bngomom
09-23-2006, 10:58 PM
"als for one year, but just diagnosed for sure at university in st louis---started with stiffness in hips and progressed to legs and arms---just now getting labored breathing---would like some info breathing progression--also first real notice of choking---have muscle pops all over body---very intense skeletal pain and muscle burn---pain increased as als progressed----difficult for family, but am blessed with wife who is rn and treats me with patience and kindness---this is my first discussions with other als---hard to discuss this illness without sounding like a snivel."
This forum is a place to snivel if you want.
Since you are in the St. Louis area I would urge you to join the Newly diagnosed support group. I gave been going over two years and it has been a blessing. You meet the nicest people and can see the different stages. No one is alike. We meet the second Tuesday of the month at 1 PM at the Siteman Cancer Center. This is probably where you see your neuro. Please come. It is sponsered by MDA.
This forum is a place to snivel if you want.
Since you are in the St. Louis area I would urge you to join the Newly diagnosed support group. I gave been going over two years and it has been a blessing. You meet the nicest people and can see the different stages. No one is alike. We meet the second Tuesday of the month at 1 PM at the Siteman Cancer Center. This is probably where you see your neuro. Please come. It is sponsered by MDA.
