Old 01-05-2013, 03:56 PM #1 (permalink)
Wings's Avatar
Member
 
Join Date: 2012
City: NZ
State: NZ
Country: NZ
Diagnosed: 07/2011
Interest: I have been diagnosed with ALS.
Posts: 149
Wings is on a distinguished road
Wings Wings is offline
Member
Wings's Avatar
Join Date: 2012
City: NZ
State: NZ
Country: NZ
Diagnosed: 07/2011
Interest: I have been diagnosed with ALS.
Posts: 149
Wings is on a distinguished road
Default Oxygen Therapy

Just keen for any feed back from anyone that may have tried this, or has knowledge about it. I have been researching and to date havn't found anything that would discourage me adding it the list of therapies. I know of one person here who has lymes disease and he takes h two o two -essentially hydrogen peroxide food grade and very diluted daily - he also puts a very small amount in a bath when he takes one and had noticed so many great benefits since starting this over the past few years. Aparently it boosts the levels of oxygen in the body significantly. Im not rushing into this - and may just start with the oxygen "tank' first -but very keen to see if anyone here is trying anything like this.
Wings is offline  
Old 01-05-2013, 04:03 PM #2 (permalink)
Nikki J's Avatar
Extremely Helpful Member
Forum Moderator
 
Join Date: 2012
City: Boston
State: MA
Country: US
Diagnosed: 04/2014
Interest: I have been diagnosed with ALS.
Posts: 6,439
Nikki J has a reputation beyond reputeNikki J has a reputation beyond reputeNikki J has a reputation beyond reputeNikki J has a reputation beyond reputeNikki J has a reputation beyond reputeNikki J has a reputation beyond reputeNikki J has a reputation beyond reputeNikki J has a reputation beyond reputeNikki J has a reputation beyond reputeNikki J has a reputation beyond reputeNikki J has a reputation beyond repute
Nikki J Nikki J is offline
Extremely Helpful Member
Forum Moderator

Nikki J's Avatar
Join Date: 2012
City: Boston
State: MA
Country: US
Diagnosed: 04/2014
Interest: I have been diagnosed with ALS.
Posts: 6,439
Nikki J has a reputation beyond reputeNikki J has a reputation beyond reputeNikki J has a reputation beyond reputeNikki J has a reputation beyond reputeNikki J has a reputation beyond reputeNikki J has a reputation beyond reputeNikki J has a reputation beyond reputeNikki J has a reputation beyond reputeNikki J has a reputation beyond reputeNikki J has a reputation beyond reputeNikki J has a reputation beyond repute
Default Re: Oxygen Therapy

I believe that oxygen can be dangerous as it can decrease your respiratory drive if by "tank" you mean traditional oxygen supplementation that you would breathe in?
Nikki J is offline  
Old 01-05-2013, 04:14 PM #3 (permalink)
Wings's Avatar
Member
 
Join Date: 2012
City: NZ
State: NZ
Country: NZ
Diagnosed: 07/2011
Interest: I have been diagnosed with ALS.
Posts: 149
Wings is on a distinguished road
Wings Wings is offline
Member
Wings's Avatar
Join Date: 2012
City: NZ
State: NZ
Country: NZ
Diagnosed: 07/2011
Interest: I have been diagnosed with ALS.
Posts: 149
Wings is on a distinguished road
Default Re: Oxygen Therapy

Just another question - relating to the above - if anyone has tired oxygen therapy via hydrogen peroxide- how long for, intravenous, or oral -any negative side effects...? to date what i have learnt is that it only has benefits but must be taken very strictly to recommended doses... and used to be used commonly for many medical alignments but because it cant be patented and money made from it, it has had alot of bashing and goes in the quackery box for therapies.
Wings is offline  
Old 01-05-2013, 04:21 PM #4 (permalink)
Wings's Avatar
Member
 
Join Date: 2012
City: NZ
State: NZ
Country: NZ
Diagnosed: 07/2011
Interest: I have been diagnosed with ALS.
Posts: 149
Wings is on a distinguished road
Wings Wings is offline
Member
Wings's Avatar
Join Date: 2012
City: NZ
State: NZ
Country: NZ
Diagnosed: 07/2011
Interest: I have been diagnosed with ALS.
Posts: 149
Wings is on a distinguished road
Default Re: Oxygen Therapy

