more testing when the time is right. He really gets sick of visiting doctors, especially when they can't find anything. I guess only time will tell anyway.

In the meantime, I've met some of "the gang" as Al says and you all are such great and wonderful people. I feel a special place in my heart for Carol (we've been emailing throughout the summer) but you all seem great and I'd like to stay connected, especially since I still have some inner worries about what is going on with my husband.

Well, that's enough to absorb for now I guess. I hope some others will share (or reshare for some) their stories. Thanks, Melissa (aka me)

[TBear]

Hi Melissa:
I'm in!
My name is Ted (go figure) and I live in the tiny town of Uxbridge, about 3/4 hour northeast of Toronto. I'm a geoscientist with the MNR and work in the field of Remote Sensing and Mapping. I get to fly around in airplanes and helicopters looking for and counting all sorts of natural resource stuff like trees, rocks, moose, deer, polar bears and hamsters. I was a helicopter pilot for a few years before I went back to school and just for fun I went to U of M for engineering courses so I know all the great places to drink in Ann Arbor.
In 1997, my wife of 20 years developed ALS and passed away in 2001. I was her primary caregiver and managed to keep her home (and at our cottage on Lake of Bays... her favorite place) throughout the whole thing (except for a couple of days in the hospital for a g-tube installation.) She was treated at the Sunnybrooke ALS clinic so we are familiar with the people there and at Mike Strong's clinic in London. We have 3 daughters 24, 21 and 19. They are all at university. One at Queens and two at McGill. I am 53 and figure that I can help with any problems that I might have experience with... other than that it's all pure comic relief...
I'll add more later...
CHeers

T.

[Timshelper]

Hi my name is Kim and I am Tims helper and he will be living with me in a short time since he has no family here. He has had it going on now into his 4th year. I live in Moose Jaw, SK and I am a pharmaceutical technician. I joined the forum when I heard Tim had ALS and met Carol who has become a freind and coach. Tim just turned 40 and is the apple of my eye because he can always make me smile even though he has ALS. I've actually left my husband just so I can be with my best freind, thats how important he is to me. Thanks Melissa this was a good idea. There is so much knowledge on this forum and now when you see where people work and what they have had to go through its just makes everyone so much stonger personally and intellectual.
Kim
ALS about loving someone :D

[Theresa2004]

Hi, I will join in also. Melissa, great idea, I had the same problem sorting out who was who. Al gave me a boost, as did some of the members when I asked.
I am, for personal reasons for the on-line public, sticking with the name I am using here. Privately, some have my real name.
I am a single mother of four, the final child soon to be a teenager, they range from 19- almost 13. I live in Brampton Ontario. Been on my own for more than a year and have a very busy life balancing work and childrens schedule. If I was paid for all the driving around I do, I would be a millionaire. I work for a financial institution.
I am here because I have a close friend who was diagnosed about a year ago with ALS. Was somewhat familiar with the disease, I had heard about it, as I knew someone years ago who was stricken with it.
I joined the forum for answers, information, pose questions. My biggest difficulty in the process is I do not have the data I need from him. I have yet to determine exactly why that is, and have remained in passive mode, asking soft questions when I can. I have been waiting for him to totally open up, there have been some oddicies which I have asked privately to some members of the forum, and between what briefly I have seen, and what others inflicted with this have mentioned, I am questioning this diagnosis. He was very ill about a year and a half ago, tired was all I was told. The original diagnosis was MS, but after months of rest and doctors, he seemed to perk up. He worked, I expect had some bad days, we were estranged for some time earlier this year, but from what I have witnessed, is not showing the symptoms which coordinate with this. I may be wrong, probably am, but according to him, his symptoms did not follow MS, and thus, from further testing, what those were is beyond me, was greeted with ALS. All I can say at this point in time, is I have had enough of the secrecy, enough of my questions not being answered and have in my own way now demanded full disclosure.
Many of you on the forum, of course, have been devestated by the diagnosis. The thoughts of loosing their spouse totally overwhelming. But I witnessed first hand at a support group meeting, that their love, determination, and help are stronger then any medication which can be prescribed. For me, well, due to our circumstances, were planning on a life together a few years down the road. I wonder now, if we will get that far. But my children, and his, have to come first, I question if we will ever really get off the ground. I am willing to take on the challenges, (Kim, I have some questions for you when I have the time, maybe a private email), but will that opportunity ever come for us? Only time will tell.
T bear...comic relief works...love to laugh...
That is it for me for now...

[me]

Thanks guys for the replys. It is helping my brain sort out the names! Ted, the comic relief is so helpful. As I've read the last few months it is great to see people keeping the humor amidst the other emotions. It's good to know there can be both!

Kim - that is so great you are offering the support you are.

Theresa - It sounds like a struggle. I hope the gang here can at least offer encouragement and I'm sure there are some with answers to questions.

Where are the rest of you? :P

[Al]

Guess it's my turn. Al - 55 yr. old retired Fire Captain. Had a quad by-pass in 99 and never went back on the trucks. Messed around at odd jobs in the fire dept. until June of 03 and retired. Diagnosed with ALS in Oct. 03. Happy retirement present Al. Married 34 years to Lee. Daughter 30 is an R.N works part time at that and is a Advanced Care Paramedic full time. She married a Police Officer last Dec. and we built a basement apt. in their new house with the intention of parking our furniture and cats and travelling. Have managed a bit of that but not enough. Son 33 is living in the Philippines and he and another guy from Brampton own a web site design business over there. His girlfriend is expecting in late Mar. and I hope I am well enough to get over for the wedding and birth. We were in the phillipines in Dec.02/Jan03 when I first noticed the fasciculations that led to the diagnosis. Had to give up my pilot's licence and scuba diving but still can ride a motorcycle and tried skydiving in Sept. am still walking around ok although my hands and breathing are giving me trouble. Go to the Sunnybrooke clinic and see Dr Gawell. Guess that's about all for me. Take care everyone.

