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View Full Version : Bracelets for ALS Research


Al
10-01-2006, 12:44 PM
Please go to www.cureals.ca and click on the bracelets tab to see a new innovative jewelry item to raise funds for ALS Research and awareness for ALS.

toadzca
10-01-2006, 02:29 PM
Al,
I am a "lurker" here on and off over the years and am also one of the moms helping with Project H.O.P.E. (Helping Open Peoples' Eyes) and the bracelets. We had a wonderful walk yesterday at Fairy Lake in Newmarket despite the weather and sold around 75 bracelets.
So you all know, 100% of the proceeds from the sale of these bracelets are going directly to ALS as we have been very fortunate to have sponsors covering our supply costs and have to date, made and sold over 800 of them! Not bad considering we only just began selling less than 2 months ago.
So thank you for helping to spread the word about our project which we hope will also help spread awareness.
Hope you had as good of a walk at your location as we did.

Cindy

Barbie4
10-01-2006, 08:06 PM
Thank you Al:

Thank you so much Al for sending out the word on the BRACELETS for ALS. I truly appreciate it. The bracelets are beautiful and when I look at mine everyday, it reminds me of the person I love , who I wear it for and that there is HOPE.

Cindy, I want to thank you and the other ladies who came up with this idea and have worked non stop to keep the flow of bracelets going. It has meant so much to Gail, words are not enough to tell you. It means so much to me.

I just hope in my heart, that soon the funds raised through the walks and other research fundraising initiatives, will provide enough funding to find a cause and a cure for ALS.


Barbie xo :)

fl4ian
10-11-2006, 01:08 PM
is there an "official" rubber/silicone bracelet for ALS?

paula B
10-11-2006, 09:29 PM
Yes there is a braclet like you spoke of,,you can order it online through als assosiation

fl4ian
10-13-2006, 10:34 AM
i saw one that was purple, one that was red that said "strike out als" and another red one that said "never give up".

I was wondering if there was an "official" one. personally, i like the never give up one better than the strike out one. so maybe i'll make my preference official. :)

Al
10-13-2006, 01:28 PM
ALS Ontario has a purple one with the words Hope 4 Life on it. The red ones are from a lady in California I believe. I think she started it as a private venture and it took off so ALSA is selling them too. I think her name is Marian Rozzen or Rossen. I don't think there is an Official OFFICIAL one. I went to the ALSA website and theirs is Strike out ALS in red. So take your pick. AL.

Al
10-29-2006, 02:28 PM
Hello Jinglefork3. You give no information if you are an ALS patient and no idea where you are from. Do you work for this company. If so your post will be removed. I am sure if we need bracelets we can find out where to get them without advertising from a seller here. If I'm wrong I apologize but suggest you contact either David or myself asap. al.pettit@alsforums.com or a private message on here. AL.

Barbie4
11-29-2006, 08:33 AM
The January issue of Canadian Living has an article on the crystal bracelets Gail's friends are making for her and ALS research. So far 76 bracelet sales from the article. Isn't that great? Great for awareness and for research

Barbie:-D

paula B
12-05-2006, 05:15 PM
That is great Barb, keep up the good work.
how
ya doing?
paulab

Barbie4
12-07-2006, 05:35 PM
Hi Paula:

Sorry it has been so long. Way too much going on right now. Hope you are well.
My friend is still progressing, what we feel, very quickly. It has been very hard, to say the least.

The bracelets are still flying. Marilyn Dennis showed them on CityLine (which is like a daytime Martha Stewart type show in Toronto) and after the show, Gail and Tim got 50 orders. They had their first order to the Yukon (WAY UP IN NORTHERN CANADA) Maybe it was Santa ordering one, we are not sure ha ha.

I went to my first "beading party" the other night. Fifteen of Gail's friends and their friends and neighbours get together eat nachos and bead, bead, bead!!! It was really fun. I am not a naturally crafty person, but I am good at attaching the bracelets on to the awareness cards. It really gives Gail a boost to see all of the support and hopefully these beautiful bracelets will bring alot of awareness of ALS.

