sorry I wasn't here last night. In our case, what happened was one day we weren't supervising diligently enough I guess, so I woke up at 4 am one morning to hear Glen choking. Even though we thought we had carefully cleared out all the dangerous food items in the house, he'd found an apple. Several days later he developed pneumonia and died within 24 hours. The hospice nurses had him on morphine and atavan to keep him comfortable, he was in his recliner there because he couldn't breathe laying flat, and he simply stopped breathing. We had decided in advance there would be no agressive treatment of pneumonia, and he had been insistent on no peg or trach, so the kindest (and hardest) thing to do was to let him go.
As with everything in the ALS/FTD combo each case is so totally different. The biggest difference I think when you add in the FTD is that compliance is lower so there are more things that can go wrong, and more questions of "are we keeping him alive for him or us."