I'm going in for my 2 month checkup tomorrow at Mass General. I'm going to have the 2-hour and 4-hour blood draws at that time.
I THINK I have the real thing and not the placebo... my progression has been slow to start with, and it doesn't seem like anything else is "going" at the moment. Very minor side effects with this med, so not sure if I have it or not. I take one pill in the morning, and one at night. I chose not to take Rilutek, so that wasn't an issue.
Some people mentioned that they're having sleeping issues: I realized that I was waking up a lot at night, but attributed it more to the heat wave/ac... but it may also be the Dex. I don't have any problem falling back to sleep. I feel tingling in my left leg at times, and do feel some cramping in my right leg. But no additional atrophy in the left, and right still looks fine, even though it's a weaker than it was last year.
My lower back pain in the morning is usually less than it was (arthritis and spine related)... and my BMs are looser since I started the trial.
Had some mild nausea around the second week, but that's gone. I think I've gained weight since I started on this trial, which bugs me even though I keep hearing we're not supposed to lose weight, I would like to be down to the right weight for me.
