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lgelb

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From: Steve Perrin (ALS TDI) <[email protected]>
> Subject: Volunteers Needed for Precision Medicine Program
> Date: August 11, 2014 at 3:06:16 p.m. CDT
>
> YOU ARE NEEDED!
> The first ever integrated, precision medicine effort to end ALS!
>
> The ALS Therapy Development Institute is conducting a tissue sample collection study as part of the first ever integrated precision medicine effort to end ALS. The precision medicine program at ALS TDI encompasses much of what would commonly be called a "translational medicine program" used at academic and pharmaceutical companies alike to accelerate drug discovery and development. However, our program has been designed to include several additional steps and patient-integrated measures which we believe may positively impact speed and the quality of the data produced.
>
> We are asking YOU - people living with ALS - to participate in this study by donating tissue samples and sharing your medical history. Your information will be used to characterize the disease in a way that has never been done before. Using an integrated precision medicine approach and cutting-edge technology - and YOUR help - ALS TDI will screen thousands of potential drugs for you and others like you.
>
> As part of this study, you will be asked to donate:
> Skin biopsy
> Blood samples
> Full medical history
> As part of this study, ALS TDI will:
> Sequence your genome
> Create and bank an induced pluripotent stem cell (iPSc) line from your skin biopsy
> Look for biomarkers in your blood sample
> Utilize your iPSc line to search for mechanisms of disease
> Utilize your iPSc line to screen for potential treatments
> Share data and findings with you
> The sample collection site is located at MGH Dermatology Department in Boston, MA. As you know, time is the most important advantage in the battle against ALS. A local collection facility allows for the tightest control over sample transfer and quality.
>
> The goal of this study is to accelerate our mission to identify potential treatments as quickly as possible for people living with ALS today.
>
> If you are a person living with ALS or the caregiver of a person that might be interested in participating in the study, please visit our website for more information.
>
>
>
> ALS TDI
> 300 Technology Square
> Suite 400
> Cambridge, MA 02139
>
 
I'm in .... just signed up
 
Cool Max! Let me know when you are coming to Boston!
 
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