[Elaine]

My name is Elaine.I've been married for 35 years to a wonderful man, Maurice.We have two children Nicole and Michael.Our daughter Nicole Is legally blind.When she was born the cord was around her neck cutting off oxygen to the brain.She is a very independent woman,married to a wonderful man Bill.Our son Michael was born with a very rare kidney disease.Ten years ago I donated one of my kidneys to him,five years latter he got an infection and lost the kidney.He's on dialysis now waiting for a new kidney.He also is a very positive person he goes to work everyday and always with a smile on his face.
This summer I was diagnosed with als.I was devestated.All the emotions,
First, all I did, was say to myself I'm going to die,I'm going to die.
I kept asking, why me?there has to be a mistake and then I was mad.What did I ever do to deserve this.Then gradually I've come to accept it.I'm a little stronger now thanks to the support group.I'm still working.I really don't know how long I will be able to work.My speech is the problem.I'll have to learn sign language sometimes we have to do that at work anyways.Ha Ha
Theresa,I was like your friend I didn't want anyone to know.Just be there for him,I guess being a man it's harder to talk about things .It's very hard to accept.
Thanks Jane for your kind message. Love to you all

[Jane]

Hello everyone, guess I will get on the info bandwagon. Will stick with Jane (like it better than real name!). Worked several years in long term care , loved it, retired at hubby's request. 4 years ago. Have 2 sons, one married with a lovely wife and 2 wonderful grandchildren.
I saw the Sue Rodriquez story and was somewhat familiar with ALS. Sis was diagnosed in Sept. /03. Limb onset now into bulbar as well. As you all know it is a horrible devastating disease. It takes such a toll on the entire family, we are fortunate to have a close family and all pitch in to help in any possible way.
The idea of getting to know each other is great . Perhaps we can arrange to chat on the new site, set up a time and really talk!.
All of the people here have been wonderful they are so informative and kind and supportive. Each of you have a part in this board let's keep it going strong. and continue to help each out.
Carol prayers are with you, Henry and your family Jane

[bear2]

Hi everyone.

What a great idea Melissa! I guess I'll take a shot at this too!

My dad was just diagnosed with ALS this July. He has bulbar ALS and has more and more difficulty eating and talking. In the last couple of months he has lost most of the strength in one arm and the deterioration has started in his other arm. We didn't expect this to progress so quickly as the doctors told him it seemed to be slow moving.

I have a couple of older brothers and I'm the youngest and only daughter. I'm married and have an eight year old son and we live in Cape Breton. My Mom and Dad live about 20 miles from us so we get over often. The thing is they are "Snowbirds" and just headed "south" this week. They usually go for 6 months but they don't expect to be able to stay too long this time around. I am fearful of the change that I will see when I next see them.
I just want to say once again what a wonderful source of information and support this forum is. It was the best place I found while searching the net for information from people who actually know first hand about ALS.
Keep it up everyone, you help in ways you can't imagine, Thank you all!

bear2

[Timshelper]

Hi Theresa,
Anytime you woulk like to talk I check my emails everyday. My address is spiritually1@msn.com. It seems like you and myself are in the same predicament in away. I was just over visiting Tim and he is not doing very well so I suspect he will be living with me soon but he is so stubborn and does not want to leave his house. Although I don't blame him I wouldn't want to leave my house either.I think I'm going to take a home care course just so I have extra knowlege when it comes to the way of lifting if I need too and whatever else they can teach me. Medications wil not be a problem for me although he hates taking them.
Kim Tims helper
ALS about loving someone

[Carol Deboer]

HELLO EVERYONE !!!!!

My heart sings with joy and happiness to see that the forum is alive and kicking. This makes me feel soooooo good. I am almost in tears to see that "OUR GANG" has kept this chain alive.

Well, okay since everyone else is telling their story, I may as well indulge you all as well. My real name is Giselle, and I do runway and Sports Illustrated modelling. Yes, Yes, thats me on the new issue. Don't I look great??? It is hard to be so bedso beautiful and so smart too!!!!!!!!!!!!!!!!!You all know me as carol Deboer, and that is my real name. Actually, my real name is Mrs. Henry Deboer, and I just turned the "big Fat 50" my friends and family say I act like 20. But,hey, I just go with the flow. I am a resturant Manager for the HBC CorpDoration. I am actually a gold seal trained Italtian cook. Hows that folks? Drop by anytime for pasta. Bring the wine and I'll cook. we have 3 children, Jeff, 24, Mike 21, Aly, 16. Henry just celebrated a birthday on Nov, 1.

As you may have all noticed I have not been around much. Things here are progressing . I haven't had the time to post or rest or do much. We have had some complications with the tube and other things. It is just time now that I must spend with Henry. I do love you all, and I do miss you all like crazy. Kim, my computer is still down. will let you know the minute I am up and running again. I thought that I should drop you all a quick line to check in, and fill you all in on our status. Jane, I still think that we should do that online chat thing every week. One hour, I could manage that. Let me know. Love and hugs to melissa, you could probably have reached out and touched me when you drove through Sarnia. Ted, as always, keep us smilin......Al and Lee, keep up the fight. And to all that post on a regular basis, you have made my dream come true. How simple is that......... Must run, God Bless, and please keep us in your prayers and in your hearts, we need your support now more than ever. xoxoxoxox

Love, Mrs. Henry Deboer aka Carol

[me]

Carol - It was soooo good to hear from you. I'm sure we all understand your need to be with your family right now. We're still thinking about you though, and hope you will return to us when able. I have learned so much from you just in this short time.

Is there anyone else out there reading this forum but not posting? There are so many people viewing, I'm wondering if it's the same 10 people reading and re-reading or if we have hundreds that never post. It would be great for this group to grow. Join us if you're just a reader. -me-

[fisher]

Hi i'm Fisher a 52 year old male from Grand Bend Ont. recently married to a gal named Linda and i like to drink wine on the deck on hot Sunny days. it just doesn't taste the same now that the weather has changed.

I was finally diagnosed in Aug. 2003 after many mris and emgs. originally dxg was ms but after a long argument with Dr.Rice, finally got to see Dr.Strong and he confirmed our worst fear. started out with a limp in the spring of 2001 and now i am in a wheel chair can't move my arms and now can barely speak.

[sisterofl]

Hi everyone,

I have been reading on this site for about a month now but posted only once.

My brother has ALS he just turned 47 on Nov. 6. He was diagnosed in Jan 2003 after several months of tests. He has bulbar ALS so already he cannot speak, lift his arms, hold a pen or other things... Thanks to technology he can use a special mouse, it's like a T joy stick for his computer, however he needs us to put his hand on the joy stick. He can barely walk. He insists on using the walker but it is painful to see him struggle, on step...rest...another step...We have to put his hands on the handles of the walker, help him stand up (he can't on his own). He has a wheelchair but does not like using it, although lately he has been sitting in it to watch TV.
He does not have a feeding tube (he is not interested in one...although we think even if he wanted one now, it would be too late and couldn't not be "installed"). He is not taking any medication because he really does not see the point since it's not going to change the end result.