Well, I better go and make supper. The kids are outside playing in our first major snowfall and my husband is probably mutilating the driveway with his NEW snowblower, YIKES. Boys and their toys eh!!!! The darn snowblower is so big, I am afraid of it. ha ha hee hee

talk again soon,

Barbie xo :)

srostad
12-08-2006, 01:04 AM
A good friend of my mother (age 47) was diagnosed with ALS one year ago. Never in my life have I been so affected with the effects of a disease to this degree. A man that was once a very active father of three young children has just recently had his feeding tube inserted. I have spent the last few years away at collage, away from my parents. In this one year my mother's friend has gone from a healthy active man, to an active man who can no longer speak clear enough for her to understand, or swallow food on his own. In reply to the person who wrote about the article in Canadian Living, I agree!! I bought bracelts for my mother, myself and my 2 sisters. This can happen to anyone! I think we all get so caught up in our lives we forget it is so fragile. Please help to find a cure for ALS! Buy a bracelet, or do a walk, or a run, or anything that will give funding to finding a cure.
Shannon

trustinggod
12-08-2006, 01:14 AM
Hi Barbie,
I wanted to let you know that I/we used your friend Gails bracelet idea for my friend Linda. As you probably already know, Linda passed away three weeks ago today.
About a month before she died I showed her the beautiful bracelet Gails friends made for her and asked Linda if she would like for me and her other friends to do the same.
Well as usual Linda didn't want to "make a big deal" about herself so I put the idea away. After she died I thought it would be a great way for her friends and family to remember her and raise awareness and funds for the local ALS association. Linda's daughter and sister went out the next day and choose the beads and charm and began making 50 bracelets. Three of us donated the funds for the start up materials so that all the money from the sale of each bracelet would go to directly to ALSA-OC. We've now made and sold an additional 25! All this in 3 short weeks and we have $2,000.00 to donate. An added benefit is the bond it's created in our little community as we see eachother throughout the days and weeks in the grocery store, bank, hardware store, etc. with our "Linda bracelet".

I hope your friend is doing well.
Jeanne

rolark
12-08-2006, 07:59 AM
Hi there,

My name is Tim Gould - Gail's husband

I am thrilled that you used our idea and made bracelets of your own. We are getting close to the 2000 mark - Unbelievable for an idea that I questioned selling 200. I kept saying " We don't know 200 people " but with the help of our friends, volunteers, newspaper articles in the Era, and Toronto Sun and now Canadian Living magazine and CityLine TV show they are going at about 50 per day!

Now our new objective is 3000 ! All the Canadian literature on ALS says there are 3000 Canadians suffering from ALS. I think it would be an amazing achievement to sell a bracelet for every Canadian that has ALS. Just like our card says "spreading awareness one person at a time."

I would love to buy one of your bracelets and see it as well as help support your fundraising efforts.

Please email me and let me know how I can get one!

Tim
www.CureALS.ca

Barbie4
12-08-2006, 10:37 AM
Jeanne:

I also think it is great that you have adopted the bracelet idea in memory of your friend Lynda. Good for you. Yes, these bracelets mean so much. It has given all of Gail and Tim's friends, family, and neighbours a chance to help make a difference and has really brought the community together. Gail certainly has no doubt how many people love her.
I have read many of your posts Jeanne as we have alot in common with this disease.
I am glad to hear that you are still so active in helping to find a cure. Good luck with your bracelets and keep in touch when you can.

Tim, wouldn't it be great to sell enough bracelets for every one suffering from ALS. The beading ladies fingers would be bleeding, but hey, Aim high. ha ha

Barbie :-D

trustinggod
12-08-2006, 02:38 PM
Barbie & Tim,

Thanks for your encouragement. I sent an email to Tim with a picture of the bracelet.
I will continue to check in with you all here from time to time. I am praying about where God will use me now that I am free. It has been a difficult few weeks adjusting to a new daily purpose. I have four children and have many interests and so many projects I plan to complete but somehow I feel "stuck" and not ready to totally move on. I can't really explain it well. I sometimes think that I don't want to waste what I learned helping with Linda's life and death and should help others who are traveling that same road. But then again what works for one person may not be right for another.

I pray that the cure will be found soon and this disease will stop.
My heart and prayers are with you both and Gail.

Jeanne

trustinggod
12-21-2006, 02:31 AM
Hi Barbie & Tim,
A couple of weeks ago I sent an email to Tim at the email address listed on the web site for the bracelets. Just wondering if you received it because I have not heard back with where to send the bracelet Tim asked for.

I hope you are both doing fine and enjoying the holiday's.

God Bless you and yours,
Jeanne

Barbie4
12-21-2006, 08:07 AM
Hi Jeanne:

Nice to hear from you. I am not sure if Tim received your email or not, but I do know that on the cureals.ca website, there is now a "bracelet recipe" on how to make your own bracelets. There is also a picture of your bracelet on there, and it is beautiful. I would like to buy one as well. Why don't you private message me with the address of where I can send a cheque and who to make it out to. I will give you my address too, so that you can send me one, if that is okay.

