Alyoop
Very helpful member
- Joined
- Jul 5, 2010
- Messages
- 1,796
- Reason
- DX UMND/PLS
- Country
- NZ
- State
- NZ
- City
- NZ
Hey I have mentioned it before on this forum, but Last month my Neuro hubby came back from an MS conference in Sydney where they discussed an MS study that is using diethyl fumerate on MS patients. It is in phase 3 clinical trials. The study will be nearing completeion in the next 6 months. I am a clinical trial coordinator and have 7 patients on the MS study using the drug. The side effects have been minimal.
Any way the speaker at the MS conference said that in theory the drug should be neuroprotective in MND as well. We both just got back from a conference at the weekend and a speaker from the UK said exactly the same. These were both MS conferences, but I would love to know whether or not any of the pharmaceutical companies are going to look at it for MND.
It is used for advanced psoriasis in Germany, and has been for many years with some success. It is exciting news. My hubby is going to talk to a local pharmacist and see if we can import some.
Anyone out there heard anything about a possible study using it?
If so I wonder if we could get a study here in NZ?
Fingers crossed
Aly
Any way the speaker at the MS conference said that in theory the drug should be neuroprotective in MND as well. We both just got back from a conference at the weekend and a speaker from the UK said exactly the same. These were both MS conferences, but I would love to know whether or not any of the pharmaceutical companies are going to look at it for MND.
It is used for advanced psoriasis in Germany, and has been for many years with some success. It is exciting news. My hubby is going to talk to a local pharmacist and see if we can import some.
Anyone out there heard anything about a possible study using it?
If so I wonder if we could get a study here in NZ?
Fingers crossed
Aly