It started with him slurring his speech, he actually thought that he perhaps had a small stroke...He speeks (spoke) 6 languages and noticed that there were certain words he couldn't pronounce in german when he was in Germany the summer prior to being diagnosed...it then progressed to his right hand ,couldn't grip pens, or the chalk (he was a high school teacher, is now retired...) than his right shoulder (couldn't lift his arm to high...then it went to his left shoulder and arm, the legs are the last things to go but he is getting weaker and weaker. What he could do 2 weeks ago he can't do now...He has a lot of problem swallowing and all his food has to be liquified in the blender...

Sorry to go on and on, it's the first time I really sum everything up...

Anyways he is in Ottawa (where I grew up) and I now live in Calgary. I have been to see him practically every 2 weeks. I just got back Wednesday from spending a week with him and will return in a couple of weeks. He is single and would like to stay at home. A good friend of his and I are taking turn staying with him at night as it is no longer safe for him to be alone. ...

I'm encouraged by the support, the courage and hope I see on this forum and hope that I can be of help as well...

By the way, Carol, my real name is Gisele (but I am not 'the' Giselle, the model
:)

Take care everyonem,

Gisele

[Al]

Fisher; I have been wondering for months just who the heck you were. Now I know. A fellow wine drinker (red I hope) Merlot is preferable. It is nice to put a bit of a picture of who you are in my mind. As you might have noticed Tbear and I have sort have monopolized this site recently. Just friendly kind of guys I guess. Now that you are in off the deck we might hear a bit more from you. I have found this to be a friendly place. Kind of like the deck. Warm, bright and a few good friends. What more can we ask for. A hundred thousand in the bank would be good but I'll settle for what I've got. To Giselle you might not be a world class model but you sound like a world class sister. You are obviously a beautiful person inside. I hope your brother has registered with the ALS group in Ottawa. I met some of them recently and they are a great bunch of people. They can offer some support and could help with care issues. Hope everyone is ok and take care. Al.

[TBear]

... just friendly guys!! I think we're the only guys on this site... and Merlot is just the jumping off point! Outside of the three of us (I think) and since we lost John. We are definitely testosterone challenged here... (or estrogen overloaded!). Not that I mind... with three daughters (even the dog is female... or at least she was before the surgery) I'm kind of used to it.

Gisele, anyone from Calgary who can find a way to be with an ALS victim in Ottawa on a regular basis deserves my admiration... even if he is related!

In the mean time I'm leafing through back issues of SI swim suit editions... looking for Giselle (AKA Carol) and dreaming of red, stringed bikinis... did anybody see summer leave?

I suspect that Fisher is back out on the deck in the sun... with his blushin' bride! Hope everybody's enjoyed the weekend.

T.

[sahajmarg]

Hi All,

My brother was just diagnosed with ALS. I'm still processing and grieving. Going to my first ALS meeting tomorrow where I will be looking for ways I can support him on his journey.

I live in B.C. and have a son just starting college. I'm 58.

It's very nice to meet you all.

[sisterofl]

thanks T-Bear. I wouldn't have it anyother way. He is my big brother (the only brother I have).

by the way, Merlot is my favorite kind of wine... :)

Marianne,
Welcome to this site. You'll find a lot of support here. I have just started posting, although I had been reading the "posts" for a while now. This group is amazing...

Gisèle

[bear2]

Someone sent this to me yesterday and it really touched me. I wasn't sure where to post it but it seems as though everyone is coming to this thread eventually - so here goes:

Prayer is one of the best free gifts we receive.

I asked God for water, He gave me an ocean.

I asked God for a flower, He gave me a garden.

I asked God for a friend, He gave me all of YOU...

If God brings you to it, He will bring you through it.

Happy moments, praise God. Difficult moments, seek God.

Quiet moments, worship God. Painful moments, trust God.

Every moment, thank God.


Thank you all for being here - knowing one is not alone is a blessing in itself!

Hope everyone has a good day,
bear2

[TBear]

Nice Sentiments and prayer... thanks.

Strangely enough I've often used the term... "God, I coul use a beer right now" and have never received a KEG!... and I go to church every week!

Merlot is a good start Gisele, The LCBO has a pretty good selection of some really great reds from all over the world. Some at half decent prices!

Sahajmarg..., if you want to get a jump on the ALS meeting try reading some of the publications available from the ALS Society of Canada (at the top of this page)

I hope everybody is having a good day... its rather miserable up here in Muskoka today.

T.

[me]

T - that's too bad about your unaswered prayers!!! :) Just remember, it's all in his timing....so you never know!

Marianne - welcome. It's great to have a newcomer. You are welcome here.

Bear2 - excellent prayer. I will print that and keep it with me.

I am feeling a bit better just reading the posts. It's just good to not feel so alone. You see, since there is no diagnosis, and hubby doesn't like to talk about it, no one except one close friend and his mother, even know what's going on. I like to talk about my experiences and feelings. Some days I think I'm going to explode. Not that I want to talk about it all the time, but if I could talk some, then maybe I'd get it off my chest and be able to move on! Well, that's what this forum is for so I'm sorry if I seem obsessed. This is really the only place I can get my thoughts out, read how others are doing, and get some answers to my questions. Look, now I'm tearing up because you all are so great! 8) (that's me hiding behind the shades). -me-

[June]

Hi everyone - My name is June is this is my first chat - I've been reading alot for months. My mother was diagnosed with ALS officially 3 weeks ago. She had been experiencing problems, foot drop, numbness in arm, dropping things, slurred speech, difficulty swallowing starting over 3 years ago but her doctor would ignore our pleas for extensive testing until earlier this year. We met with a neurologist here in Windsor in July and in August, my mother fell and broke her femur in 5 places and in half ! Talk about scary. The trauma from the fall amplified her symptoms where she was not even understanable and the drugs for pain made her very helpless. We had a few episodes where she almost choked because she wasn't propped up enough. Even without a clear diagnosis, we were educating the nursing staff.

