- Joined
- Nov 5, 2009
- Messages
- 14,260
- Reason
- Lost a loved one
- Diagnosis
- 00/0000
- Country
- US
- State
- WA
- City
- Seattle
Is here.
I encourage anyone not in the Registry already to join, though archaic infrastructure has constrained its innovativeness. Data is our best hope of power over this disease.
My husband also participated in the biorepository feasibility study that is mentioned in this report. I would encourage PALS' participation in this study as well, because a national biorepository would be obviously more efficient than the variety that we currently have.
I encourage anyone not in the Registry already to join, though archaic infrastructure has constrained its innovativeness. Data is our best hope of power over this disease.
My husband also participated in the biorepository feasibility study that is mentioned in this report. I would encourage PALS' participation in this study as well, because a national biorepository would be obviously more efficient than the variety that we currently have.
