NothingButLove
Distinguished member
- Joined
- Dec 25, 2016
- Messages
- 106
- Reason
- Lost a loved one
- Diagnosis
- 11/2016
- Country
- US
- State
- CA
- City
- Anaheim
The clinical research coordinator at UCI MDA-ALS & Neuromuscular Center emailed my wife and said:
I'll post updates as the trial progresses. Wish us luck.
Rob
"I wanted to let you know that all the results are in and you qualify for the NP001 ALS trial! We are very excited to have you participate and sincerely appreciate your effort!!
As I mentioned before, the first infusion will occur over five consecutive days and takes between 3-4 hours per visit. The infusion itself will only take one hour to complete followed by a two-hour observation period. The very first infusion will be closer to 4 hours because we need to complete pre-dose assessments and wait for pharmacy to prepare the study drug. The first infusion cycle needs to begin the week of May 1st which is next week."
This will be our first clinical trial. At first I was against the idea of clinical trials. Now, I think it's a good idea to participate so people in the future might get some benefit. Also, it's another reason to get out of the house which is always a good thing. UCI is the clinic my wife normally goes to and it's close by so it's not a big hassle.As I mentioned before, the first infusion will occur over five consecutive days and takes between 3-4 hours per visit. The infusion itself will only take one hour to complete followed by a two-hour observation period. The very first infusion will be closer to 4 hours because we need to complete pre-dose assessments and wait for pharmacy to prepare the study drug. The first infusion cycle needs to begin the week of May 1st which is next week."
I'll post updates as the trial progresses. Wish us luck.
Rob