After 7 weeks in the hospital and rehab and her overcoming a slight bout with depression, my mother determined to walk again, left the hospital due to the huge improvement with her physio. A week later, in October we had the privilege of meeting Dr. Strong in London who was so compassionate and caring. He brought her back to the hospital 2 weeks later and kept her there for 1 week for an MRI, Angiogram, CTs, bloodwork, etc. and finally came to the awful diagnosis of ALS. The only good thing is at least we know what she has now.

The 3 months of waiting were filled with anger, confusion, great sadness. I have a 5 year old that has had diabetes since he was 1 and it seemed like everything is an uphill battle - and now we have this to deal with.

She began her Rilutek meds today and was just sized for her power-tilt electric wheelchair today and there is so much we'll have to learn. She has good days and bad days. There are times when she is very strong and you can understand every word and other times when it's the complete opposite.

For her, we are trying not to let it get us down. I still have my private crying sessions when it gets to be too much. But the main thing now is to get everything she will need in the best way we can now. At first she didn't want to tell other family members but has since changed her mind. I think she felt like she did something wrong to cause this - her motto is "I'm not dead yet!" She wants as much laughter and happiness around as possible. I try to see her everyday with the kids.

I found it very therapeutic to write a long letter to her explaining my feelings for her and my father. How much I need them and how lucky I am to have wonderful parents like them and that it was my turn to give back a fraction of the support she gave me. I just didn't want her to go without knowing that - even though as a parent myself, we all know how much our children love us! I can also say that it has brought us all that much closer together.

Thanks for listening and thanks for all the great thoughts.

[Al]

Hey TBear. You mentioned the other day that you and I and fisher were for the most part the only guys around here. I have always wanted to be surrounded by beautiful women. I have one but more is better as I am sure you will agree. Guys being guys and not wanting to show our feelings (not that we have real ones) anyway I think we have to convince some of the guys to join us. There must be some out there. Come on guys. Help us out TBear and I can not handle all these women by ourselves LOL. We need more guys to get down here with us and talk. Don't be shy. I was shy for the first few months but look at me now. Mr. Social Butterfly and I don't want anyone to take that description the wrong way.!!! What I'm saying is we are getting a great group together and I notice a lot of guests reading. Don't just read. WRITE.

[me]

June - wow! I'd just like to know what is wrong the the doctors and the resistance to check something out. I guess that is how it has always been, we are the dumb lay people and they....they are the MASTERS! I'm glad to hear there is a good doctor there in London.

Al - You're right, where are the men? They don't have to share all their touchy feely feelings if they don't want. This board is starting to sounds like it needs the grounded men!

This group really is growing good. -me-

[Carol Deboer]

Hi guys and gals, Cannot show any favourtism here....

SO MANY WOMEN, SO LITTLE TIME...... quit your whining lol.... And yes, we are all beautiful, smart, talented and creative. How wonderful is that!!!!

June, welcome to our home. I hope that you will find what you need here in terms of comfort, answers,(to the best of our ability) and friendship. It is hard to carry on a normal life after dx'd with als, however, you will manage . You will find out. Prayers are with you and your family.


TBear, Al, Fisher, You better watch out, you have it all right now, better be good boys.!!!!!!! Love yas... Gotta go to work now. Have a good day all.

LOve, Carol

[DebbieD]

i just copied this from my original post. i wanted it be in this list too :D

i was posting last year before my mom passed away in january this year. she had als as well as her brother and her cousin.

i was diagnosed last month with very early onset of als. i had an mri test and i have no nerve damage. however my doctor at sunnybrook feels that i do have als and has prescribed me riluzole.

i started noticing slurring problems after i'd had a couple of alcohol drinks in the summer. then i noticed i was having trouble with speech even without a drink. i was lucky that i didn't have to go through months of testing and ruling things out. my mother's doctor saw me 4 days after i e-mailed him and set me up with the mri right away.


i'm going to be involved in a stemcell research program at sunnybrook. my doctor has got full funding and needs 5 volunteers and someone to head the study. i'm volunteer number 4. this is not embryonic stem cells. the stemcells come from our own bodies.

i'm a very "up" kind of person and i'm not at all depressed about this diagnosis. i have to keep reasuring my father and my family that i'm okay.

i'm 47 married for the second time to the most wonderful man, dave. we have 5 kids altogether all grown, but 2 still living at home. we also have 3 granddaughters a dog and his cat.

i've always thought that this site was wonderful and all the people who post too!

[Al]

Hi Debbie. Sounds like you may be in about the same boat as Elaine who posts on here as well. I met with Dr. Cashman myself about the stemcell project and am still interested but there a few things going on outside my ALS that we felt that I would not be able to give the time commitment required for the study. I'll be all set for the next round. Good luck and I hope this works for us all.

[TBear]

... Al, Me and now Mike (I think Fisher has all he can handle for now)... yes we are truly blessed Carol. We picked up Mike ... and June and Gisele, and Debbie... There's so much estrogen floating around here that I think I'm starting to get in touch with the right side of my brain!
T.

[Carol Deboer]

Hey Ted.

I am soooo glad that you agree with me and the women of this gang. I know that you are used to being around women after having 3 beautiful daughters, and a wonderful wife. However, it is us now. We own you now. I have a few jobs around the house that I need done. Should I send you my list? Henry says its okay!!! I live in a household full of testosterone soooo.... I always look before I sit to pee.lol Everyone has their problems. I am sure that you love us all and love kabitzing with all of us. I think you are great!!! love ya... Anyway, Deb, my heart bleeds for you. I wish I could take all your pain away. You know what to expect, and that must be scary for you and your family. My prayers are with you always. If you need to talk anytime, I am here. Please, keep yourself strong. We are "all" here for you at anytime. Anyway, gotta go. Hey Al, can I stow away in your suitcase? I need to get away so badly. The sun would be so nice, and margarita's mmmmmm I can daydream for now. Talk soon. Bless all.

