Methylcobalamin - research promising in slowing progression

[papaw50]

Hello to all,
I've been on the computer almost every day since my husband was dx with als in June '06. I can see where one has to be careful NOT to fall for scams, etc.
Yesterday, I read on someone's post about Methylcobalamin and did my own research and I'm excited!

One quote from the research article..."Methylcobalamin should be considered for the treatment of any neurological disease. For example, based on its unique mechanisms of action, methylcobalamin could be effective in slowing the progression of untreatable diseases such as ALS".

Most of the scientific studies in this article were conducted in Japan. This is a natural and affordable therapy. I couldn't find it yesterday at our local drug store. I am going to look again today at Walmart. This is a form of B12. They recommend taking 25mg a day. It does not stop the disease, only slows it down. The study showed that methylcobalamin imporved muscle response after a month of treatment. A remarkable reversal of degenerating nerves occurred.

I'm excited! I called my husband at work to give him the good news. We're anxious to get started on this therapy. We will keep you posted monthly as to his results.

Anyone else ever hear of this vitamin? anyone taking this vitamin?

Patty

[Al]

If you do a search on Methylcobalimin up top here you will see that some people tried it and have not posted great results yet so don't get your hopes up too high. If it hasn't hit mainstream then it was probably found to be unreliable or ineffective. AL.

[TRACY22]

Most posts of studies are pre 2002 that i have found. Test groups of 2,4 and 6 people are the bases of the claims. If anyone can find large scale studies and reports, i would appreciate.

[Al]

There was a guy on forum last year that was going to start taking it. I've sent a message to him for first hand experience. I trust this guy's opinion and will report back when I hear from him. AL.

[MarkNH]

I've just started taking it...we'll see how it goes. I have drawer's full of supplements that don't work for me. And a bunch that do! Methyl is anecdotally as effective as Rilutek, a whole lot cheaper, and has no apparent toxic effects. I did a little survey on another site and found that this particular form of B-12 is one of the few things that helped the pals that are taking it, but the dosages taken are from 10 to 50 mg, not mcg.
MarkNH

[lgilfish]

Hi
This is my first time on this site since being diagnosed 3 weeks ago and I just want to talk to someone about where to begin some research on anything that may help slow down this disease - any help would be appreciated - I'm in the Chicago area (LaGrange) 55 yr old female

thanks

Linda

[Al]

Hi Linda. Welcome to the site. There isn't much that really works. Rilutek is the only FDA approved drug and has anywhere from a 3 month benefit to God knows how long depending on what theory you subscribe to. Different supplements that others are taking can be found in the search feature. Co ezyme Q10, Creatine ,Vit C, Vit E, B12 are some of them. There are lots of others. Don't be swindled by the con artists that will sell false hope with expensive supplements. If you can't buy it in a regular health store and even that is no guarantee, then it is probably overpriced and not worth the money to print the label on it. AL.