Momma,
Cheer up! All is good! I also have weakness in my arms and feet. The cold really makes them worse, I don't know if you have any cold weather or not. But soak in a hot bath tub if you can and exercise them it helps. Also weakness is a side effect of the meds, I am hoping for a quick winter so I can sit in the sunshine again. I had my 2 month check up on wed and I am doing well with everything, they can't tell me anything specific because of the trial, but I do know about someone who has been on ceftriaxone for the last 3 years and the ceftriaxone has really really slowed down the progression of the als.
Keep the faith, stay positive, taking a chance with the ceftriaxone is better than to have no chance at all. It's ok to have one of those days we all have them. Only you know if you are doing the right thing! But people who know me are inspired by my total positive attitude toward the trial, my life, and dealing with als. I do not know what my future holds but I do know that I will not waste my time or energy being sad over something I can not control. I plan to live life the best that I can, and pray that the ceftriaxone will make a difference for all of us.
Hang in there momma
Judy