chaitali.dey
New member
- Joined
- Nov 22, 2011
- Messages
- 1
- Reason
- CALS
- Diagnosis
- 10/2011
- Country
- IND
- State
- West Bengal
- City
- Kolkata
Hi all,
I am new to the ALS group, recently my dad was diagnosed with ALS in October 2011 but may be it started a year back when he used to feel dizzy all the time. The doctors diagnosed it as problem with ear fluid, since he had difficulty in hearing on right side. Infact the dizziness stopped after taking treatments for the same.
But the ALS symptoms progressed some 3 months back. He has slurred speech, excess saliva, difficulty swallowing liquids and problems in walking (right leg). I am from India and here there is not much support for ALS here. I have written to a couple of research institutes over here but not sure about the ongoin researches if any.
I wanted to know if any of you can provide us with insight on the new drugs or researches (Stem cell research) which have helped in any way. And which institute is the best for consultation for ALS. We are ready to travel abroad for treatment till its possible for him.
As of now the only drug that has been prescribed by the doctors here is Rilutek and some vitamins. It would be great if any of you can provide more information on the drugs that might help. Also dad is on speech therapy now.
I am new to the ALS group, recently my dad was diagnosed with ALS in October 2011 but may be it started a year back when he used to feel dizzy all the time. The doctors diagnosed it as problem with ear fluid, since he had difficulty in hearing on right side. Infact the dizziness stopped after taking treatments for the same.
But the ALS symptoms progressed some 3 months back. He has slurred speech, excess saliva, difficulty swallowing liquids and problems in walking (right leg). I am from India and here there is not much support for ALS here. I have written to a couple of research institutes over here but not sure about the ongoin researches if any.
I wanted to know if any of you can provide us with insight on the new drugs or researches (Stem cell research) which have helped in any way. And which institute is the best for consultation for ALS. We are ready to travel abroad for treatment till its possible for him.
As of now the only drug that has been prescribed by the doctors here is Rilutek and some vitamins. It would be great if any of you can provide more information on the drugs that might help. Also dad is on speech therapy now.