maryhahnward
Distinguished member
- Joined
- Jun 17, 2009
- Messages
- 445
- Reason
- CALS
- Diagnosis
- 06/2010
- Country
- US
- State
- NC
- City
- Wilmington
We were at Dr. Bedlack's Duke ALS Clinic yesterday. Dr Bedlack is involved in three studies in a few months.
1. Lunasin - which he seemed optimistic about. This is a one year study with three visits over the course of a year.
2. Anti-eplectic drug - he didn't say the name of it. This is a 12 week study with six visits required to the clinic. He seemed highly interested in this one as well.
3. Biomarker which will consist of a blood test and spinal tap. Honestly I forget exactly what it is they will be looking for because it was such a busy day at the clinic for us. I mention it because maybe there is some interest amongst the members.
He is also highly interested in the vitamin D levels and tested my husband for this yesterday. if they are low he will prescribe him a supplement and we will see if there is any quieting of symptoms.
We have been going to the Duke clinic since 2010 and we have never seen the staff with as much optimism as we did yesterday.
1. Lunasin - which he seemed optimistic about. This is a one year study with three visits over the course of a year.
2. Anti-eplectic drug - he didn't say the name of it. This is a 12 week study with six visits required to the clinic. He seemed highly interested in this one as well.
3. Biomarker which will consist of a blood test and spinal tap. Honestly I forget exactly what it is they will be looking for because it was such a busy day at the clinic for us. I mention it because maybe there is some interest amongst the members.
He is also highly interested in the vitamin D levels and tested my husband for this yesterday. if they are low he will prescribe him a supplement and we will see if there is any quieting of symptoms.
We have been going to the Duke clinic since 2010 and we have never seen the staff with as much optimism as we did yesterday.