Hi donnah we are neighbors

[Beebe]

Hi there, Interesting we live in Forked River. Haven't seen anyone on the Forum that lived this close. My son-in-law Jack has ALS. He was dx in April of 2006. Hope to hear from you. Where was your husband dx?? My Best to you , Beebe

[Beebe]

Hi Donna, I just went back and read your posts. Did your Husband come home from the hospital yet? I can understand what you are going thru. My daughter works and wonders all the time what is going on at home. At least my other daughter and I are only 5 min. away. So we check up on Jack every day. Try to find places to go to get him out of the house too. The big kid will play video games most of the day!!!Jack's 42. Hope to hear from you. My very best to you, Beebe

[donnah]

Hi Beebe
Yes we are . Yes he is home but we are having a hard time of it. He is having breathing problems at night and I am having a hard time trying to find some help with him during the day.Thank God I have friends in from Florida and more coming next week, but after that I am scared His nurse said I could have a service for about $600.00 per week. Any ideals would be great . How do you handle this I dont sleep at night just so I can be sure he is not choking. The last 2 night he woke with shortness of breath. He said he will let me know if he wants to go to the hospital or not. I'm afraid I'll not understand his sign. Any suggestions would be helpfull I'll keep you posted.

[Beebe]

Hi Donna, Have you been in touch with the ALS association ? There is a nurse case manager for our area. She has visited with my son-in-law and keeps in touch with my daughter. She would be a big help to you as they do have volunteers and help for what ever you need. Please get back to me. My best to you , Beebe

[gifogif]

Hi Beebe & Donnah. Just wanted to let you know that you are not alone in South Jersey. I also live in Barnegat and was diagnosed in January of '05. I receive a lot of assistance/advice from the ALS clinic in Tinton Falls. They have a wide variety of specialists with expertise in ALS. They are located within the Health South facility. Great people.I suggest giving them a call , it can't hurt. Remember--STAY POSITIVE

[Beebe]

Hi Donna, Here is the info Pat Schaeffer the nurse said to call her at 732-450-2677 . She will get you the help you need. Also there is a new support group she's with at Riverview Med. Center first Tues. of the month at 6:30 pm. There was a big article in the Sunday Asbury Park Press about the new Group. Keep in touch. Fondly, Beebe

[Beebe]

Hi gifogif, I don't know your name. You aren't on the member's list. Where abouts in Barnegat do you live?? I have someone I care for at The Mirage been with the family for 6yrs. My extended family!!! We'll keep in touch . How are you doing??? It's my son-in-law Jack that has ALS. We are all in this together..... My Best to you Beebe

[gifogif]

Hi Beebe--I live next door in Pheasant Run. Moved there about a month ago.My wife and I have lived in Barnegat for 32 years but had a bi-level and had to buy a ranch. My symptoms began in early '03. I went to the doc in '04 and was finally dx'd at John Hopkins in Jan.'05. Mine is leg onset and by now I do very little walking. I use both a scooter and electric wheelchair. Luckily I was able to get a handicap van. So far I feel very fortunate since while I have weakness in my upper body and arms I do not have any respiratory issues.I am still able to do some work and keep busy. I also have a great caretaker in my wife,Mary. You can be assured that even though you may not think you are appreciated at times believe me you are. Any help or advice I can provide, just ask. Best Wishes

[Beebe]

Hi, We have lived in Forked River for 26yrs. We are off Lakeside Drive South by the Lakes. It has changed quite a bit hasn't it. It isn't quiet anymore. What do you do with yourself on a daily basis??? Jack was dx April of 2006. He's 42. Was a contractor. Started with weakness in fingers and arms left side more so, fascilations too. Then went to legs. He's still walking around. You are right about thinking Positive, we have to. One day at a time. My daughter says the power plant is not helping us. We are only a mile away. What kind of work do you do?? Have a good night. We'll keep in touch. My Best to you, Beebe

[gifogif]

Good Morning-- My entire career was spent in hospital administration.I retired back in '99 but then because of the Stock Market crash and complete boredom decided to find something around here instead of going back to commuting.Luckily an opening came up at St. Mary's. So here I am as the Business Administrator since'02. I can't work full time nor can I attend all meetings or events as I once did but Fr. Ken has been more than accomodating. Other than that I watch TV and cook mostly on the weekends with the help of my wife. She's my gofer. My passion was golf but that ended about 1 1/2 years ago. I guess we all have to adapt and find new pleasures and interests as circumstances dictate. My best to your PALS and always remember you are appreciated

[Beebe]

Hi gifogif, My friends in Barnegat belong to St. Mary's. The Deacon use to come once a week and bring Communion for Mary and Jim. Mary passed away September of 2005 she was 89. We attended a mass for her Sept. 19th. of this year. Father Ken is a wonderful person. Do you belong to any support group? We didn't know Health South had an ALS program? Jack was going to Health South in Toms River for water Therapy only one with a pool.. They closed it last month. They joined a club in Manahawkin which actually works out better they both can go and it 's less than what the copay was. Well that's it for now. My best to you, Beebe Donna hasn't checked the post yet......

