US ALS Registry at the CDC - Annual Meeting Blackout

[rknt50a]

ALS Advocacy: Transparency Is The Friend of Good Public Stewardship

Please read and consider and send a quick email to the address in the blog to request that the CDC provide a live stream of the annual meeting.

Thank you very much. The project has been outrageously expensive ($70mil plus by now) and needs more sunshine, not less.

 

[lgelb]

For those interested, the latest ms from the Registry is available here.

 

[rknt50a]

Thank you. That report is a great example of a tremendously expensive project that has delivered "so?" results.

Please email [email protected] if you think that the annual meeting should be live streamed. We need for people to speak up so that more light will shine on the oversight and effectiveness of the world's most expensive disease registry.

Thanks very much.

 

[patoyeah]

Thank You - pat