Carol

[Theresa2004]

Must be my catch-up night. Now guys and dolls, Fisher is still in the honeymoon stage, so he may be otherwise occupied.
Carol, can I borrow Tbear when he is finished with your jobs? I have a list I am still waiting for "someone" to do and still hasn't made it over to help. Seems he has gone AWOL, underground, just can't figure out where the exact location is. I can't tell if he is home, or has taken off somewhere. Very very frustrating.
TBear, you can fly to Carol's, then whip across to Brampton, land at our local flying club, and visit with the Brampton forum. Al will pick you up at the airport, you woudn't mind would you Al? Just up the street.
Debbie I won't begin to understand to effects on you, but I will tell the entire group, if our church had more candles available, I would light one for each and every one of you.
Carol, you deserve a holiday and some warm sun. You have an incredible sense of humour, understanding and strength. I will say honestly, when I heard about my friends diagnosis, I was terrifed, and heart sunk as all of you were when you were told. Is this what my future may hold? Am I crazy if given the opportunity, which apparently may not be in the cards ultimately for us due to timing for us, to take on this enormous situation? Do I voluntarily walk into it? Do I walk away as he has so many times pushed me away telling me to find someone I can spend my life with? It is a daily struggle, and when he shuts me out, it becomes even more enormous. Then I read the postings, I read how Fisher recently married, Linda?, his wife now, knowing what is before her. (Fisher, if you read this, I bet the group would love to hear from her). I read how the PALS have discussed their family and spouses support, and the CALS have jumped in, whether it be sister, brother, father, mother, or friend, look at Kim, Timshelper. These postings are what motivates me to go to some extreme measures to find out what is going on, but also to know on the days I want to throw in the towel, not to give up yet. I don't want to! I can't.
This question may sound totally off the wall in this forum, but I am trying to locate a member of his family whose phone number is unlisted, therefore the address is too. I know the city where he lives, the name is unique; there is only one person with that name in the region. It is his brother, who I have met, likes me, and if I every feel the need to reach him, I know he would be receptive. Private investigation costs a fortune, I can search land titles, but to do so, I have a bit of a drive to the registry offices of the region to do the search. Anyone have any suggestions? I would only contact him if I really needed to. I don't want to impose on anyone, and privacy issues are a huge deal now. But I am at wits end, and at least will locate an address to use if I really find myself with no other channels.
thanks.

[Al]

Great idea for TBear to come to Brampton. I'll buy the gas for a ride. Haven't been for one since Sept. 19 and that was a short ride and only one way.

Theresa- You say you don't know if this guy is home? Is his car in the driveway or at work? Try calling his work. They won't tell you where he is but most places have voice mails telling you that they are on holidays.
If I didn't know better (do I ?) I'd be starting to think this guy is hiding something other than his disease. Not wanting to be brutal or anything but has the thought of another woman entered your mind? His behavior is very suspicious.

As far as the brother goes have you tried Canada 411. Type in the name and town. Sometimes their records are a little behind so his listing might still be on there.
Or you could go to the library. Some of them have a Criss-Cross Directory that lists people by street address in one section and by phone number in numerical order. If you have any idea of the street he lives on you may find it. Can't remember if they had alphabetical listings as well or not. Worth a look I guess. Hope this helps.

[Theresa2004]

Hi, thanks Al. Tbear, you going fly in. It is rain and snowing here at the moment.
Al, I have tried everything to find him, car is not in the driveway, haven't seen it for a bit, usually is locked in the garage. I have tried drive bys, no luck, calling the house on my cell phone, no one answers, don't know if he is there or simply not picking up the phone. He hasn't been working, his contract expired then, he wasn't feeling very well. Other women..no...I'm enough to keep up with. I think this is an issue of too much...maybe he has taken off to sort things out. Who knows...but he'll have his ears boxed when he resurfaces from me.
I have tried 411 listings but unfortuately the number I need is unlisted. I don't have the brothers address, just the city/town, lucky for me, there aren't anyothers in that town sharing the same last name. Looks as if I may take a drive to the region next week, weather permitting, I have some holidays coming, and do a search at the title office. Costs only 10.00 and it is public record. That is the only other way I can at least get an address. From there, I will hold onto it for safekeeping and use it only if necessary.

[jimO]

Here's my intro
My journey started around January/00 thought I was getting out of shape playing sports , I would have 1 drink and talking like I had 10,it wasn't until my hands didn't feel right and the emotional control went wacky did I seek a doctors opinion. I think my GP knew because he immediately sent me to the local neuro. Joking when the neuro asked what's wrong I said speech and my golf game is going to crap; his response was they may be related. That was my first glup :shock: After a few visits and test he said I would like to send to London to an ALS specialist, not knowing what that was I thought to myself (boy that seems far just to get a pill to clear up this ALS thing) Well in a short while I got clued in and found out there wasn't any pill for this ALS thing (yet).It wasn't long after that working as a boilermaker stopped as many other things changed in my life.Now at 38 I try to stay positive day by day as my body melts away being careful not to complain about what I can't do anymore but grateful for what I can because next month isn't going to be better :( With 3 children I've seen 1 graduate HS and 2 at age 10 and 7 with fingers crossed I will see them graduate. Well that's Jim Oliver's introduction nice meeting everyone

[DebbieD]

hi and welcome jim! you've come to the right place for moral support! i find a lot of comfort here!!

[Al]

And a few Crazies as well.

[TBear]

... this coming from the nutbar who jumps out of airplanes... before they land!

T

[Carol Deboer]

Jimmie, do not listen to them. Would you believe anything that the Fat Bastard says, or a guy called Teddy Bear? And they call all of us crazies, go figure. ha..... Good to see you on the forum Jim. I worked all weekend or else I would have come over to see your mattress. I do not have a day off until next Sat. !!! Tis the Season. Fa,la,la,la,la, la, la, la, la, Humbug !! Hope to see you here often, we do have a lot of laughs, and a lot of good discussion, regardless of the two old men that call us crazy. lol Have a good day guys..

Stay Strong, Carol

[Al]

I for one am not old 55 is not old for a man. Just in the prime. Now 50 is old for a woman and they get real catty at that age don't they Henry? Now Ted may be old but we're not sure. He must be old because he sure seems to know a lot of stuff and you don't usually get wise without being old as dirt. LOL.

