ALS/MND Support Group Forums - View Single Post - Re: "bulbar-onset rarely misdiagnosed"

Kate · 11-07-2009, 01:57 PM

I just lost my friend of 38 years to bulbar ALS. She was diagnosed 3 1/2 years ago. She and her husband chose to go it alone without the help of any support groups and minimal family help. It was tough to watch. Reach out and take all the help you can get. Get yourself setup with whatever kind of home care you can find, you will need it. Don't wait until you absolutely have to have help. Start now so you and she are comfortable with the people coming into your home to help you.

11-07-2009, 01:57 PM	#14 (permalink)
Kate New Member (Say Hi) Registered Member Join Date: 2008 City: Depere State: wisconsin Country: us Diagnosed: 00/0000 Posts: 7	Re: "bulbar-onset rarely misdiagnosed" I just lost my friend of 38 years to bulbar ALS. She was diagnosed 3 1/2 years ago. She and her husband chose to go it alone without the help of any support groups and minimal family help. It was tough to watch. Reach out and take all the help you can get. Get yourself setup with whatever kind of home care you can find, you will need it. Don't wait until you absolutely have to have help. Start now so you and she are comfortable with the people coming into your home to help you.