The problem with clinical trials is the criteria they use to accept a patient. Early on my husbands disease, I called nurown in Israel, and here in the US but there were no positive response. It is extremely frustrating, I have been trying to get him in a clinical trial since day 1, but now when finally they would include him in a clinical trial for NP001, his breathing has deteriorated and can't participate.
I hate the way the clinical trials are managed. There is no common sense, it is extremely slow and definitely is no patient oriented.