[donnah]

Hi Beebe & Gifogif I try to read the forum from the two of you every day. Its comforting to know that the two of you are so close by. I'm having trouble getting it together. I have put a call into Pat from the clinic you suggested. Scheduling people is the hardest. I have one more week to get it together before all my help goes home. I feel lost. If you read the paper a few weeks ago, my husband & I were the ones whos outdoor lift snapped and fell. I wish he had the mobility he had before the accident. Well its comforting to know that you two are close by. Maybe coffee sometime and you two could give me some pointers I could use it. I'll let you know what Pat Schaeffer has to say.
Thanks for your support & friendship

Donna

[donnah]

WHere is the ALS clinic in Tinton Falls? I cant seem to find any information on it. Thanks for the help

[Beebe]

Hi Donna, You spoke to Pat? My daughter had emailed her about your situation. I hope she can make a visit to you very soon. I can understand your frustrations. Was the article about the lift accident in the Asbury Park Press? I get the paper on Sunday only. That must have been a horrible experience ! Just know we are here for you. Fondly, Beebe

[donnah]

Hi BeeBe no I have not spoken to Pat yet. I left 2 voice mails for her I hope she retuns my call today. The artical was in the Atlanic City Press. So any wat what kind of assistance do you recieve from the Clinic so far I have come up empty handed. Well for now all I can do is wait for her call
Talk with you soon
Donna

[Al]

Hi guys I went to the Atlantic City Press and couldn't find anything about a lift accident. Was this an ALS patient on a chair lift? You have got everyone's curiosity aroused now. AL.

[Beebe]

Hi Al, I couldn't find the article either. Donna's husband has ALS. I don't know what kind of lift. I just realized it was outside. Sure Donna will fill us in. My Best to you, Beebe

[Beebe]

Hi Donna , Here is Pat's email address Pat@ALSPhiladelphia. Hope you heard something. Later. Fondly, Beebe

[donnah]

The article was in the police blotter section of the paper. The lift was an outdoor lift. I belive the date was either 10/18 or 10/19 some one faxed it to us. Yes he was in his scooter, when I heard the cable snap I held the chair but when it hit the ground I was thrown off the side he tipped out of the scooter and fell out the side. Thank god he did not break anything but it was the trauma of the fall and the fact he injured his back (had spine surgery 1/03/06) again. By the way he did not need the surgery it was ALS all the long. The anasthiasa acted like an excellerant for the ALS (9.5 hours on the table) Well that whole thing is another story within itself. Any way today was our first day alone with no help............ Never try to shave your husband very ugly argument......... But we got past that after a few hours, I handled the contraption that gets him in and out of bed OK. Now I just have to get him back in in one piece. Thanks for all the support. Gramp Al I'll send you a plane ticket .. you seem to have it all together please come show me how..........Just kidding but if your ever in the neighborhood (Atlantic City gambling) come on over. BeeBe thanks for all you encouragement and advice you to gifigif.
Talk to you all soon

Donna

[Beebe]

Hi Donna , How are you doing?? Never liked to shave a man. Electric razor felt safer!! My daughter Stephanie said to email Pat she responds quickly. I hope she got back to you. All your family and friends went home??? Let me know how things are going. I'm here for you. Fondly, Beebe

[Beebe]

Hi gifogif, Haven't heard from you for a few days. Hope all is well. Your user name is interesting. Keep in touch with us. Hope you had a good weekend. My Best to you, Beebe

[gifogif]

Good Morning all-- Had an uneventful weekend which I guess is good. Supposed to get braces for my legs and feet but the referral from my pcp somehow got lost. This is the third week in a row that we have had to cancel. Just aggravation. Anyway, the telephone number for the ALS clinic in Tinton Falls is 732-460-7385. The woman who handles the administrative duties is Diane. Very nice and helpful. Donnah, I know it must be difficult to deal with this as my wife occasionally lets me know but your support and level head are appreciated beyond belief. It took me a while to figure out that this disease affects whole families not just the patient. I can be testy at times and my wife has so far been understanding and supportive. So please know you are important and appreciated. Hang in there.

