- How to know it is time for hospice
- Question about dressing
- Problem with pills in feeding tube
- Blessed
- lung function
- Weedeating with ALS
- long distance "caregiver" (adult child)
- ok~ I need help
- Stand assist lift
- Pool exercises
- PALS tilting in chairs
- PALS fell while trying to mow the yard
- First post
- Hoyer Lift
- ringing in the ears?
- Prayers Needed
- 1st Post
- MDA ALS Caregivers Guide
- Just some tips please
- Cooking for One and other stuff . . .
- Caregivers' Guide
- Trying to help my father...
- nightmares
- Night Owls?
- cost of vent and trach
- New diagnosis; where to turn?
- FINALLY..Getting Some Helpful Info
- Compassion, where did it go?
- Thank You to my Loving Wife
- Tired and Frustrated
- Choking/gagging w/ Bipap
- Looking for ideas
- Any other primary caregivers to their spouse?
- Very frustrated
- What's ahead?
- Loss of Voice
- Caregiver taken for Granted!
- They told us to call Hospice
- New caretaker...what to expect?
- Physical Therapy
- Tribute to the PAL mom's that have passed
- Need a Site to Order Clothes
- Exhausted
- Suggestions for transporting wheelchair?
- BiPap as "life support"
- new to posting but not to ALS...questions for those who have BTDT
- Medicare Nightmare
- is als painful?
- ALS Ambassador program -- ALS TDI
- I miss my mom terribly
- Wishing for a crystal ball (if not a miracle)
- PEG Tube a Raging Success - so far...
- scared at night
- bipap mask troubles...
- No blood for blood test
- frustrated not being with my sister
- So frustrated with my pals
- Help - Where do PALS sit all day
- Help - Going to Bathroom
- Smile
- Romantic Evening Ahead
- something odd
- Caregivers Don't forget to care for yourselves!
- Caregiver Resentment
- I feel so useless, the end seems frighteningly close now
- Reaction to change in temperature
- Need neck brace for drop head.
- Night Fears
- Helpful Aides
- Feeling lost , Friends
- Just looking for some support....
- Spreading the word about FTD and ALS
- accepting homecare?
- Looking to your special PALS for Support?
- Loved Ones Refusing Treatment
