njk0407
Active member
- Joined
- May 10, 2016
- Messages
- 84
- Reason
- Lost a loved one
- Diagnosis
- 06/2016
- Country
- US
- State
- NC
- City
- Holly Springs
Hi, my husband has been diagnosed with ALS. He is 36 years old. Dr. Bedlack said that he is about 1 year into progression. His breathing is at 101%, which is good according to them. He has 60% strength in his right hand and 36% strength in his left hand. He has left arm/hand weakness and weakness starting in his right leg. He also disclosed to the Dr. that he has tripped/fallen on 3-4 occasions. He said he feels like his toes get caught when walking. I am just starting to look into these so I don't have much info at the moment except what they gave me for Tirasemtiv Phase 3 Trial. He is eligible for (please forgive me if I'm not spelling them right):
1. Tirasemtiv Phase 3 (Immediately)
2. ALS Untangled (Immediately)
UPCOMING:
1. MP001(NP001)
2. Ritigabean (sp)
Any advice is greatly appreciated.
Thank you,
Nikki
1. Tirasemtiv Phase 3 (Immediately)
2. ALS Untangled (Immediately)
UPCOMING:
1. MP001(NP001)
2. Ritigabean (sp)
Any advice is greatly appreciated.
Thank you,
Nikki