rhythman... I think everybody on the other thread said it all, but I just want to chime in.
ALS cannot be dx by an ENT, no matter how smart he thinks he is, and even with the best neuro in the world, you need a second opinion. It requires very specific symptoms, none of which this ENT has tested you for.
I had a doctor throw a dx at me (for MG) with nothing but his first impression to back him up ... no tests, nothing ... and it was irresponsible to do so. And he was completely wrong.
I know this has thrown you for a loop ... it would anyone ... but any doctor (not even a neuro!) who would throw out a dx of
ALS like that proves he is a quack.
Hang in there till your neuro gets back and you're in the hands of an expert again.