[lhart]

Hello everyone,
I've been reading for a while, figured it was time to join the party. My story is much the same as Jim's, started in Jan '00 with weakness in my hands, officially diagnosed in Sept '00. I am 38 years old, married with a daughter (16) and two step sons (19 & 21). I am still going to work everyday. My speech is pretty much gone so I use a speech program on my computer at work and on a laptop that I pack around. This is new so I'm trying to work the bugs out. So far so good. Nice to meet you all and look forward to adding my two bits worth. A positive attitude is the key.
Les

[Carol Deboer]

Hi Les, and welcome to our home,

Glad to see that you have been reading for sometime. I be a lot of people have been reading for ages, but, are still afraid to post. We are more than happy to include you into our gang. As you can see we have quite the banter with each other !! It keeps us laughing and on our toes. God knows you cannot be serious all the time. And you are right, a positive attitude is a must. Henry has carried that attitude for almost 8 years now, and he is still positive. You have to have faith and hope that there will be a cure or a breakthrough, if you give up on that your state of mind becomes a very black place. That is why we are excited that Deb is in the study in Toronto. Maybe she will be the one that will take this als thing to the next level. Why not? I would love to see some good results with this study. If you are still walking and going to work Les, you must be doing very well. That is not common. Glad to hear that you have your communication devices working, you need them !!! Hope that your family is helpful, the kids are sure of a good age to help out. Like our kids, I could not have kept Henry home without them. It would be impossible. After all, I am a very old woman of 50, weak, only understand the dutch language, and man I am so cranky and bitter !!! Ha,
Don't believe everything Al says, I still swimsuit modelling for Sports Illustrated!!! Just ask Fisher.... He'll tell you. Ha. Anyway, welcome, and hope you join in often. The more the merrier.
Al, I love ya....xoxo And You my dear man, are very sexy looking for 55!!
Have a good day all.....

Stay Strong, Carol

[TBear]

... Al is 55, I'm 53 (in woman years I believe that's still 16) so Al and I are still pretty much in our prime. Barely out of the wrapper as it were. That whole string bikini thing has not been demonstrated yet... at least Fisher hasn't indicated anything.
Hi Les... glad you've decided to step into this... it will be nice to get a bit more of a hormonal balance into the conversation here... although after a converstaion with the "girls" online here I find it easier to shop at La Senza...
As an "old guy", I am truly honoured to know this collection of nutbars!

CHeers... I haven't started my shopping yet!
T.

[lhart]

Thanks Carol,
I was involved in a stem cell study in Vancouver in May '04. It was pretty exciting although I don't know if anything came from it. I learned a lot about the process and what they are trying to do and I believe there is reason for hope. So much of it comes down to time and money. If ALS had the research bucks behind it that other diseases do I think we'd hear more about these studies, but they're being done. Four years ago they told me I had a disease with which there is no treatment, six months ago I was being treated with stem cells. So take some comfort in the fact that there are some very dedicated and intelligent people, working hard for us. I just wish they'd put into high gear. Hot toddy season is here!
Les

[TBear]

... hot toddy time??? I believe that Les is our kinda guy!
I heard serveral years ago that they'd described ALS as an "orphaned sickness". Something that is known about but not very visible. The other statistic I'd heard is that 80% of what is known about ALS has all been uncovered in the last 10 years! So, yes there is work being done.. even if we don't hear too much about it!
Good luck all and Ho Ho Ho !
T.

[Al]

Shopping? What shopping? Do we have to shop? Just give money or get them a trip. No shopping involved. Travel agent does it all. Only way to go.

Welcome Les. As TBear says glad to have some more male influence here although it is a shame that someone so young has to be here.

As for the string bikini I would be interestef in that myself. Any pictures floating around the internet Fisher?
And Carol when did you see a picture of me? Did I send the skydiving one or did you really think that was me on the beach picture on Mike's website?
Have a good day everyone. Snowing like a bugger here. Not nice. 4 more days to warmth and Pina Colada's.

[Elaine]

Welcome Les, I'm pretty much in the same boat as you.My speech is going and I'm still working for now. Tell me about the program you have on your computer, I might need it in the near future.
Al, be careful about calling us old women at 55..... we just might surprise you. Ha, Ha . Good for you Carol, we're going to have to get the forces out to help us deal with these men.
Keep well everyone, Elaine

[lhart]

Hi Elaine,
The program can be found at WWW.ETRILOQUIST.COM
It's a free download with no special hardware needed. You type in what you want to say and the progam speeks for you, either word by word or sentence or whatever you want. You can prerecord phrases (eg Good morning) You can select the sound of the voice and adjust it, make it male or female etc. I find it works great. I'm on a pc all day anyway, so its right at my fingertips. We have a "hands free" feature on our phones at work so with that I can talk on the phone again. It's given me part of my world back. I can still type with one hand but as that goes I will switch to a cordless mouse with a trackball. You can also download a visible keyboard that you just point and click on the letters. So with that I should be set. When I'm not at work, I have a laptop with the same program and I just plunk her down on the table a babble away a la Mr Roboto. Losing the speech has been very hard for me as " I likes to babble" so I'm pretty happy with this. You can get a device through the als society called a Lightwriter (I think) which is smaller but thats all it does. With the laptop I can email, surf, watch movies etc. I figured down the road I'll get a lot of use out of it. Hope the info helps.
Les

[DebbieD]

hiya les! it's nice to have you aboard! i'll be starting stem cell research in the new year at sunnybrook hospital in toronto. i'm really excited about it. maybe you could tell us about your experience with stem cells in vancouver! i feel really hopeful that a cure is just around the corner! :D

[Theresa2004]

Hi to Jim and Les. Man I have missed so many postings it is hard to coordinate.
To the group, you are as young as you feel in your heart and mind. So to the new members, you need to read some of the previous postings to get a handle on them. But everyone is great, and you will find help here, along with a few crazies. You will see there is an ongoing debate over drink of choice.
Feel free to vent, talk and ask questions, if they don't have the answers, they will guide you.
Les, tell us more about your treatment with the stem cells. Debbie is about to start, we would like to hear more.

[lhart]

Hi gang,
I think the drink of choice this year is rum @ eggnog. Being nice and thick is a bonus. Not to be forgotten is the spiced rum toddy. Are we seing a theme here. The stem cell study I was in, involved using my own adult stem cells. The procedure itself was fairly simple. For a week prior I gave myself injections daily of a protein (or something) that would increase my blood cell count. Once this was done i went into the cell separater unit and they hooked me up. They ran an IV from my left arm which drew the blood out and ran it through the cell separater and then into another IV that put it back in my right arm. The stem cells gathered in a bag coming from the machine. It took about seven hours. Long day! I went home that night and had to wait for the call from the Dr. to say that they were able to get enough stem cells to go ahead, if not I would have to do it again. Well the call was good, they got enough stem cells for three treatmensts! The next day I went back in and they hooked me up with the "concentrated" stem cells and put them back in. By separating these blank cells and putting them into the bloodstream the theory is that they will circulate through the body and land where the're needed. The best part for me was how excited the Doctors and Nurses were about this. You could sense that we are the verge of something big. The trial I was in was a toxicity test, meaning they were only looking for negative side effects or reactions. Phase One. The follow up has been MRIs to see whats happening with the ol' brain. I just had my six month last week. They told me the next step is to do the same thing only this time they want to mark the stem cells with a dye or something so that they show up better with the MRI so they can see exactly how the new cells dispurse and where they wind up. They also have a way of treating them with a growth booster to give them a kickstart before going back in. This could be what your in for Deb. Anyways it was something positive and i'm glad I was able to be part of it. It felt like I was actually doing something to help myself. Nice to share all
Les

[Elaine]

Hi Les,
Thank you for the information on where to go for the speech downloads.
The site is really very good.I just have to learn all the information on how to use it at home and at work.
Keep well. Elaine

[Theresa2004]

Thanks Les, that was quite informative. I get the rest of the group will be happy when they see it, first hand.
Have you noticed any changes at all, any improvement since they did this?