I hope you have a wonderful holiday season and find some joy with your family this year.

Barbie :)

trustinggod
12-27-2006, 04:06 PM
Hi Barbie,

Thanks for your reply. I sent the bracelet to you last week. I hope you receive it within the next week. Please let me know that you did.

I hope you and your family had a nice Christmas and will enjoy the new year.

Jeanne

Barbie4
12-27-2006, 04:36 PM
Hi Jeanne and Happy Holidays

Thank you for sending me a bracelet, I will send you a quick note when I receive it.

I will wear it proudly. Please private message me with an address to send a cheque and amount.
Thank you again and I hope your Christmas was a happy one.

Barbie ;)

trustinggod
12-27-2006, 08:23 PM
Barbie,

No need to send a check, consider it a gift from the heart of one friend to another.

Happy New Year to you and yours.

Jeanne

Al
04-29-2007, 01:38 PM
Hi folks. I just heard that Tim and Gail presented a cheque for $50,000 to the Foundation and ALS Ontario has agreed to allow bracelet sales at their walks with monies going to ALS Ont. Congratulations to Tim, Gail and Barbie4 and the rest of the volunteers that made this possible.
AL.

CindyM
04-29-2007, 06:03 PM
Wow! Nice to see the efforts of these dedicated folks pay off! Cindy

Frizzel
04-29-2007, 10:52 PM
$50,000?!!!! Now that's what we can do if we pull together! Keep it up!

paula B
05-01-2007, 07:16 AM
Awesome job guys
Keep it up

Paulab
PS
the bracelets are gorgious tooooooo,,,i have one.

rolark
05-02-2007, 01:19 PM
We are very excited about the upcoming Walk for ALS events this spring.

We were in Cobourg this weekend at the Walk for ALS and we have Stratford, Newmarket and Ottawa coming up.

We get a warm reception to the bracelets - but its always the ripple effect when someone shows it to a friend that really brings in the research money.

Our goal was to sell a bracelet for every one of the 3,000 Canadians with ALS. The Cobourg walk pushed us over 3,100 . We will keep selling them as long as our wonderfully supportive friends and community keep making them! And more importantly... until there is a cure!

Tim Gould

rolark
02-14-2008, 01:39 PM
We have now sold over 4,000 ALS Bracelets and have donated $80,000 for ALS Research.

Research is HOPE

Tim Gould
www.CureALS.ca

MarciaA
02-16-2008, 02:21 PM
That's fabulous!!! Besides this site, how are you getting the word out about the bracelets? Also, how are you managing the cost of the beads? Are you getting a local buisiness to sponsor it? Congrats on the $80,000! That's VERY impressive!

Marcia

rolark
02-19-2008, 09:44 AM
That's fabulous!!! Besides this site, how are you getting the word out about the bracelets? Also, how are you managing the cost of the beads? Are you getting a local buisiness to sponsor it? Congrats on the $80,000! That's VERY impressive!

Marcia

We started out selling to friends, then our beading friends sold to thier friends. We looked for publicity anywhere we could find it... our local paper, Running Room Magazine, and most effectively an article in Canadian Living Magazine. They can all be seen on the media page of www.CureALS.ca Also a Toronto TV show picked up the idea; CityLine featured the bracelet Christmas 2006 as a charitible gift under $50 More recently we have worked with ALS Ontario selling bracelets at various Walk for ALS locations. Our website was a great tool. It cost me $100 to set up and it allowed people from all over the world to buy the bracelet with ease. We have sold to Belgium, Italy, Alaska, California, New Zealand, and everywhere in between. The beads all come from US Retailers - I have tried to buy locally but can't beat the prices. Our friends get together at our house every so often for a beading party. Gail loves to see everyone. It really lifts her spirits to be surrounded by friends. Our beaders really get a sence of giving by making the bracelets and being part of the fundraising.

Tim

Sandee
02-20-2008, 06:06 PM
I was so devstated last week when one of my dearest friends announced that he had been diagnosed with ALS. I cried all of last week and now I am motivated to do something and I thought of a rock-a-thon (the rocking chairs) to raise funds for ALS. I'M in a very small town and I am going to our local paper tomorrow to tell abit about it and was just looking here for comments. Do you all think that would be a good fundraiser or not?

Sandee

p.s. Love the bracelets!


    
   
   
   
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