This isn't real good. - Page 2

brooksea · 11-18-2009, 10:00 PM

It is awful!

Katie C · 11-18-2009, 10:10 PM

{{{CJ and hubby}}} Such a heartbreaking situation. Hang in there!!

indigosd · 11-19-2009, 06:11 AM

CJ, do we ever get just one day that is easy..? How are all of you today? Definately a horrible situation. I am so sorry :[

thelma313 · 11-19-2009, 06:19 AM

CJ, I am so sorry you are going through this. I am really hoping for some good news. Please let your hubby know that we are all rooting for him and his friend. Promise to take good care of yourself too ok?

Big hugs from Canada,
Rosella

brooksea · 11-19-2009, 01:43 PM

They sent him to hospice. My husband is there now saying his goodbyes. Didn't want me to go with him. He bought a heavy duty mask and promised me he'd sanitize his hands. The hospice is at another hospital facility and I really think it was unwise of my husband to go there, but I do understand him wanting to see his friend for the last time. He is a complete blubbering mess.

thelma313 · 11-19-2009, 01:47 PM

Oh CJ, how heart-wrenching. How I wish none of us had to suffer at all, or ever say good-bye but I guess it's a natural part of life's journey... it's just the part that sucks the most. I really feel for you and your hubby. All I can do is offer you both my empathy. You are both in my thoughts.

Lots of positive thoughts your way...

hopingforcure · 11-19-2009, 02:43 PM

Oh CJ, I am so sorry you guys are going through this. I seem to remember Mare talking about her hubby losing a friend also. So sad, you guys are the real deal, and so authentic. I am sending my heartfelt thoughts your way.

DgtofTNfan · 11-19-2009, 03:36 PM

CJ I am so sorry that you and your husband are dealing with such a loss.
I will be thinking of you guys.
Dana

brooksea · 11-19-2009, 03:55 PM

He's sequestered himself in our office listening to Blondie. He would like to call his friends, but they can't understand him and he will cry. I called his best friend for him to let him know he had seen their friend they call "Bone" at the hospice. The friend still has his vent, so we are confused. The only thing I can figure is that they found a hospice that would take a vented patient.

ALS sucks! Especially bulbar!!!!!!!!

KeeKer · 11-19-2009, 05:13 PM

CJ , at least he got to say goodbye. Thinking of you all.

brooksea · 11-23-2009, 01:43 PM

Well, Bone died today. The funeral will probably be on Friday.

My husband will be making DVDs for all his friends that feature pictures of their outings and it will be put to music.

Hubby is devastated to lose a friend he's known for almost 40 years and it shows. All I can tell him is that his friend is better off, in a better place.

KeeKer · 11-23-2009, 01:48 PM

Please tell your husband I am so sorry for his loss. Know that it will be hard for him. Think it is a wonderful thing that he is doing for his friends. Will probably bring back happy memories for everyone.

BarryG · 11-23-2009, 02:53 PM

CJ, please tell your husband that we are all very sorry for the loss of his long time friend. I am glad that he was able to say goodbye and that he is able to make the DVD to honour his friend and the good times that they had together.

joelc · 11-23-2009, 02:55 PM

Please tell you husband how sorry I am.

cris · 11-23-2009, 04:54 PM

CJ: Please tell your husband that I am sorry for his loss!! Such a hard experience to endure just before the holidays!! Just know that the friend is in a better place w. the Lord..no more pian or suffering. Will be sending lots of prayers your way!!

God Bless to you all!