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View Full Version : cold feet? stretches? joint pain?


Teej
10-07-2006, 11:20 PM
My husband has ALS and continually has cold feet. We live in California, so it never really gets that cold, but his feet, even on the 100 degree days, are freezing. Any ideas on what to do for him? Also, does anyone get regular massages or have regular stretching sessions? My husband has been having stretching sessions, and afterward, his joints really ache...Does anyone have joint pain? If so, what do you do for the pain?

Also, we are planning on traveling back East to see my daughter perform in an opera in mid-November. It's a long flight, so does anyone have any helpful hints as to how to make things more comfy for him? He gets very uncomfortable sitting up for longer than an hour. He is at the stage where he can walk very very little and is in a wheelchair full time, his left arm has atrophied a great deal, swallowing pills and liquids are hard for him, but regular food is ok still. He cries uncontrollably and yawns all the time which sends his jaw into spasms, and is at below 50% lung capacity now. We are due to travel next month, so I am praying really hard that he is able to go. Any travel tips would be much appreciated.

Also any hints for avoiding viruses besides the flu shot and pneumonia shot?

Wow! I had a lot of questions! I am really excited about his group! I am finding the best information we are getting so far is from other PALS, so I really appreciate you all taking the time to read this and answer....Blessings to everyone in your daily journies, Teej

lunarruna
10-08-2006, 12:02 AM
Teej,
Stretching, massage and range of motion (ROM) exercises are huge therapy for PALS. I give my husband about 4-5 foot massages a day...he is fairly advanced and doesnt move really at all, so needs it. It warms his feet up. He is in a recliner and I sit on the floor in front of him. He gets ROM exercises from aides or PT 5 days a week, and we all massage his neck and shoulders a bunch too. It makes a big difference to his comfort level. Your doc can write a script to order PT....our PT does some massage in addition to the ROM, although I dont think that is actually covered she is just generous with it because she knows how much it helps him.
welcome to the site--good to 'meet' you!!....good luck with everything, Beth


    
   
   
   
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