Old 04-14-2009, 01:39 AM #16 (permalink)
New Member (Say Hi)
 
Join Date: 2009
City: Covington
State: LA
Country: US
Interest: I am a friend of someone with ALS/MND.
Posts: 1
heartsafire2009 is on a distinguished road
heartsafire2009 heartsafire2009 is offline
New Member (Say Hi)
Join Date: 2009
City: Covington
State: LA
Country: US
Interest: I am a friend of someone with ALS/MND.
Posts: 1
heartsafire2009 is on a distinguished road
Default

Well, i know treatment with adult stem cells is working for a guy with ALS. He is from Kentucky and has seen great improvement. Although this is not a cure for ALS, I do believe it works.
-R
heartsafire2009 is offline  
Old 04-14-2009, 02:58 AM #17 (permalink)
Member
 
Join Date: 2009
City: Fairfield
State: Montana
Country: US
Diagnosed: 12/2008
Interest: I have been diagnosed with ALS.
Posts: 322
Big Mike is on a distinguished road
Big Mike Big Mike is offline
Member
Join Date: 2009
City: Fairfield
State: Montana
Country: US
Diagnosed: 12/2008
Interest: I have been diagnosed with ALS.
Posts: 322
Big Mike is on a distinguished road
Default Neuralstem

t34gib,

I am as frustrated with the Bush Administration as anyone, but there is a company called Neuralstem that has spent this past decade working on adult stem cells as treatment for ALS (nothing to do with embyronic stem cells, which Bush banned the federal funding of until Obama recently removed it) and is hoping to start clinical trials here in the U.S. later this year.

Although it's true it would take several years for the FDA to approve this new type of stem cell technology (cells are differentiated into motor neurons and glial cells), the company has formed a partnership with a Chinese hospital in Taiwan. The trials there will follow the initial trial here in America by 6-9 months but will go much faster. Assuming the treatments are proven safe and effective, they could be made available in Taiwan in three years or so from NOW. Yes, that's still a long time, but it is much better than waiting 5 years or more here in the states.

There is lots of information regarding Neuralstem on the forums here.
Big Mike is offline  
Old 04-14-2009, 03:06 AM #18 (permalink)
Member
 
Join Date: 2009
City: Fairfield
State: Montana
Country: US
Diagnosed: 12/2008
Interest: I have been diagnosed with ALS.
Posts: 322
Big Mike is on a distinguished road
Big Mike Big Mike is offline
Member
Join Date: 2009
City: Fairfield
State: Montana
Country: US
Diagnosed: 12/2008
Interest: I have been diagnosed with ALS.
Posts: 322
Big Mike is on a distinguished road
Smile Don't Give up Hope

As Joel has said, please don't give up hope, folks. Some type of treatment or treatments is bound to break through in the next few years, even if it first becomes available overseas (think fundraising!). And, remember, ALS is not necessarily fatal if it is fully treated!
Big Mike is offline  
Old 04-14-2009, 12:05 PM #19 (permalink)
New Member
 
Join Date: 2009
City: Rockford
State: Michigan
Country: US
Diagnosed: 10/2008
Interest: I am a caregiver for someone with ALS/MND.
Posts: 14
tgif is on a distinguished road
tgif tgif is offline
New Member
Join Date: 2009
City: Rockford
State: Michigan
Country: US
Diagnosed: 10/2008
Interest: I am a caregiver for someone with ALS/MND.
Posts: 14
tgif is on a distinguished road
Default

Thanks to everyone for reminding us all not to give up hope! I was feeling a bit down today; must be the cold, rainy weather we're having in MI today. One of my nurse friends told me that if they figure out one of the neuro diseases the rest will quickly follow. We all check out what's happening with ALS, but like someone said (can't remember who, sorry!), the cure might come from an unexpected source!
tgif is offline  
Old 03-15-2010, 12:48 PM #20 (permalink)
New Member (Say Hi)
 
Join Date: 2010
City: New York
State: NY
Country: US
Diagnosed: 05/2005
Interest: I have been diagnosed with ALS.
Posts: 2
leedavis is on a distinguished road
leedavis leedavis is offline
New Member (Say Hi)
Join Date: 2010
City: New York
State: NY
Country: US
Diagnosed: 05/2005
Interest: I have been diagnosed with ALS.
Posts: 2
leedavis is on a distinguished road
Default Re: Adult Stem Cells Help Cure

Quote:
Originally Posted by planningguy View Post
I am constantly amazed by advances in science and technology. It really is a wonderful world we live in. I think the coming years will bring tremendous advancements in various types treatments derived from stem cell research. Although we know more everyday, everything I've read seems to indicate that readily available proven treatments are still a ways out.