[Beebe]

Hi there, Just checking in.. Where do you go for the braces? Seems someone is always misplacing or losing important paper work. Jack was suppose to have his Disability last month but someone misplaced something. Should be here this week. Hey Donna , How are things going anything from Pat??? Hope so. Did you email her? She responds almost immediately. Keep in touch. My Best to you, Beebe

[gifogif]

There is a company called Hangers. I believe their out of Wall Township but they have an office in Manahawkin that they staff only on Tuesday afternoons. Hope everyone is doing well.

[Beebe]

Hello, I have to tell you something interesting. A few days ago I did a web search ALS clinic in Tinton Falls, N.J. Well ,page came up and there is our post. Hi Donnah we are neighbors. Tinton Falls is mentioned in your response guess that's why. I was taken back for a moment because I saw my name there. Guess we should start a new post, it gave me an strange feeling, anyone can read our posts!!! Did your appointment get rescheduled??? Have a good day. My Best to you, Beebe

[Al]

I don't have anything to do with it but maybe you should exchange emails if you don't want everyone knowing your business and even then who knows what goes on. Homeland Secjurity you say? Guess I'll see the FBI at my door tomorrow .

[Beebe]

Hi Al, LOL!!!!! You come out with some good ones... I'm still LOL. Need a good laugh . It was just that my name stood out thought I ended up back at the Forum at first. Have a good morning . I'm a night owl and boy do I suffer the next day . My Best to you, Beebe

[janf]

I'm a night owl too but I'll have to say I'm getting tired tonight. I get up around 9:30 A.M.. I'ts 1:16 now. Thank goodness no one calls me in the mornings because they don't want to hear me slurrrrrrr my words so bad they can't hear me. I don't want to talk in A.M. anyway. Better talk while I can though. Hope your doing ok.God bless, janf

[donnah]

Hello Beebe how are you hope all is well.
Do we care who reads our post maybe an outsider looking in could give us a little insight and offer up any new information that can help even just one of us.
(I know wishful thinking)
How is Jack doing?
Ben seems to be holding his own no worse no better. I'm not sure what to think of this. 2 weeks ago when I brought him home he was a mess His doctors were worried about him leaving ........ Now he seems a little more at peace. Is this a clam before a storm............. Does Jack go thru these periods highs and lows (when he swings low he is real low) Well I hope all of you have a great weekend talk to you soon.
Thanks for your unconditional support

Donna

[Beebe]

Hi Donna, Good to hear from you. Did Pat get in touch with you? Yes, Jack has his good days and bad days. I think a lot has to do with not having his independence. He hasn't driven for a few months so he stays home all day unless someone drags him out of the house. He's very dependent on my daughter. She's working all day does a lot of driving and he wants to go here or there when she gets home. She's ready to take a short coma!!! We just got back from the Lacey Elks Jack's friend had a Halloween Party there for Jack. He has great friends! All we can do is Hang in there. Take one day at a time. Did you read Al's response to my post about our post.? I still have to laugh what and inspiring person. I wish Jack would join this Forum I think it would be enlightening. Bad weather coming Saturday afternoon , high winds . Batten down the hatches!! Fondly, Beebe

[Al]

Hey girls. Guess the FBI couldn't fnd me up here in Canada eh?

[Beebe]

Hi there, Guess you have a good hideout!!!! My Best to you, Beebe

[Beebe]

Hi Just checking in to see how my neighbors are doing??????? Suppose to be close to 70 degrees today. Perfect weather for the Trick or Treaters!!! Hang in there! Fondly , Beebe

[Al]

You're just trying to make us jealous up here. It's supposed to be just above freezing. Wearing a costume over a snowsuit is fun. AL.

[Beebe]

Sorry about that but it did reach 70 degrees . Have no control over the weather. That's the problem we go from the 60's to the 40's suppose to get cold by the weekend. The grandkids had a great day. They keep you going!! My Best to you, Beebe

[donnah]

Hello everybody, Hi Beebee yes Pat sent me an application for some help with home care up to 14 hours a week. I'm afraid that might not be enough. After Thursday it is just me & Ben his brother in law must return to Florida. I so scared that I will fail at figuring this all out. I really dont know were to start. I cant figure out how much time he will need and on what days. I wish I would get some easy answers. But I know there are none. Well all I can say is thank goodness for this forum. One question what dose Jack sleep on? Ben wakes me almost every 90 minutes to turn him, he gets stiff and sore and can not stay in on spot for any longer period of time. Any suggestions. (the egg crate pad is not an option he feels like he will smother in it)

Thanks for everything
Donna

[Al]

For what it's worth. I use the 2 1/2 inch egg crate and flannel sheets and it is comfy and I don't get any feeling that I will smother. I do use a Bipap though. I use a chipped foam pillow as well. AL.

