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Statius@

Distinguished member
Joined
Jan 3, 2016
Messages
351
Reason
PALS
Diagnosis
11/2015
Country
US
State
Iowa
City
Iowa City
Can anyone point me to a report, formal or informal, on the outcome of Bedlack's Lunasin study? I see nothing new in ALS Untangled or via Google search or search here. I'm using up the supply I have on hand, and while my progression is fairly slow, it is happening and the only benefit I've seen is an energy boost, which I could probably get via cheaper protein supplements (unless of course it's contributing to my slow progression).

I queried the nurse who shared the protocol with me, but no response. I realize data analysis and peer review will slow down the reports in scientific journals, but can't help wondering if there's some unofficial report of results (beyond mostly negative anecdotes) that I've missed.

Not wanting to throw good money after bad....

Ed
 
This was in the cards, really. I have attached the original 2014 ALS Untangled review for those catching up. A trial was conducted due to popular demand, not a scientific rationale.
 

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  • ALS2014ALSUntangled26Lunasinfinal.pdf
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