[DebbieD]

les, i will be testing my own adult stem cell for toxicity as well! thank-you for the detailed info! i'll know what to expect now! i don't mind needles or giving blood at all. i wonder though, how hard is it to inject yourself?

[lhart]

Hi Deb,
The nurses teach you how to do the injections. In my case they taught my wife and she had no problem at all. Needless to say I was at the mercy of my wife and I think she enjoyed it! As to whether I noticed any changes...I don't think so. I'm definately worse than I was six months ago, but my progression is fairly slow so its hard to say. There's nothing written in reguards to how I'm supposed to be right now. The way I look at is these blank cells had to turn into something so who knows. If they asked me to do another trial, I'd be there front and center! Don't think I'd spend 25,000 to go to China though. Six months in Maui would probably give you the same result. I'm excited for you Deb, keep us posted as you go.
Les

[holly]

Hi all!

i've been reading tHrougH tHe emails. i knew my Husband read tHe messages but i didn't know He was sucH a prolific writer. les is my Husband, i'm Holly. we live in surrey, b.c. between us we Have 3 kids (2 boys, mine from a previous marriage - age 21 and 19; and a girl, His from a previous marriage - age 16), a dog - ours from tHis marriage and a cat - totally mine. les and i Have been living togetHer since 1998, started dating 12 years ago. we got married 8 montHs after He was diagnosed as 'probable'. (tHe tHings a girl Has to do to get a ring! - Ha Ha) . tHey tell us les' progression is quite slow, but tHis year it seems to Have accelerated - tHey told us it would seem tHat way. tHrougH reading tHe forums, i figure les is in tHe same condition as some of you. it Helps to know tHat otHer people are managing tHeir lives in spite of als and tHat we're not alone.

Holly

[Patsy]

Hi everybody;

my name is patsy but my full name is patricia seguin-tremblay.
i live in a small town called kapuskasing in nortHern ontario, canada.
living in tHe great wHite nortH, witH winters of -40 degrees celcius and summers witH plenty of black flies and mosquitoes !
p.a.l.s. since 1998
symptoms onset 1995
bipap at nigHttime since 2000, researcH stated tHat it could extend lifespan.
speecH is incoHerent and use communication devices. dynamite witH Head mouse and laptop computer witH dragger32, wivik onscreen keyboard and e-triloquist programs.
weigHtbear and can step sHort distances witH my Husband.
wHeelcHair bound mostly and i Have a manual wHeelcHair because of no vendor to fix electric wHeelcHair problems, vendor 2 Hours away. Had a power cHair for a year and it was a nigHtmare!
arms are tHe most affected and use a computer, special laptray, ergo arm and computer assistive programs.
feeding tube done september 2004, best decision i ever made.
i can still eat pureed diet and drink anytHing.
retired from nursing at 35 years of age witH als diagnosis in 1998.
my mottos; tougH times never last, tougH people do. -robert scHuller and "life is not a journey to tHe grave witH tHe intention of arriving safely in a pretty and well preserved body, but ratHer to skid in broadside, tHorougHly used up, totally worn out and loudly proclaiming "wow.............wHat a ride!!!!" autHor unknown.
i am married to an o.p.p.for 14 years and we Have 2 boys wHo are 9 and 12 years of age. we Have a circle of volunteers, family, nurses, psw's and friends Helping us; tHey are a real blessing.
i Have never participated on tHis forum before but i Have been involved witH 2 american als forum; i am very pleased to participate in a canadian als forum!

take care;

patsy

[mannco74]

just wanted to say nice to meet you and your name sounds very familiar. was it march of faces?

[Elaine]

Welcome chris and patsy,you'll chat with alot of different people on this site. we're all hear for each other and to offer any support that we are able to give.some of us are a little wacky at times but this is what's it all about. laughter is the best medicine.keep posting on the different topics,you'll get to know all of us real soon. don't foget to post your favorite drink everyone does.patsy i guess you'll be glad when the weather gets warmer. northern ontario can be very cold at times.
what am i saying!!!! we'll all be glad when it's warmer......
keep well lol elaine

[DebbieD]

Welcome aboard patsy and chris!! this board is the best!!!! the people hear really feel like family!

[lhart]

Hi patsy, i look forward to talking to you more. we sHare a lot of tHe same problems and are tHe same age. welcome to tHe forum.
les

[Carol Deboer]

Hi patsy,

welcome to our "Home". i am sure you will find tHat we are a great group of people tHat are more tHan willing to Help you out anyway we possible can. tHere are a few of us tHat are a little "crazy", but Hey, if you join our gang it Helps to Have tHat trait !! seriously, we are all Here to support and learn from one anotHer. i Have learned a ton of wealtH from tHese guys and i am sure tHat you will too. again, welcome, and i Hope tHat you will feel at Home and feel free to add your personality to our family. stay strong and god bless.

love, carol

[me]

Welcome chris & patsy. have fun here!!! melissa

[Patsy]

Yes, i am on the march of faces for the last 3 to 4 years!
thank you for the warm welcome.
patsy

[Al]

Welcome patsy. glad you're here but sorry as well. great group. sunny and 76 in ft lauderdale today. sitting in an internet cafe checking my mail. wish you were all here with us. take care. al and lee.