[Beebe]

Hi Donna, Stephanie and Jack have a Tempurpedic Bed. It was suggested to her for her neck and back problems from a car accident. She needs surgery again on her neck, surgeon used cadaver bone and it never fused so she has an empty space and there is cracked bone holding together with 2 screws. A walking time bomb!!! I got off track , anyway Jack sleeps well and loves the bed . Stephanie can't sleep. There are a few types of bedding mentioned in the post "questions from cna bedding for ALS patient" maybe check there too. Hang in there. WE are here for you. Check with Pat too she can help you with a lot of needed things. Fondly ,Beebe

[donnah]

GrampAl what is a chipped foam pillow? And what position do you sleep the best in. Ben sleeps best in his electric reclining chair. Should I just let him sleep there? I try to make him sleep in the bed so I can get him off his butt. Do you use any wedges? Thanks for your input.

Donna

[Al]

Chipped foam is just foam rubber chopped up. I'm not sure if you can still buy them. I got mine years ago and my wife just adds more that she just buys at Wal Mart or a fabric store.I like it because it is non allergenic and can be punched up into a ball or punched out to make a channel or cradle for your head. Lee says that you can buy a cheap pillow case and make your own. I have always slept mostly on the right side but for some reason I can breathe better on my left side. I usually wake up after about 3 or 4 hours and have to change sides because shoulder and hip get sore from loss of muscle. I don't sleep well on my back even with the Bipap. Still don't feel like I'm getting enough air. No wedges but I do have a hospital bed propped up at the head but not too far up. Maybe about 15 or 20 degrees. If Ben spends most of the day and the night in one position it won't be long before he starts getting pressure sores.

[donnah]

Hey GrampAl, BeeBe and all...... GramAl thanks for the info on the pillow and Beebe I went and bought one of those Therupudic Memory Foam toppers for the bed.....Last night Ben only stirred twice....so far so good. It was a hard couple of days ben and I butted heads not very pretty I need to learn not to react to his fustrations and anger. I hope I can do this. Sometimes I feel sorry for myself and wish I had my old life back Life before ALS. I have never heard Ben say " I cant" Now he says it often. I cant remeber the last time he was able to hug me. I need a hug from him now and then to make it better. Just one more hug............ Dam ALS
Sorry
Donna

[Beebe]

Hi Donna, I can understand your frustrations. My Stephanie is a very patient and giving person too. She just can't cope at times mainly because she doesn;t take care of herself. Jack wants her to do everything for him and some things he can do but is too dependent. It's so hard to write what I want to say. On top of everything else Jack's Mom went to the hospital this morning. She has emphysema and was not well all week we were going there a few times a day very stubborn wouldn't go to Dr. or hospital but today she had no choice. I called the ambulance my daughters and I went there together when she wasn;t answering the phone. I hope and pray tomorrow comes for her we are very close. I'm glad you found something for Ben to be comfortable. You don't sleep if he doesn't. Hang in there. We are all in this together. Fondly, Beebe Oh have you had some help coming in????

[Beebe]

Hi , How are you both doing??? Just checking in. Oh Al if you read this it was in the high 60's today tomorrow 70's. We had 30's on Saturday froze at my grandson's last Traveling Baseball game. The kids played great guess they had to keep warm. My best to all, Beebe Oh yes Jack's Mom Ruth is still in CCU. She's hanging in there.

[Al]

you're just trying to make me jealous. It's supposed to be 57 here on Thursday. AL.

