Lithium trial UK and stem cell news
The MND assoc UK has just sent me news of the proposed UK lithium trial...cos I have been driving them mad for information, but in any case I think it has been announced in the press now..there will be approx 200 participants from 10 centres around the uk...dont know which yet...and half will get the placebo, computer chosen. It will run in parallel with the north american trial. Duration of the uk trial 18 months.
you must have a diagnosis between 6 months and 3 years, and it is ALS...and they want similar forms...will that rule out bulbar onset...dont know... must have been taking Riluzole for at least 4 weeks....forced ari capacity of 60%, be over 18
no one with gastrostomy, no one with tracheostomy or non invasive ventilation..no one with any medical condition that may pose a risk...(maybe that will let me out of it, as I have suffered with kidney problems since age 16....). No one can participaate if they have had entry to another trial within the entry to the study. Hope this is valuable to others in the uk. They say to talk to your neuro about it if you are interested.
THEN on the news this morning...BBC world news, which I heard in Florida.
STEM CELL....sorry it was 4 am, so I didnt get all of it...I think it was in Japan, they have managed to make a brain, or part of one, from ...was it cord blood?...I think they said stage one, two and 3 of the brain...apparently there are 5 stages.?...so work is coming on there...I have tried to find a link to some REAL information about this but failed.
jennifer51