Hi Nikki -thanks so much and worth considering and researching more... I am considering the "hyperbaric oxygen tank' initially... and until i find out more about hydrogen peroxide therapy i am on hold with it.... (excuse my typos) - apparently it used to be used in medicine for various lung disease etc . I wonder why the tank decreases respiratory drive?
Wings is offline  
Old 01-05-2013, 04:36 PM #5 (permalink)
Ms. Pie's Avatar
Very Helpful Member
 
Join Date: 2011
City: Colorado
State: CO
Country: US
Diagnosed: 10/2010
Interest: I have been diagnosed with ALS.
Posts: 1,800
Ms. Pie is on a distinguished road
Ms. Pie Ms. Pie is offline
Very Helpful Member
Ms. Pie's Avatar
Join Date: 2011
City: Colorado
State: CO
Country: US
Diagnosed: 10/2010
Interest: I have been diagnosed with ALS.
Posts: 1,800
Ms. Pie is on a distinguished road
Default Re: Oxygen Therapy

It sounds pretty hokey to me Wings. ALS is not a lung disease.
Ms. Pie is offline  
Old 01-05-2013, 05:09 PM #6 (permalink)
Wings's Avatar
Member
 
Join Date: 2012
City: NZ
State: NZ
Country: NZ
Diagnosed: 07/2011
Interest: I have been diagnosed with ALS.
Posts: 149
Wings is on a distinguished road
Wings Wings is offline
Member
Wings's Avatar
Join Date: 2012
City: NZ
State: NZ
Country: NZ
Diagnosed: 07/2011
Interest: I have been diagnosed with ALS.
Posts: 149
Wings is on a distinguished road
Default Re: Oxygen Therapy

lol at 'hokey' ms pie.... yes i know hun - to both hokey (rofl) and als not being a lung disease. Its about the whole body being well oxygenated that makes sense to me... im on hold with it for now in particular hydrogen peroxide... until i find out more - most importantly is to find out that it causes no harm. Where it could help re the lungs would be more of a preventative therapy for secondary als symptoms - pneumonia etc -as its is supposed to help clearing of the lungs/lining/any muck (for want of a better word) in the lungs... need to find out more - no harm in asking/researching huh
Wings is offline  
Old 01-05-2013, 08:09 PM #7 (permalink)
momap53's Avatar
Very Helpful Member
 
Join Date: 2011
City: EGA
State: GA
Country: US
Diagnosed: 05/2011
Interest: I have been diagnosed with ALS.
Posts: 1,646
momap53 is on a distinguished road
momap53 momap53 is offline
Very Helpful Member
momap53's Avatar
Join Date: 2011
City: EGA
State: GA
Country: US
Diagnosed: 05/2011
Interest: I have been diagnosed with ALS.
Posts: 1,646
momap53 is on a distinguished road
Default Re: Oxygen Therapy

Check out a web site written by a Neuro nurse who is also a PALS
She has some good explanations
ALS from both sides dot org

Too much inhaled O2 could stop your drive to breathe
momap53 is offline  
Old 01-05-2013, 08:11 PM #8 (permalink)
momap53's Avatar
Very Helpful Member
 
Join Date: 2011
City: EGA
State: GA
Country: US
Diagnosed: 05/2011
Interest: I have been diagnosed with ALS.
Posts: 1,646
momap53 is on a distinguished road
momap53 momap53 is offline
Very Helpful Member
momap53's Avatar
Join Date: 2011
City: EGA
State: GA
Country: US
Diagnosed: 05/2011
Interest: I have been diagnosed with ALS.
Posts: 1,646
momap53 is on a distinguished road
Default Re: Oxygen Therapy

The cough assist, used regularly, is a good means of combating pneumonia
momap53 is offline  
Old 01-05-2013, 11:50 PM #9 (permalink)
Wings's Avatar
Member
 
