Old 02-11-2018, 04:34 PM #1 (permalink)
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Default Restarted Pimozide.

My husband decide to restart Pimozide nearly a month ago at the lowest dose. The side effects are still present (extreme fatigue, slurred speech, and excess saliva), however, at his last ALSFR appointment, he had not progressed at all. My husband is an extremely slow professor, but he has always progressed, just more slowly thank most thankfully. I'm not sure if it is just the Pimozide or a combination with Edaravone, which he is also on. We're quite happy with this news regardless.

While we both hate the side effects, of course him more so than me, he's going to push on through the trial and hope that the side effects dissipate soon. He doesn't want to give up as his life is being dangled in front of his eyes, if I can be so melodramatic. Who knows what the coming months will bring but the trial ends in May and it will be interesting to see where he is at that point.

Just thought I'd give an update.

J
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Old 02-18-2018, 03:05 AM #2 (permalink)
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Default Re: Restarted Pimozide.

Thanks for the update J. I am very interested to hear the results of that trial. I was going to volunteer for the CK trial at U of C but I think the seven trips will be too gruelling. MRI study in Vancouver it is.
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