Nikki J
Moderator
- Joined
- Mar 22, 2012
- Messages
- 16,384
- Reason
- PALS
- Diagnosis
- 04/2014
- Country
- US
- State
- MA
- City
- Boston
They are not recruiting yet. If you qualify keep an eye out though
As you can see the criteria include symptoms under 36 months and ability to swallow the pills. Also no severe cardiac issues. There will be 12 sites
Retigabine is an epilepsy medicine. It was found to help in a study using IPS cells from PALS and people with the genetic mutations that cause fALS. Essentially it made the cells less irritable. My sister has been taking it off label. She is in somewhat of a plateau. I don't know that there is causation here but I hope so
ALS Clinical Trials | ALS Therapy Development Institute
As you can see the criteria include symptoms under 36 months and ability to swallow the pills. Also no severe cardiac issues. There will be 12 sites
Retigabine is an epilepsy medicine. It was found to help in a study using IPS cells from PALS and people with the genetic mutations that cause fALS. Essentially it made the cells less irritable. My sister has been taking it off label. She is in somewhat of a plateau. I don't know that there is causation here but I hope so
ALS Clinical Trials | ALS Therapy Development Institute
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