Phil's wife
Distinguished member
- Joined
- Apr 19, 2010
- Messages
- 141
- Reason
- Lost a loved one
- Diagnosis
- 05/2010
- Country
- US
- State
- NC
- City
- Wake Forest
I think some of this could be FTD playing a part, but tell me I might be wrong.
Phil's speech has gotten so bad now that when he talks it sounds like one big mumble and I can't make out a single word most of the time. I ask him to speak more clearly - one word at a time and sometimes he will do that. He won't point at anything or use any gestures - granted his arms and hands are weak, but he can use them some. He has an ipad he uses some, but he won't use the communication app on it. I ask him yes/no questions but I have to remind him to shake his head when I do - he tries to answer in long form still.
So -- is this typical FTD? Or are some PALS like this when first losing speech? If we worked to get a dynavox would he be able to use it? He used to be very computer literate, now not so much and doesn't seem to have the ability to do very much except stare at an email for a while.
How did/does your FTD PALS communicate after losing speech ability?
Thanks,
Stephanie
Phil's speech has gotten so bad now that when he talks it sounds like one big mumble and I can't make out a single word most of the time. I ask him to speak more clearly - one word at a time and sometimes he will do that. He won't point at anything or use any gestures - granted his arms and hands are weak, but he can use them some. He has an ipad he uses some, but he won't use the communication app on it. I ask him yes/no questions but I have to remind him to shake his head when I do - he tries to answer in long form still.
So -- is this typical FTD? Or are some PALS like this when first losing speech? If we worked to get a dynavox would he be able to use it? He used to be very computer literate, now not so much and doesn't seem to have the ability to do very much except stare at an email for a while.
How did/does your FTD PALS communicate after losing speech ability?
Thanks,
Stephanie