[trisha p]

Hello to everyone. i've been reading this forum since last april, when my brother was diagnosed. he is only 38 and it's been a very difficult time for us as our family is spread all over canada.

he's like my twin brother, although he is almost 7 years older than me. i live in ottawa and he lives in calgary so there will be much travel in the future. a month before his diagnosis, my father was diagnosed with second stage lung disease from smoking (although he had quite 6 years before). dealing with both illnesses has been difficult but my family is so amazing - sometimes i wonder if i could be that strong if i were in the same situation.

up until a few weeks ago, my brother was even competing in disabled skiing competitions, until he injured his ankle after a nasty fall (he likes to go down the hill fast). he is such an inspiration - even though he has very little use of his arms, and very little abdominal support, he can still make it down the hill twice as fast as me. his motto is to do everything as long as he can and to enjoy his life as much as possible.

thanks all for your supportive words to each other. they reach more people than everyone realizes. i've been praying for your families so i thought it was time to say Hello formally and join the group.

god bless to all. you're in my thoughts>.....

[Carol Deboer]

Welcome trisha,

your brother sounds alot like my husband henry. he was an incredible skier. he also did everything he could until the last minute. they pave the way for inspiration don't they? sorry to hear about his dx with this als thing, although it sounds like you have a very supportive family, and you will need to muster a lot of strength during the next few difficult months and hopefully years. again, Welcome, and i know that you will find all kinds of support and freindship here with our gang. stay strong, and we will add you to our prayer list.

love, carol

[me]

Trisha p. - so glad you decided to introduce yourself. we hope you will join us as an active member. it is so helpful and encouraging. we are all here for each other. melissa

[mannco74]

i may know your brother. is his picture in here with pals and cals
http://ranger03.com/als_clinic.swf

[trisha p]

Hi,

yes he is in the group picture on the left!!! i mentioned it to him and he seems to remember the photo being taken! all i can say is that he's awesome and inspiring to me - i am so proud of him. i'm the researcher and "talker" of the family, which is why i am on here more often. thanks for saying hi!

[Tammy]

Hi guys! my name is tammy and i live in tHe usa (oHio). tHis site is amazing! you guys crack me up! i am a registered nurse working at a major level 2 trauma Hospital. presently off work witH back surgery (Herniated disk). i Have an uncle witH als and work on a med surg floor wHere we are seeing more and more patients witH als Hospitalized. my goal Here was to put some voices to tHe faces i care for. boy, Have you guys been able to do tHat. now i'm Hooked. no wonder wHy so many people read witHout posting - you guys are very entertaining. i am so sorry for wHat all of you are going tHrougH. not a pretty disease, or a very friendly one. a favorite song of mine, Has a line in it, tHat sums up How i feel wHen i read some of your postings. live like you are dying. some times it feels like you don't really begin to live until you receive a diagnosis or a major trauma tHat puts your life in perspective. you realize How very important eacH and every second of every day is. i feel like a fly on tHe wall able to Have a little glimpse into eacH of your lifes. wow tHanks! fyi: my fav drink is a margarita stirred on tHe rocks witH a nice salty rim but, i will pretty mucH drink anytHing witH alcoHol. tHanks for allowing me to be a small part of sucH an amazing, informative, supportive, compassionate group of people.

[mannco74]

Thanks tammy for dropping in and the kind words. here is a little song you may enjoy. http://ranger03.com/life.swf

it was sent to me after a pals from liverpool noticed i was a bit down so i made a little video of it.

chris

[Carol Deboer]

Hi tammy and welcome,

my favourite line from a song is from bonjovi, " i just want to live wHile i'm alive" seems to sum it up pretty good. it"s my life.

maybe we sHould take a poll and see wHat otHer people Here on tHe forum Have to sHare witH us.

okay guys, wHat is your favourite line from a song related to tHis als tHing? tHis sHould be pretty interested don't you tHink?

see tammy, you Have started sometHing really good Here !!! bravo to you. i am sure tHat ted and al and mike and fisHer, and mannco, will Have some really big macHo song line to Hook us up to, but, men, even if tHey are "old" still tHink tHat tHey are all tHat !!! Ha... al, i am sure tHat your favourite line is from madonnas Hit, like a virgin, and ted i am positive tHat your favourite is from boston, feels like tHe tHe first time !! Ha...... Ha.... okay guys, tHe poll question is out.... lets Hear all of your answers...

again, tammy Hope you feel better soon and are back to work feeling as good as new. may tHe angels walk beside you every day as you Help to care for tHe sick.

stay strong,

carol

[Al]

I'll have to think about the song thing. what comes to mind is i still haven't found what i'm looking for by u2. crap or is it rem? think u2 is right. i went skydiving in sept because of your song tammy. live today like you're dying tomorrow. a friend told me about the song and found out i'd always wanted to do it so off we went. i went to church here in florida with a friend today. i haven't been to church except for weddings and funerals for almost 40 years. i was raised catholic but kind of lost it. so i guess i still haven't found what i'm looking for. i'd better find it soon though. might ned it.

hope your back thing goes ok. my wife had the same thing and so has my friend i'm visiting in florida. not much fun. we are a fun group. stick around it can only get better.

[trisha p]

Hey all!,

i am terrible at remembering lines from songs, but tHe first one that comes to mind is "you're still you". it is sung by josh groban and wHenever i Hear it, i think of my brotHer. his body is changing but He is still tHe same brotHer i've always had and loved. i wrote a poem about it - still a little shy to share but maybe one day.

anyone else still digging out from our latest round of snow? i think it is now piled so high along my driveway that it's over my Head. i'm not sure wHere it came from because my otHer neighbours seem to have only half as much!

[Theresa2004]

Hi tammy, i am on a sHort line Here at work, but i will say welcome. you tHink tHis is entertainment, wait until al gives us a demonstration of How He works a Hose...................

[TBear]

Liz... that's positively indecent!
trish... the snow came from the sky!
al... i was raised cathloic too but have been attending anglican church because that's where my wife went (also where i met the professor). when als hit, they were the first ones to step up to the plate too. i was an altar boy at catholic church (the inuendo can stop now) but was unceremoniously removed from duties after my cousin and i got caught "dipping into" sacremental wine. all in latin of course.
tammy... welcome to this mess. my favorite line from a song is ... "everybody have fun tonight... everybody wang chung tonight..." i think it truly captures the 80's... and if anybody knows what it means please clue us oldies in! perhaps wang chunging will help with your back.
carol... you sweet thing, i hope you're not disappointed in my song selection! after that it was "i'm doin' all right... getting good grades... the future's so bright i gotta wear shades"

welcome to my tortured world!

cheers

t.