[Beebe]

Hi there, Just want to say Hello. Where has gifogif been??? Haven't had any input lately.. Donna how are things going??? How do you like this summer weather?? Jack's Mom is doing a little better. She now has developed Diabetes and her Liver is swollen from the Diabetes. Don't think she'll be the same. Lungs are very bad. She's on Bipap and oxygen. Can't do anything for the Diabetes because she's on steroids have to keep her breathing. Poor Jack he's doing OK considering the worry. Never ends. We hang in there together! One day at a time. Thank you for listening needed our caring PALS. Fondly, Beebe

[Beebe]

How's everyone???? Jack's Mom is home, well at Stephanie and Jack's house. Weak but breathing with constant oxygen. We are doing shifts during the day while Steph is at work. Jack has family close by so they are helping too. Interesting I must say!!!! Never a dull moment. Have a good weekend. My best to all, Beebe

[donnah]

Hi everyone, Sorry I have not been around for awhile Bens in the hospital fighting pneumonia & kidney problems. I dont know where this is going but I must say enough is enough this torture must stop. He is so tired, weak and not the man he used to be. He has not smiled or laughed in days. I wish peace for him. Well if I keep writing I'll cry again so I'll take to you all another time. Please say prayers for Ben What ever you pray for him, I'll be grateful
I'm glad Jacks mom is home with him I hope you all enjoy the holiday together its something to be thankful for.


Donna

[CindyM]

Hi Donna. I am sorry things are not going well for Jack. Your posts remind us that this disease affects not just those who suffer from it but their loved ones as well. It helps to be reminded that we are all in this together! Take care. Cindy

[Beebe]

Hello, So sorry to hear your husband has pnemonia. I was afraid something was wrong you haven't posted for awhile. Is he in SOCH or Community?? My thoughts and prayers are with you. People say things happen the way they do for a reason but, why are some dealt so much , too much. Jack's Mom isn't going to be well again, we see that. So much sadness but we have to keep going. One day at a time. You are in my thoughts. Fondly, Beebe

[liz]

Donna.

It sounds like you and your husband are both so weary of the fight. :cry:

I'm sure he is well cared for at the hospital. Do you have anyone to support you? Can you get a little rest? You'll need it in the days to come.

Liz

[Beebe]

Hi Donna, How is Ben doing? I hope you have family or friends with you. Just know you are in my thoughts and prayers. Fondly, Beebe

[donnah]

Hello Beebe,

I hope you and your families Thanksgiving was a happy one. I brought Ben home Wednesday night. he is recovering slowly, very weak but home where is belongs. The doctors want me to feed Ben thru his PEG but, they want him to be hooked up to a pump that takes 12 hours to give him 24oz of liquid food. So far he has only let me give him one can (8oz) that was suppose to run 4 hrs he had me stop after 3 hrs could not take hearing the pump machine any more. Got any suggestions. I want to try to give it to directly thru the tube just like I give him water to flush it. Any suggestions. He is so weak. He also takes breathing treatments by way of a little machine it's like an inhaler and seems to open up his lungs for a while (breathing very sallow). Well enough about me how is Jack and Stephanie doing and have is Jacks mother doing all are in my prayers and thanks for being a friend and listening.

Donna

[Beebe]

Hi Donna, Happy to hear Ben is at home. Hospitals are not where we want to be. Do you have a nurse coming? Hopefully you can get rid of the noisey pump. Ben needs nourishment and fluids. My heart goes out to you. Has Pat Schafer been a help to you? It may take time but, she does come thru with whatever you need. Jack has an aide coming every day now to help him with his shower. He wasn't thrilled but dealt with it today. Stephanie has enough to do. His Mom has an aide too and a therapist. It's a busy house. Jack's help is thru the ALS Assoc. They are sending someone to do massage therapy. My other daughter Michele does arm and leg exercise with him everyday. We do shifts while Steph is at work. Hope you have enough help, are you still working? Well, keep us updated I'm here for you. Fondly, Beebe

[donnah]

Help me ! Ben is in the hospital again went last night to JSUMC Pneumonia left lung they think it is aspiration Pneumonia and his oxygen level very low. I dont know how much more he can take. Anyone else have a loved one who constantly gets it. I hope all of you ae well. Any input is appreciated


Donna

[Beebe]

Hello Donna, So Sorry Ben is back in the hospital. Is he at Jersey Shore? Sometimes I think they send people home to soon. How old is Ben? My thoughts and prayers are with both of you. Hang in there! It's best he's in the hospital now. I'm here for you and so are our other pals. Keep us updated. Fondly, Beebe

[donnah]

Beebe. Nose blowing got any suggestions not sure if you read the new thread. I need a solution to this? Hope all is well with Jack, Stephanie and Jacks mom. Glad Jack is letting more people help him. Be well my thoughts are with you got to go see Ben. They put a Bipap on him to clear out his carbon dioxide level (very high) need to see if he is still on it talk to you soon

Donna

[Beebe]

Hi Donna, You have your hands full. I was going to suggest the saline spray but the person ahead of me already did. Surprised the Drs. or nurses at the hospital didn't suggest or try something. How's Ben tonight??? Jack's Mom had extremely high Carbon levels they had her on steroids . She's doing much better. We never thought she would get better. Keep us updated. You are in our thoughts and prayers. Fondly, Beebe

[donnah]

Well Ben came off a ventalator yesterday and struggled to breath. He is now holding on for something. He will never wake up and be ALS free, but he wont let go. I taked with him all day yesterday and told him it was ok to let go, not yet. What is he thinking? Somwone help me help him let go....................