Join Date: 2012
City: NZ
State: NZ
Country: NZ
Diagnosed: 07/2011
Interest: I have been diagnosed with ALS.
Posts: 149
Wings is on a distinguished road
Wings Wings is offline
Member
Wings's Avatar
Join Date: 2012
City: NZ
State: NZ
Country: NZ
Diagnosed: 07/2011
Interest: I have been diagnosed with ALS.
Posts: 149
Wings is on a distinguished road
Default Re: Oxygen Therapy

thanks momap Happy new year!, great site ive spent sometime there. I cant find where she talks about hydrogen peroxide therapy - I see her sharing her knowledge with regards to bipap.. Hydrogen peroxide therapy is something you have either orally - drink or intraveinously so maybe its different too inhaling the oxygen... it supposedly acts as a therapy to the whole body -not just lungs - lungs is a bonus hence it supposedly having great results with lung diseases. I need to research more and particularly the potential to reduce respiratory drive -that would not be good. Just hoped a few ppl here may already know about it.
Wings is offline  
Old 01-06-2013, 07:21 AM #10 (permalink)
Nikki J's Avatar
Extremely Helpful Member
Forum Moderator
 
Join Date: 2012
City: Boston
State: MA
Country: US
Diagnosed: 04/2014
Interest: I have been diagnosed with ALS.
Posts: 6,439
Nikki J has a reputation beyond reputeNikki J has a reputation beyond reputeNikki J has a reputation beyond reputeNikki J has a reputation beyond reputeNikki J has a reputation beyond reputeNikki J has a reputation beyond reputeNikki J has a reputation beyond reputeNikki J has a reputation beyond reputeNikki J has a reputation beyond reputeNikki J has a reputation beyond reputeNikki J has a reputation beyond repute
Nikki J Nikki J is offline
Extremely Helpful Member
Forum Moderator

Nikki J's Avatar
Join Date: 2012
City: Boston
State: MA
Country: US
Diagnosed: 04/2014
Interest: I have been diagnosed with ALS.
Posts: 6,439
Nikki J has a reputation beyond reputeNikki J has a reputation beyond reputeNikki J has a reputation beyond reputeNikki J has a reputation beyond reputeNikki J has a reputation beyond reputeNikki J has a reputation beyond reputeNikki J has a reputation beyond reputeNikki J has a reputation beyond reputeNikki J has a reputation beyond reputeNikki J has a reputation beyond reputeNikki J has a reputation beyond repute
Default Re: Oxygen Therapy

Hi again Wings
I think we are talking about different things. oxygen (O2) decreases respiratory drive.
Hydrogen peroxide (H2O2) is a different molecule. There is some dicussion about possible protective effect on motor neurons on the web but I did not find any strong research supporting it.
Re hyperbaric chamber ALS Untangled is looking into it but no conclusion as yet.
Take care
Nikki
Nikki J is offline  
Old 01-06-2013, 04:05 PM #11 (permalink)
Senior Member
 
Join Date: 2011
City: OO
State: OO
Country: OO
Interest: OOOO
Posts: 640
kiwisally is on a distinguished road
kiwisally kiwisally is offline
Senior Member
Join Date: 2011
City: OO
State: OO
Country: OO
Interest: OOOO
Posts: 640
kiwisally is on a distinguished road
Default Re: Oxygen Therapy

Wing, about 6 months ago a local GP gave me the contact details of a Doctor in Auckland who was offering hyperbaric chamber sessions. The GP's wife had MS and had taken treatment with this doctor at one point. He made no comment about her experience. The GP was, at that time, in contact with a MND patient who was taking treatment and who reported "they felt the treatment was helping". I no longer have the contact details but they had been offered for a few years and there was information about the treatments and contact details on line so I reckon they still are and you might be able to find them using MS as one of the search choices. Sorry, that is all I remember about it.
kiwisally is offline  
Old 01-07-2013, 04:26 PM #12 (permalink)
Wings's Avatar
Member
 
Join Date: 2012
City: NZ
State: NZ
Country: NZ
Diagnosed: 07/2011
Interest: I have been diagnosed with ALS.
Posts: 149
Wings is on a distinguished road
Wings Wings is offline
Member
Wings's Avatar
Join Date: 2012
City: NZ
State: NZ
Country: NZ
Diagnosed: 07/2011
Interest: I have been diagnosed with ALS.
Posts: 149
Wings is on a distinguished road
Default Re: Oxygen Therapy

wow Nikki that is helpful ty - im finding it interesting - and kiwi sally brilliant idea re ms search tools - i figure if your dr suggested it then there at the least cant be any harm in it... perhaps a good way to kick off the new year... boost of o2 .... happy new year!
Wings is offline  
Old 01-07-2013, 04:29 PM #13 (permalink)
Wings's Avatar
Member
 