Rest assured, though. I am pretty confident that once someone figures out a way to effectively treat or even cure motor neuron disease, even if it involved significant side effects, it would be shouted on every housetop. It would be hard to miss the announcement. Especially on this forum

Robert
Yes I definitely agree with you. Stem cell research and development will surely be a great option and tool to improve more methods to cure neuron ailments and much more. Let's just hope that there are no long-term side effects and that the procedure will be stable as soon as possible. But as of this moment, stem cell transplant for neuron oriented diseases is not yet pushed through.
leedavis is offline  
Old 03-30-2010, 09:41 PM #21 (permalink)
peter57's Avatar
Member
 
Join Date: 2009
City: Millicent
State: S.A.
Country: AUS
Diagnosed: 10/2008
Interest: I have been diagnosed with UMND/PLS.
Posts: 434
peter57 is on a distinguished road
peter57 peter57 is offline
Member
peter57's Avatar
Join Date: 2009
City: Millicent
State: S.A.
Country: AUS
Diagnosed: 10/2008
Interest: I have been diagnosed with UMND/PLS.
Posts: 434
peter57 is on a distinguished road
Default Re: Adult Stem Cells Help Cure

There was an interesting article on TV last night here about Stem Cells.

In it they followed a young girl with a sight issue as she went and had treatment. Afterwoods her parents said she had improved her eyesight, however testing before and afterwoods didnt reflect an improvement.

They also focused on a doctor in the states, forget his name, who practiced out of the country a couple of times a month with stem cell treatment. (for a fee)

The short story with him was that he put a lot of pressure on a patient ( a plant with a hidden camera) to have the treatment, there and then, discounted some reports of side effects etc with other patents.
When confronted by the reporter later, and shown the film, became very defensive etc.

My summery of it is.

No mention of MND as a condition that they treat.
Still many claims of success in several clinics (the usual ones we hear about) but didnt see any actual people who had improved.
Lots of good research going on in the world as we speak (they got some comments from a couple of labs etc) but they are still a bit away from resolving some issues.

So as many have said on this forum, it is comming, but not quiet here yet. hopefully the trials that are happening currently, shed some light on a treatment/ cure in the future using Stem Cells.

Please note again these are my views of the programm and i am not a doctor, only a PALS hoping for a cure/ treatment for us all.

Cheers
Peter
peter57 is offline  
Closed Thread

Tags
cure, information, stem cells


Currently Active Users Viewing This Thread: 1 (0 members and 1 guests)
 
Thread Tools Search this Thread
Search this Thread:

Advanced Search

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Trackbacks are On
Pingbacks are On
Refbacks are Off

Similar Threads
Thread Thread Starter Forum Replies Last Post
The Stem Cell Cure to ALS Wjameslane ALS Research News 16 09-30-2014 08:55 AM
Embryonic-like cells created from mouse stem cells John1 ALS Research News 3 01-29-2014 04:07 PM
My dad had Stem Cells treatment carefiesta General Discussion About ALS/MND 17 08-07-2012 01:03 PM
More on Stem Cells and Ted sadiemae ALS Research News 5 08-06-2012 06:17 PM
Stem cells? Phil M People With ALS - "PALS" 11 11-18-2010 10:57 PM
Adult Stem Cells digdan General Discussion About ALS/MND 17 06-21-2009 10:23 AM
Stem Cells minava01 ALS Research News 5 07-11-2008 01:58 PM
stem cells dona jean General Discussion About ALS/MND 15 03-01-2008 09:38 AM
Stem Cells Bluenadski General Discussion About ALS/MND 2 09-27-2007 10:14 AM
Stem Cells Shed Light on ALS Cure Mike27 ALS Research News 2 05-18-2007 11:18 AM


All times are GMT -5. The time now is 07:01 AM.

 

Who we are

"We are a volunteer-driven online community that originated in 2003. We are a resource for anyone affected by ALS and MND. We are a community of like-minded and compassionate individuals. Together we are the ALS Forum and together we build this online resource and online community."

 

Want to help?

Have you found our website helpful? Do you enjoy having a place to talk to people that are knowledgeable about ALS and MND? If you have found it helpful to chat with people at different stages of the ALS/MND journey we encourage you to get involved.

Copyright © 2016