Donna

[TBear]

Hi Donna:
I haven't waded into this thread... mostly cause I'm not from New Joisey! I understand your anxiety over Ben's situation... I was where you are 6 years ago. My wife let go when she was ready, but in the mean time there still seemed to be issues that she wanted settled. My suggestion is to be with him as much as he wants, doing the stuff that he needs... after that it's nobodys choice as to what happens. Treat yourself well and drink good wine!

T.

[Al]

Hi Donna. Sorry things aren't going well. Didn't you once say Ben was stubborn? He's just not ready to leave you yet. Hang in there. We're all pulling for you both. AL.

[donnah]

This morning after I posted The bravest man I know passed. Ben died this morning, it was peaceful and pain free. I fought a good fight but Ben always said "pick your battles and win the war. He lost this battle but he won the war for he is in a place were ALS has no place. I will check back often to see how everyone is.
Gramp Al, Beebe thanks for answering all my questions and holding my hand from a far this forum made it easier,
Thank you

Donna

Beebe, I will be more than happy to help with Jack give me a little time and send me a private message........ I know what its like....... I would be honored to help Jack & Stephanie

[Al]

Hi Donna. I am so sorry for the loss of Ben. When you are up to it I hope you will be back to help us with others that can benefit from your knowledge. AL.

[liz]

Donna -

Thank you for sharing your experience with us. So sorry for your loss.

Liz

[Beebe]

Dear Donna, There are no words to express what I feel at this moment. Ben is at peace and you will find peace in time. I lost my husband 6 years ago . I still have my moments but, time heals. You are so kind to offer your help for Stephanie and Jack, I will relay your message. My thoughts and prayers are with you, Fondly Beebe

[trustinggod]

Donna,
I am sorry for your loss of your husband Ben. I understand how you feel about him being in a better place now but it is still very hard to lose someone you love. Please take good care of yourself.
I will keep you in my prayers.
Jeanne

[hboyajian]

Donna, You have my deepest sympathy for for the loss of your dear one. I hope you can find some solace with the company of family and friends. Sincerely, Holly

[gifogif]

Donna- You have my deepest sympathies on your loss. Ben is now in a place where this horrible disease doesn't exist. May he rest in eternal peace.

[Beebe]

Hello gifogif, I was hoping all was well with you. You haven't posted for awhile. My heart goes out to Donna, this disease effects the whole family. My Best to all, Beebe

[Beebe]

Hi Donna, If you would email Al , he will send you my email address and telephone number. My thought are with you. Fondly, Beebe

[CindyM]

Good afternoon Donna. I am so sorry for the loss of your beloved Ben. I know he felt your love as you cared for him. I hope you are with family and friends today. Please keep in touch! Best wishes, Cindy

[Paty]

I am sorry for the loss of you husband Ben, but he's in a better place now, and now resting peacefully.

We at the forums are in this together, some as Pals others like myself as Cals.

God bless you.

Paty Baja California, Mexico
Husband's caregiver

[donnah]

Hello everybody just checking in to say hello to all of you. Everyday I miss Ben, all I can do is remember he is not trapped anymore he is free. I hope all of you are well and happy. Smile all of you PALS and caregivers if I dont get back Happy Holidays to all. Be well and enjoy the time you all have together.

Love ya all

Donna :)

[trustinggod]

Hi Donna,
Good to hear from you today. I am sorry that you have lost Ben and that you miss him each day. I can't imagine how painful that is for you. Today is one month since my friend Linda died. I miss her and think of her often. I do find peace in knowing that she is no longer suffering. I wish for you great peace this Christmas season and will pray that you find comfort in friends and family as you continue to find your way without your precious husband. Take good care of yourself.
Sincerely,
Jeanne

[Beebe]

Hi there, Thinking of you. Hope you got my card. Will talk soon. There is a lot of support here, so please keep posting. You have a lot of knowledge to share too. Fondly, Beebe

[cartman]

beebe

our family sends our sympathy and hope we keep hering from you

cartman