SophiaShao
New member
- Joined
- Sep 17, 2010
- Messages
- 3
- Reason
- Loved one DX
- Country
- IRE
- State
- Dublin
- City
- Dublin
Dear all,
I am new in the forum and hope to get some feedback from the ones already in the Ceftriaxone trial.
My mother, 57 years old, currently live in China, diagnosed ALS 1 year ago while the first symptoms onset already almost 3.5 years ago. At first the doctors could not give a correct diagnosis as they even never heard of ALS, not mention the treatment or symptoms, its a small city anyway and this disease is still relatively rare. So no one could confirm the diagnosis until last summer when we finnally took her to Beijing.
During this year her condition is getting worse and worse rapidly and aggressively . Knowing that the only approved medicine is Rilutek which is quite expensive and we have no insurance would cover it in China, also cos of the side effect ,my mother did not take Rilutek at all.
Now we heard about the Ceftriaxone trial, maybe we can have a try. Of course we could not be involved in the trial in US but we just want to do it on our own. I have read some thread, seems that the dose should be 2g per time and 2 times per day, however I am not sure about the solvent, is it sterile water or normal saline ? and also the volume , 40ml ? 50 ml ? 100ml? or even more ? And is there anything we should be careful about during taking Ceftriaxone ?
Thanks for your time and your reply is really apprieciated.
Best wishes to ALL of you!
Sophia
I am new in the forum and hope to get some feedback from the ones already in the Ceftriaxone trial.
My mother, 57 years old, currently live in China, diagnosed ALS 1 year ago while the first symptoms onset already almost 3.5 years ago. At first the doctors could not give a correct diagnosis as they even never heard of ALS, not mention the treatment or symptoms, its a small city anyway and this disease is still relatively rare. So no one could confirm the diagnosis until last summer when we finnally took her to Beijing.
During this year her condition is getting worse and worse rapidly and aggressively . Knowing that the only approved medicine is Rilutek which is quite expensive and we have no insurance would cover it in China, also cos of the side effect ,my mother did not take Rilutek at all.
Now we heard about the Ceftriaxone trial, maybe we can have a try. Of course we could not be involved in the trial in US but we just want to do it on our own. I have read some thread, seems that the dose should be 2g per time and 2 times per day, however I am not sure about the solvent, is it sterile water or normal saline ? and also the volume , 40ml ? 50 ml ? 100ml? or even more ? And is there anything we should be careful about during taking Ceftriaxone ?
Thanks for your time and your reply is really apprieciated.
Best wishes to ALL of you!
Sophia