Join Date: 2012
City: NZ
State: NZ
Country: NZ
Diagnosed: 07/2011
Interest: I have been diagnosed with ALS.
Posts: 149
Wings is on a distinguished road
Wings Wings is offline
Member
Wings's Avatar
Join Date: 2012
City: NZ
State: NZ
Country: NZ
Diagnosed: 07/2011
Interest: I have been diagnosed with ALS.
Posts: 149
Wings is on a distinguished road
Default Re: Oxygen Therapy

sally just another thought - why didnt you take up on your doctors suggestion? How r u going hun....?
Wings is offline  
Old 01-08-2013, 05:06 PM #14 (permalink)
Wings's Avatar
Member
 
Join Date: 2012
City: NZ
State: NZ
Country: NZ
Diagnosed: 07/2011
Interest: I have been diagnosed with ALS.
Posts: 149
Wings is on a distinguished road
Wings Wings is offline
Member
Wings's Avatar
Join Date: 2012
City: NZ
State: NZ
Country: NZ
Diagnosed: 07/2011
Interest: I have been diagnosed with ALS.
Posts: 149
Wings is on a distinguished road
Default Re: Oxygen Therapy

I am still researching in between getting other stuff done re oxygen therapy and have just found this document on the pubmed site... still looking to see if there was another longer trial with these results its a wonder there has not beena larger trial conducted -as at aguess i would say the length of time and number people partaking is just not enough to go by.... fascinating though - doesnt mention anything about a decrease in respiratory drive ... would love to find out more about that..

A Phase I ... [Amyotroph Lateral Scler Other Motor Neuron Disord. 2004] - PubMed - NCBI
Wings is offline  
Old 01-08-2013, 05:53 PM #15 (permalink)
Wings's Avatar
Member
 
Join Date: 2012
City: NZ
State: NZ
Country: NZ
Diagnosed: 07/2011
Interest: I have been diagnosed with ALS.
Posts: 149
Wings is on a distinguished road
Wings Wings is offline
Member
Wings's Avatar
Join Date: 2012
City: NZ
State: NZ
Country: NZ
Diagnosed: 07/2011
Interest: I have been diagnosed with ALS.
Posts: 149
Wings is on a distinguished road
Default Re: Oxygen Therapy

Stiill researching - just in case anyone else is interested i am posting some interesting links to research i am finding -hopefully they will get put up here -one has already gone too mods
Wings is offline  
Closed Thread

Tags
back, food, oxygen, therapy


Currently Active Users Viewing This Thread: 1 (0 members and 1 guests)
 
Thread Tools Search this Thread
Search this Thread:

Advanced Search

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Trackbacks are On
Pingbacks are On
Refbacks are Off

Similar Threads
Thread Thread Starter Forum Replies Last Post
Giving oxygen now Gracious99 Current Caregivers (CALS) 7 07-31-2015 07:58 PM
Oxygen and ALS Nuts Current Caregivers (CALS) 21 10-17-2014 09:43 PM
Bi-Pap and Oxygen? Altitude change? MLOx General Discussion About ALS/MND 7 05-17-2012 03:22 PM
Oxygen weaning for someone with ALS LizT General Discussion About ALS/MND 6 02-18-2012 11:15 AM
oxygen, no bi-pap 10steps Current Caregivers (CALS) 15 10-20-2011 06:05 PM
Oxygen tube keeps kinking Iloveocean General Discussion About PEG's 5 10-18-2010 01:12 PM
Oxygen Amanda529 Current Caregivers (CALS) 2 06-11-2008 11:34 PM
ALS Pneumonia and oxygen caring daughter General Discussion About ALS/MND 3 06-14-2007 06:56 PM
Oxygen use in ALS maypema Current Caregivers (CALS) 4 06-11-2007 12:22 AM
Oxygen JMH Current Caregivers (CALS) 6 01-31-2007 09:16 AM


All times are GMT -5. The time now is 10:34 PM.

 

Who we are

"We are a volunteer-driven online community that originated in 2003. We are a resource for anyone affected by ALS and MND. We are a community of like-minded and compassionate individuals. Together we are the ALS Forum and together we build this online resource and online community."

 

Want to help?

Have you found our website helpful? Do you enjoy having a place to talk to people that are knowledgeable about ALS and MND? If you have found it helpful to chat with people at different stages of the ALS/MND journey we encourage you to get involved.

Copyright © 2016