Old 05-26-2009, 12:41 PM #1 (permalink)
Member
 
Join Date: 2008
City: columbus
State: oh
Country: US
Interest: undx at this time
Posts: 211
CB1977 is on a distinguished road
CB1977 CB1977 is offline
Member
Join Date: 2008
City: columbus
State: oh
Country: US
Interest: undx at this time
Posts: 211
CB1977 is on a distinguished road
Default Iplex

Does anyone know if this is showing any promise?

Here is an article off of the ALS website. If the FDA approved it, it has to have some benefit, correct?

http://web.alsa.org/site/PageServer?...Archive_031009
CB1977 is offline  
Old 05-26-2009, 01:27 PM #2 (permalink)
joelc's Avatar
Moderator
Forum Moderator
 
Join Date: 2006
City: Abbotsford
State: BC
Country: CA
Diagnosed: 09/2005
Interest: I have been diagnosed with ALS.
Posts: 2,802
joelc is on a very distinguished road
joelc joelc is offline
Moderator
Forum Moderator

joelc's Avatar
Join Date: 2006
City: Abbotsford
State: BC
Country: CA
Diagnosed: 09/2005
Interest: I have been diagnosed with ALS.
Posts: 2,802
joelc is on a very distinguished road
Default

It has only been approved for trials. There is a lot of information about it and nothing sounds too promising.
joelc is offline  
Old 05-26-2009, 01:51 PM #3 (permalink)
Member
 
Join Date: 2008
City: columbus
State: oh
Country: US
Interest: undx at this time
Posts: 211
CB1977 is on a distinguished road
CB1977 CB1977 is offline
Member
Join Date: 2008
City: columbus
State: oh
Country: US
Interest: undx at this time
Posts: 211
CB1977 is on a distinguished road
Default

I have no knowledge in the medical field so forgive me if what I am about to say is grossly incorrect. I am only a banker It would seem to me that every other desease out there that they found an actual cure to they had to find the cause first. Cancer is maybe the exception but I think that they have not found an actual cure to cancer, just a way to put it into a sometimes permanent remission because it seems like often it ends up coming back sooner or later and I have heard people that had cancer say that once you have cancer you always have cancer? Does anyone know of a desease that they cured without finding out the cause? The approach seems backward to me? How close are they to finding a cause for ALS, do they even have any ideas? I see a lot about treatments, trials , ect but it seems like I don’t see as much discussion about scientists doing studies to find the actual root cause? If someone has some knowledge on this or some links, can you pass this info to me. Thank-you so much!

CB1977
CB1977 is offline  
Old 05-30-2009, 10:14 PM #4 (permalink)
Member
 
Join Date: 2009
City: Fairfield
State: Montana
Country: US
Diagnosed: 12/2008
Interest: I have been diagnosed with ALS.
Posts: 322
Big Mike is on a distinguished road
Big Mike Big Mike is offline
Member
Join Date: 2009
City: Fairfield
State: Montana
Country: US
Diagnosed: 12/2008
Interest: I have been diagnosed with ALS.
Posts: 322
Big Mike is on a distinguished road
Post stem cells

Hi CB1977,

Without really knowing the true cause of the disease at this time, the only thing I can think of that could potentially slow the disease down significantly (in term of several years or more) is by replacing dying neural cells with differentiated motor neurons and glial stem cells. There may be a clinical trial starting later this year with a company called Neuralstem that hopefully will provide substantial results. Only time will tell.
Big Mike is offline  
Closed Thread

Tags
als, alsa, fda, website


Currently Active Users Viewing This Thread: 1 (0 members and 1 guests)
 
Thread Tools Search this Thread
Search this Thread:

Advanced Search

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Trackbacks are On
Pingbacks are On
Refbacks are Off

Similar Threads
Thread Thread Starter Forum Replies Last Post
Iplex Lorie ALS Drug Trials 9 06-20-2010 11:10 PM
IPLEX for the rest of the world? rocmg ALS Research News 13 06-10-2009 03:56 PM
Is Iplex any good? pebbles General Discussion About ALS/MND 6 06-01-2009 03:05 PM
Italians are using Iplex for ALS urikc General Discussion About ALS/MND 20 05-31-2009 09:51 AM
Iplex! comfortable with ALS General Discussion About ALS/MND 14 03-14-2009 01:05 PM
Insmed's Iplex drug Sparty2 ALS Research News 5 03-10-2009 04:50 PM
Iplex Protocol ? Shane the Pain General Discussion About ALS/MND 1 01-16-2009 03:43 PM
March in DC for Iplex 11/11/08 andyvaughn Event Announcements 3 10-09-2008 01:25 PM
Iplex claudiamedic ALS Drug Trials 2 08-28-2008 02:44 PM
IPLEX Petition gbrown General Discussion About ALS/MND 2 08-16-2008 06:55 PM


All times are GMT -5. The time now is 03:23 AM.

 

Who we are

"We are a volunteer-driven online community that originated in 2003. We are a resource for anyone affected by ALS and MND. We are a community of like-minded and compassionate individuals. Together we are the ALS Forum and together we build this online resource and online community."

 

Want to help?

Have you found our website helpful? Do you enjoy having a place to talk to people that are knowledgeable about ALS and MND? If you have found it helpful to chat with people at different stages of the ALS/MND journey we encourage you to get involved.

Copyright © 2016