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Old 11-21-2009, 11:35 AM   #5 (permalink)
halfin
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Join Date: 2009
City: Santa Barbara
State: CA
Country: US
Diagnosed: 08/2009
Posts: 327
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Default Re: ALS the NICE GENE DISEASE

I was reading Augie's Quest, the book about Augie Nieto, president of the company that makes LifeCycle fitness products, who got ALS and now heads up major fundraising efforts with the MDA. Augie quotes Houston neurologist Stanley Appel, an ALS expert, about this effect:

Quote:
As an illustration, Dr. Appel told the story of a patient he diagnosed, a gentleman typical of what Dr. Appel called "the nice guy phenotype". The man was a former football player and quarterback coach at Texas A&M. When Dr. Appel told him it looked like he had ALS, the coach and his wife wept, and they were shortly joined by Dr. Appel. "We carry around boxes of Kleenex here," he said of his clinic. With his neurologist still crying before him, the coach drew himself up to his full 6'4" height, laid a hand on Dr. Appel's shoulder, and said, "It must be tough telling patients they have ALS."
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